Chronic Paancreaatiituus

[Shaamz09]

Hello,

I got admiited in to hospital cristmas eve with pancreatitus I was in there  for 2days, i got discharged with no pain relief even though i was in reaalii bad pain stil n reaally swoolen, i was only out 8-9days n i got admiited back in again not last Tuesday but Tuesday before for a further 2days, i got discharged on the Thursday with ibruufen and paracetmol which didnt really work, sooo i got admiited again last Monday with the same pains as i had christmas eve and the Tuesday before, the only kept me for a few hours this time and they discharged me with Co Codamol, but im on 40mls of methadone which the hospital knows am on it, the Co Codamol worked for a while and helped ease the pain but on Monday i went to the doctors as it werent helping the pain anymore and she prescribed with Tramadol.

2Daay i tuk my Methadone and the Tramadol on top without thinking, can you mix Methadone and Tramadol, bcuz am also alternatiing my Co Codamol and Tramadol to help ease the pain

The doctors at the hospital cant do anything for the pancreatitus except treat the pain and then discharge me again, they dont know the cause of it as i dont drink anymore and havent done 4 over 3yrs now and all my Blood Testz and CT n Ultrasound Scans iv hd while bein in hospital have all come back clear for Gallstones which they say are the 2 main causes of Pancreatitus, they also dont know how long it'll take 2 settle aswel, it could take weeks, months or even years cos now am in the chronic stages whereas when i got admiited Christmas Eve it was Acute pendin Chronic Pancreatitus.

Can any1 help answer my questions as 2 wether itz ok 2 take, Methadone, Tramadol n Co Codamol all together obvs not at the same time but through out the day to help the pain as iv been sufferin 4 5wkz n 5daayz with this now and it dont look like its going to clear up anytime soon.

Thankyou for yur help (in advance)

[Shaamz09]

got a lettaa thru the post this mrnin, got an appt on 27th March 2012 at 9.15am 4 the outpatient clinic xx

[Shaamz09]

Iv not had an appt yet, waitin 4 1 2 *** thru x

[patient915]

I'm sorry but I'm having a lot of trouble understanding what you are trying to say.  How did the outpatient clinic go?

[Shaamz09]

Same here cud b sumthin 2 du wiv me kickin off on monday wen the surgical doctaa came 2 see me n he sed they wer admittin me 2 keep on top ov the pain n i cud eat n drink n dnt need a catheter as thatz wot normaally happenz wen am admiittd

I also kickd off aswel wen the consultantz *** 2 see yuu in the mrnin n he sed therz nothin they can du as they cnt operate as yuu need yuur pancreas as itz 1 ov yuur major organz n he also sed im realli poorlii wiv it but nt poorlii enuuff 4 a transplant apparently but hes gna bring me back 2 the outpatientz clinic sooo they can keep on top ov it, sooo i dnt no wot thatz consistz of, mayb more testz n scanz n xraayz

I needed a 2nd xray cuz they wer lukin 4 a layer ov air that cumz 4rm the bowel 2 my chest but cnt memba wot the name iz it beginz wiv P but i dint av tht but testz showd my amalaze woz high which iz a sing ov pancreatitus

Soooo wiv yuur illness duu yuu have 2 b attachd 2 that tube that feedz yuu 4 rest ov yuur life or jus until yuur tummy getz bettaa? i reaalli dnt have any knowlegde bout yuur illness

I dint no wot pancreatitus woz until a cuple wkz ago wen i read upon it on the net xx

[patient915]

Good, I'm glad they are bringing you into their outpatient clinic.

[Shaamz09]

I got admiitd 2 hospital agen on monday at bout 2ish in aftanoon n got dischargd last nyt bout 7ish, i kickd off n they sed therz nothin they can du iz admit me n keep on top ov the pain n then send me hme but theyv now agreed 2 bring me bak 4 apptz in outpatientz clinic now which theyv nva dun that b4 sooo am happi theyv dun tht, i got dischargd wiv more co codamol n stil need 2 tek my tramadol aswel.

[Shaamz09]

I only wanted 2 no if i cud tek my methadone n tramadol at the same tym, i thought id b speakin 2 a docter directly 4 sum reason n get sum advice 4rm them, sooo i postd in the substance misuse community n they moved all my 3 commentz 2 here LOLZ.

Imaa just stay here if thatz ok babe xxx

[Shaamz09]

Ooooooo soundz scary all them big wrdz n techincal wordz 4 me lolz

Theyv not offered me anything with that, they told me afta spendin 2wkz the 1st tym theyd send 4 me in a few wkz 4 a follow up ultrasound scan n CT scan but 8-9dayz l8a i wer back in agen 4 2dayz n they sed then they dnt need 2 see me again but if i get the same painz agen *** bak 2 A&E n 4dayz i wer back in agen 4 a few hrz n they sed exat same thing if i get pain again that i cant manage then 2 *** bk 2 A&E i nearly ended up bak in last monday cuz i cudn move wivout cryin n i mean fullball cryin n i cud hardly walk, my bf had 2 help me walk 2 toilet n itz realy affectin him aswel i nva stopped 2 think how bad it woz affecting him.

Yeaah let me no how yuu get on with them tablets n if they wrk n ill ask doctaz 2 prescribe me dem xxx

[patient915]

If your question is about how to stay not addicted to pain killers, then it shouldn't be moved.  Try again, and if they move it again, let me know and I'll deal with it.

