I am really interested to know if they found what you were suffering from and how you are now. Please update, if you are here! Thank you
hi i am a 16 year old girl from malaysia. when i read your article, i had a weird feeling.. it was like there is someone else suffering like me. i don't have lung cancer, but i suspect i have other disease cuz i a not the real me. i have been diagnosed for migrain but it's not getting any better and when i check for symptoms through the internet, i can say that i have all of them. but none of my family members cares on what happening to me. they keep on putting pressure on me and make me more depressed. now, my mind is all about dying. i just wanna die!! i had attempted suicide for 9 times but sadly i am still alive. anyways, i am very clear that i am gonna die soon due to either stroke, coma, aneurysm or any other major illness. i am also ready to die cuz i have no mood to live any longer especially in my family where i get no trust.
hi i am a 16 year old girl from malaysia. when i read your article, i had a weird feeling.. it was like there is someone else suffering like me. i don't have lung cancer, but i suspect i have other disease cuz i a not the real me. i have been diagnosed for migrain but it's not getting any better and when i check for symptoms through the internet, i can say that i have all of them. but none of my family members cares on what happening to me. they keep on putting pressure on me and make me more depressed. now, my mind is all about dying. i just wanna die!! i had attempted suicide for 9 times but sadly i am still alive. anyways, i am very clear that i am gonna die soon due to either stroke, coma, aneurysm or any other major illness. i am also ready to die cuz i have no mood to live any longer especially in my family where i get no trust.
I can only tell you this, from the other side of your story the pain is immeasurable. The news that your pancreas is alright is wonderful, a blessing beyond words. With only a vast amount of suspicious causes for your aliments please don't do anything irreversable such as ending your life. That is agony. A torment you yourself will never know. Many difficult yet treatable conditions can cause your symptoms. I know, for I went for years with undiagnosised lupus and epilepsy. Sometimes it takes the right doctors, and not just in the UK the US can be difficult to find them too.
My sister did have Liver cancer and Panceratic cancer. She did not share the pancreas diagnosis with us. The pain over took her, without a good bye my best friend left me. I am left with knowing her pain is gone. But on that day, a different agony began for me. I looked out and over her my whole life. I am not angry, I am devistated. It's been 2 years and everyday I am so sorry I didn't get to tell her goodbye and I love you.
Don't just leave in such a way that you believe it's better. Say goodbye to the ones you love, if that is a choice that no one can talk you out of. Personally, I would never do it without knowing for sure what is going on with my body, it might be treat able. Either way. God Bless and I wish you well.
I feel the same way you do sometimes, well most of the time. I have RA, MS, FA, OA, UC, and depression and now a compression fracture of L2 from a fall last month when I was walking my dog at 6am, I slipped and fell on my bum on an icy sidewalk in front of my house. Speaking of house, I would love to have a doctor like HOUSE too! Those vicodin he takes, maybe he would share! That is what I need, immediate relief pain med. I currently am taking oxycontin, but low dose 15mg 2 x daily. Not barely touching my pain. See my ra doc friday, will talk to her about getting a ir med. I can't take any tnf blockers or typical ra meds because of the MS I have now, due to taking Humira back in 06 for 3 months along with methotrexate which weakend my already compromised immune system, with sicknes, lots of lung associated viruses.
I too had 6 month spell of chronic diareah, 20 times a day. Had to start wearing depends, or just not go out. Which was more likely the case, now my husband does it all almost for out 15 year old daughter. I had an upper gi and colonoscopy, removed a couple of polyps, and they found an ulceritive colitis, yet another symptom of RA,. Spinal tap indicated some other gunk. When you start getting bilateralo pains and aches, it could be ra or fbro. Have your RF factor and sed rate checkied. Make sure you surround yourself with professionals that care. Gooe luck, everybody dies, just don't want to die slowly in so much pain, with not enough goood care and relief.l By for now, Nancy in Redmond WA ps I am having a lung ct on Friday to see if my coughing and wheezing that is lingering on from viral pneumonia and bronchitis had since end of November, could be rheumatoid nodules in lungs or the big C. Do you know Dr House's phone number!
Wow,
WHat a story and I thought things in the US were bad medically and they haven't even got started on the new health care stuff. I have no medical insurance so I don't go to the Dr for my pain unless it gets so bad that I can't stand it and have to go to the ER, I am
scared with what I am feeling and my family history and have no idea what to do.
At any rate, im so sorry you are suffering like this, Someone were you are has got to find what is wrong with you so please DON'T ever think about taking your own life because its not worth it in the end for you or any one else concerned.
