Abdominal symptoms + others

[jewel17007]

I am a 28 yr old female.

Diagnosed with Fibromyalgia at 18, dealt with pain from my hips to my neck daily and constant fatigue for years.

Wide range of symptoms:

abdominal: cramping, bloating, distended abdomen, nauseousness, vomiting infrequently, burning sensation. 30 lb+ weight loss in last 6 months. Had diarrhea for about 6 months, stopped when i took antibiotics. Still go between  constipation and diarrhea often. When pushing on my distended abdomen i can feel lumps all over (intestines?). Area to the right and above the right side of my belly button sticks out further than any other area at all times. Burping excessively.  Feel full fast.

Other symptoms: low grade fever going up to 99.5-99.7 daily off and on. Feeling flu-ish daily. Feeling flushed. Pinky finger on right hand goes numb when i use my right hand. Constant fatigue and weakness. I feel like my eyes are dropping when i feel my worse, looking in the mirror they are saggy. Drink more than enough fluids, pee often, sometimes i will go and 20 minutes later it hurts like i have been holding it for awhile and i have to go again.

Tachycardia - have had  24 heart monitor, ekg and sonogram of heart. nothing to explain symptoms.

I have been checked by an:
Endocrinologist = not thyroid related
Cardiologist = told me it was thyroid related sent me to the Endocrinologist.
Family doctor: send me for all kinds of blood work including celiac and other allergies.
Rhuematologist = agrees with fibromyalgia, before other symptoms arose.
Gastroenterologists- gave me antibiotics, i could eat again without throwing up after. Now going to check me for Lactose Intolerance.

I have been through so many doctors who just send me else where then i have to wait weeks to months for more tests to be done and get the results. I have to work full time to afford medical insurance. I am to the point where I just live feeling like **** daily. I don't know where to go from here. I am physically miserable daily and Doctors have given me no answers or solutions besides medicine to cover the symptoms. Please help.

[hikertech]

It would be nice to simply send over House, M.D. :) A friend of mine was diagnosed with proximal tachacardia in his early 30's. It was a precursor symptom to diabetes. So, the best thing you can do is cut out drinking alcohol and/or soda for one. Don't binge drink! Cut out all unhealthy habits.

You might want to monitor blood sugar if there's a history of diabetes in your family. Often times people don't know since one of their parents are adopted. Try changing your day-to-day patterns and make notes.

This could be stress-related, too. So (even though this may sound corny) just relax and let life work itself the way it will. Take stock of all the positives. Make an effort to think positively for a few minutes and relax before going to bed. It might help!

[Hannahmoo]

Hello...What you describe is almost exactly what I have been feeling since April of this year. In addition to what you've described...I suffer a burning pain just below my right rib area and dizziness. My pain in lower back into right hip and cervical/neck pain are unreal. My headaches come nearly everyday and the fatigue is crushing. I have never been diagnosed with fibromyalgia however, I was diagnosed with CFIDS twenty years ago whe I was your age. I treated with alternative medicine for years and got some relief but since April of this year I've gotten much worse.

I've had evry test and scan known to man...including ct scans of abdomen, octreotide scan, mri of abdomen and brain, upper endoscopy and countless blood tests. Everything was within normal limits except for a benign hemangioma on my liver. I am scheduled for a colonoscopy on Nov. 18....doctor believes it may show nothing. He has even gone so far as to suggest this may all be due to stress and /or depression! I've lost 14 lbs. since April and cannot gain a pound! I am also terrified that one of the scans missed something.

It sounds to me that you may have CFIDS as well as Fibromyalgia. Have you looked on the CFIDS.org website at the symptoms? I tend to believe that what you describe and what I am experiencing are autoimmune in nature. If that is the case, mainstream doctors are probably not going to figure it out.

Let me know if you've looked into CFIDS...don't give up searching i the meantime. I know how hard it is to feel poorly everyday....believe me I do.

[jewel17007]

Should I ask for more in depth Celiac testing?