[ConfusedandConcerned72]

Empathetic to your situation...Having a rough go of it I am sure, chronic symptoms of pancreatitis are fun. Mine started August last year with debilitating pain and 4 day hospital stay than bacon September 3 day hospital, home 2, back hospital 4. Seen specialist at state u Mrcp negative, ercp showed pancreatic scarring and I was diagnosed w/chronic pancreatitis. They did pancreatic sphinterotomy and left stint. This did help slow down bowels and I have only had 1  episode since.  So you might suggest this to your doc . Pain however did not go away I just started fentanyl 4 days ago if it works I will let you know and I hope you are able to find some relief.

[Shaamz09]

thats exactly wot i put in there n it got moved here,

Awwww babe, hope yuu get it sorted soon hopefully,

i got them symptomz few mtnhz b4 gettin chronic pancreatitus they wen i 1st got admittd it showd tht i had a cuple tymz b4 cuz my pancreas woz scard but yuu can get it wher it dnt botha yuu at all n wen yuu av acute pancreatitus it turnz in chronic which iv got. wen i wer in ovah crimbo 4 dem 2wkz they wantd 2 put a line in my arm wher it feedz me but i startd eatin a cuple dayz b4 sooo dint need 2 have it, n i wer on I.V drip aswel n i wer havin tramadol, anitbioticz, painkillaz n also morphine injectionz in2 my tummy n it dint wrk 4 my pain n Fluiidz n they wer also gna put me on a morphine drip aswel wher i controlld my morphine but the doctaz wudn giv me it bcuz obv bein an ex addict n they med up an excuse but i nuu tht wer it xxxxxx

[patient915]

Well I would recommend posting there saying that you are a recovering heroin and crack addict and a recovering alcoholic and your doctors have put you on narcotics and you are worried about getting addicted and if they have any advice for you.

I'm pretty nauseous right now, but I'm managing.  Gastroparesis is when your stomach is basically paralyzed so food doesn't move through it.  When I used to try and eat, I would get full really quickly, very nauseous, and then vomit up everything I had eaten.  Now that I am tube fed into my small intestines as opposed to my stomach, I don't vomit, I don't have a full feeling, but I still have problems with nausea.  I also have a PICC line (which is like a long-term IV that goes into my arm and the tube goes from my arm to my heart) so that I can get medications intravenously.

[Shaamz09]

i did post on there community page but then a cuple hrz later i got an email sayin they'd movd my comment 2 this gastroenterology community soooo i did try huni, i also dint realise id postd my comment 3 tymz soooo its a bit confusin wen i get an email 2 say sum1z commentd as iv gt 3 commentz the same in this forum lolz, cuz my laptop had froze sooo i dint realise id postd 3tymz cuz it wudn send thatz y id clikd it a few tymz n then sum1 told me id postd 3 tymz lolz.

Am not in much pain 2day, stil in pain but my methadones easd it 2day, 7wkz 2day aswel bin sufferin, soooo am hopin itz slowly startin 2 get bettaa hopefully..

How yuu feelin hunnii, yuu feelin any bettaa, as iv nva herd ov yuur illness b4, cud yuu xplain abit bout it 4 me if yuu dnt mynd huni <3 xxx

[patient915]

Then I would recommend you find a different doctor.  If you are a recovering heroin and crack addict and a recovering alcoholic, I too worry that you could become addicted to these pain meds. You might want to try posting on the addiction: substance abuse community to see if they can give you any guidance.

[Shaamz09]

iv tried but they jus ignore me as my doctaaz have nva lykd me at all. itz jus frustraatiin cuz am nt gettin bettaa n all they duu iz prescribe me wiv more frikin painkillaaz which ent the ansaa cuuz am a recoverin heroiin n craack addiict nalcoholiic soooo ther giivn me highly addictive painkillaz lyk they wnt me 2 get addictd 2 dem aswel, 6weekz n 6daayz nw itz a joke b 7wkz 2mz :(

How yuu feeliin now baabe xxx

[patient915]

It sounds like you are having a lot of anxiety and stress about this.  Have you talked to your doctor about this?

[Shaamz09]

I Know But I Dnt Nooo Wtf 2 Duu Bcuuz Am Sooooo Agiitaattd :(

[patient915]

There are some other medicines besides narcotics that can help with pain.

[Shaamz09]

awwww i hope yuu get bettaa soon babe, iv got no knowledge on it tbh, iv also neva herd ov pancreatitus b4 i got diagnosed wv it, i stil dnt fully understand it fully

Thaankyuu both ov yuu 4 help n advice, il keep yuu updated xxx

[Shaamz09]

Awwww Thaankyuu buut Wiill They Giive Me Thaat Wiiv Beiin On Methaadone Baab? xxxxx

[patient915]

I would recommend you look into see a pain management doctor.  I have a condition called gastroparesis where my stomach does not empty.

[TGee]

Shaamzop,

I had pancreatitis in 2008.  I just posted a question about it where I describe it in detail.

You might want to consider taking the amino acid - Methionine.  I started taking it about 6 months after my pancreatitis and it helped with the pain tremendously.  Two herbs that might help also are Milk Thistle and Dandelion.  But, I would try the Methionine first.

You can find them at most health food stores.

Best wishes.

Tim

[Shaamz09]

Thaats wot iv read on the internet as im sufferin 4rm Chronic Pancreatitus n iv bin sufferin 4 6wkz n 3dayz nw really gettin 2 me but the doctaz dnt du nthn except send me 4 testz n tek blood testz n artery testz n ase the pain n the send me bk hme agen. itz a frikin joke. wot are yuu sufferin 4rm if yuu dnt mind me aksn huni xx

[patient915]

It sounds like you need to find a good gastroenterologist who will help you deal with this.  It is very very rare to die from this, so I wouldn't worry about that.  And it is also unlikely that you would need a feeding tube.  However, I have had a feeding tube for a year now and I can honestly tell you that it is not a big deal and it has helped my problems immensely.