Maybe call your local news,and try to get help and get the attention you deserve..I have seen people do that where i live..God bless you guys..
my heart is with you both itis sickening when our health becomes a postcode lottery as it does in uk esp for cancer patients and hose with alzhiemers as my mum has, and was denined the tablets he needed now it it too progressed and i have to watch my mum slowly taken away from me not physically but mentally does not no who i am now and thats hard as im only 39 and my mum has had this for 6 yrs bless her ,,,,,,so good look you guys