Take care
I appreciate your taking an interest in my story. It does help to talk about it.
FYI, my chest x-rays did not show anything and there were no abnormalities in my blood. I was tested for Thyroid, FBC (CBC), ESR etc. My GP has now put me on Gabapentin for the back pain. Maybe he suspects it's neuropathic pain. I don't know. This drug makes me feel like a zombie and I'm still very unwell and in pain. I frequently feel feverish (without having an elevated temperature). I have a very distracting and unusual backache. It almost feels like I have some kind of spinal or central nervous system infection. It's a deep penetrating pain that doesn't feel muscular-skeletal and is sometimes accompanied by bouts of sudden acute fatigue - the kind that makes you feel like you're close to death! I have visual migraines and other sensory symptoms, muscle twitching, inner tremors etc. They are very MS'ish in presentation. But I've had 2 brain/spinal scans in the past 2 years and there was no indication of MS. I should mention that I was DX'ed with an intercranial tumor in my temporal lobe hence the MRI scans. Opinion is split over whether the tumor is responsible. I tend to believe it is. All I've been told is that it's small, not cancerous and it's not growing.
As you can see my case is complicated and preplexing. It's almost like something from an episode of the medical series "House"! Sometime I wish I had a physician like Dr House who could think out of the box. But in real life there's very little continuity in medical cases like mine. In getting shoved from one specialist to another you tend to lose continuity and relevant information gets lost along the way.
It's kind of ironic that my bowel problems which was my original complaint are now secondary to everything else - even though I still do suffer greatly from stomach pains and digestive issues at times. But I can't help thinking that everything is all connected in some way. I absolutely do believe that I have some kind of partial seizure activity due to my brain tumor and I've heard that this can affect bowel function, or so I've heard.
As for the H.Pylori, I now wish that I'd asked the endoscopist to take a sample of my stomach tissue to test if I still have this bug. I wonder if he even bothered to look around my stomach while he had the scope down there, because his report only mentions my pancreas (which was normal). My understanding is that stool and blood tests are not definitive because a positive result may only indicate a previous infection but not necessarily an active one. As I don't want to have another scope down my throat i may have to insist on a breath test to see if it's been eradicated. Even if I do have it, it doesn't explain all my symptoms.
In summary, I'm feeling a little bit better in myself because of the clear xrays and blood tests but then I'm still sick and incapacitated. Other considerations for my back ache are Fybromyalgia. I do have bilateral muscle pains at times. In fact, I developed a lot of musclar pain just before I suffered my DVT. I'm still waiting for my thrombophilia results which will tell me if I have any clotting issues.
I'll let you know how things go. Thanks again.
Dear Medicated,
We look forward to hearing about the results of your tests. I wish to clarify, because from your reply it appeared I may not have communicated my thoughts well enough, but I think it is STILL the H.pylori in your system that is causing your digestive symptoms. Therefore, as I said, they should take another stool sample and draw blood to make sure you don't still have either H.pylori in your intestines or some other bacteria. See, I believe part of the reason you are having all these symptoms is because your guts are still infected. So, I hope you will schedule to have H.pylori re-tested to make sure it's gone, and also to look for any other digestive issue that has gone undiagnosed (other than that IBS jazz). I think if you can get your digestion straight, you will recover most of your decline in health very quickly.
GG
Thanks for your advice. I've been screened for Celiac already. I'm trying very hard not think the worst. We'll see where this thing takes me!
I did admit myself to ER a couple of weeks after my blood clot first presented because I was having similar symptoms. Unfortunately, the triage nurse was a complete bitc* who chided me for using the ER rather than seeing my GP. The ER doctors debated giving me a scan but thought the risk of exposing me to CT was "unwarranted". When I later visited my GP he mentioned that my hospital report said I was "bordering on hypochondria". I just don't want to be offended like that again! There's only a few days before my x-ray and bloodwork comes back so I'll brave it out for now. If there's no conclusion then I probably will go back to ER and try to be more assertive.
Thanks for your input.
I appreciate your support. I did have 3 months Warfarin therapy which is the standard protocol for treating DVTs. They then took me off the drug and waited 4 weeks before giving me another blood test to investigate any underlying clotting issues. I haven't had these results back yet. The thing I'm dreading the most now is the result of my chest x-ray which should be due back this week. Your right about being me worn out. I seem to be in a spiral of bad health and it's affecting me terribly. Thanks again and be well.
