Since 2009 I have experienced intense stomach cramping near the belly button; horrible diarrhea (approx. 6+ restroom trips per day); foam/mucus in my stool/diarrhea. I have incredibly low appetite (1 meal per day, sometimes just like snacking, and always after 4PM as the pain and nausea in the earlier parts of the day are too intense).
In June 2017 my appendix was removed due to appendicitis. During laparoscopic surgery, they noticed severe abdominal adhesions and had to cut me open in 3 places to remove the scar tissue (I should note I've never had surgery except for this appendectomy) and appendix (the surgery was expected to be 30 minutes but took 3.5 hours).
The 3 months that followed my appendectomy I was symptom free. This was the first time in 8 years I passed normal stools only once per day and no cramps or pain. But toward the end of September 2017 the symptoms all came back, and much worse.
I was hospitalized December 13, 2017 for intussusception and early had resection surgery, but they opted instead to perform a colonoscopy and upper GI scope. Those results came back completely negative (no diagnosis), even though the surgeon who removed the scar tissue and appendix noted that the scarring was either from IBD or Crohns disease.
They gastro team has since referred my case to a larger city for a second opinion as well as a pain management specialist.
I have tried using prilosec, nexium, Imodium, Bentyl, but those tend to make the pain worse, and does not affect my diarrhea nor frequency of going to the restroom. The doctors have given me narcotic pain killers (oxycodone) which does actually fix all the above symptoms, but is obviously not a cure, perhaps a bandaid at best- and I do not want to become addicted, so I am a bit scared to continue using them.
I have scoured the internet for information, everything from the Vagus nerve to celiac (I've tried different diets such as no gluten, no dairy, no red meat, etc.) and some of the symptoms seem to fit, but the doctors keep saying there's nothing wrong. I KNOW something is wrong though, I've been living in intense abdominal pain and frequent restroom visits now for almost 9 years now. I'm just wanting to see if there is something I can research to help guide me in the right direction. I honestly thought I had Chron's or IBD but the doctors seem to think otherwise. If you can point me to a resource to research, I would be eternally grateful!
Thank you in advance for reading/responding.