Thank you for your postitive response. I don't know how I'm going to react to whatever it is I'm facing but it's a bit difficult to develop a positive attitude at short notice. I know my attitude is totally wrong. Hopefully a merciful God will be forgiving of our frailties.
I don't know how the medical system works in the UK, but you have ERs. Go use one - NOW! Yeesh! A heck of a lot more affective than killing yourself, and, I'm not at all going with lung cancer. Are you a doctor or have you been googling your symtoms for months now? I'm guessing the later.
Sure, your doctor is an idiot. No kidding - like doctors can't come in that form, too? More than one doctor? Right? Get yourself to the ER and don't let them dismiss you until you find out what's wrong. And, for crying out loud, have them check your gall bladder! I'm no doctor either, but back pain, pain below the ribs, irregular BMs - those point to that as a possiblity. And, yes, it feels like you're dying, but you aren't - unless the gall bladder does die and goes gangrene.
There was a reason you posted this on an gastroenterology forum - even you aren't completely convinced it's lung cancer, the original symptoms are related to the intestinal tract, and you still want to live. So do something about it. Get your butt to the ER and don't leave until they figure out what's wrong. You could actually be fine by February, if you but do that.
I am sorry you are getting such a run around. It is amazing how much we need to advocate for our own health care these days. Don't give up just yet. I would really encourage you to ask for blood tests for celiac. Gluten issues can cause many of your issues. If you change your diet to gluten free before testing the tests will not work though. Also, gallbladder/pancreas issues can result from a gallbladder not operating or bile duct issues. A HIDA scan can tell if that is the case. I do hope you can get some answers soon. Try not to think the worse.
Wow, what an amazing story, you poor thing. I have heard of intestinal tract problems causing DVT, the clot you have in your leg. The chest X-ray may have been to look and see if some of the clot broke off and went into your lung.
But first thing i thought of was, they didn't get rid of the H. pylori. So, your current doc needs to do a stool sample to make sure you don't still have that, because lots of times it takes a whole new round of new antibiotics to get rid of it, it can be stubborn and resistant to some antibiotics. Also, your doc should be giving you a medicine for that blood clot in your leg. In addition, they should look for cancer in two ways: Do a CAT scan of your body (not just the chest, not just the abdomen, the WHOLE body) and do a blood test to look for cancer cells in the blood, then they do more involved labwork to figure out where it's coming from. Finally, the chest X-ray will find if a clot has gone up in there, in case that's how come your chest hurts.
I personally think, from my own experience of being unbelievably sick from a car accident, that since you've had diarrhea and weight loss and yellow stool, this means that your body has run into the ditch. You are wore slam out. You are not getting your nutrients and this is making you feel really down and ruined. So, I can tell you that if they can get your digestive issues straight (the H. pylori or whatever bacteria or anything in your guts), then maybe you can get some benefit from what you eat, and that will help you feel more like yourself. I was on a medicine that gave me diarrhea a dozen times a day for SIX MONTHS, nobody knew what was wrong, and I thought I was gonna die. I was actually getting my papers and money in order just in case. Which reminds me, review side effects of medicines you were on when you got this diarrhea.
Anyhow, I just wanted to give you a little support, a possible first-choice solution to what is going on with you. I personally think they ought to put you in the hospital and give you some I.V. fluids and I.V. nutrients and I.V. antibiotics and do all the tests necessary to RID YOU OF whatever is making you sick. Hope this helps a little. Oh, and put the phone number for the Crisis Intervention Center by your telephone, and next time you feel like doing away with yourself, just give them a ring; that's all they do is talk to folks who feel sick like you do. See, the worst thing about being sick is nobody listens.
hi, stop for just a second, if you think taking your own life is the same as dying naturally or by disease, your wrong, the destination of those who commit suicide is forever torment, anyway leave that aside, lets look at ways of easing your current dilema, everything your describing happened to me including weird nerve sensations pins needles sharp chest pains lower back pain kidney infections, pale face fatigue just to name a few, i also thought of the worst possible scenarios inclding lung cancer, after years of suffering symptoms and being accused of lying and being a hypochondriac, going through countless tests, stds, gluten, sciatica, liver scans, you name it, one test no-one ever mentioned to me was lactose-intolerance, once i was diagnosed and took the correct action, all of the symptoms went away, p.s. everytime i read about a certain disease, id say ive got this and that and stress about, but no more, only you and your body can heal together, reverse psychology is the cure, no disease can overcome the combined strengh of body and soul. goodluck friend.