Please Help, Chronic Bleeding, Trouble Breathing!!!!

[ill13632]

Thanks very much for your help!  Please help me I've been having bleeding for over 10 years with bowel movements and had a colonoscopy but the GI said I don't have Crohn's/UC and have hemmarhoids/GERD.  I've used HC 25mg suppositories but I keep bleeding every month or two (bright or sometimes darker red blood) and have trouble breathing, relaxing which improves after prednisone/HC.

[kev543]

have u stoped the dairy products? let us know if that helps. if it is intolorence then it might help the bleeding too.

[ill13632]

I think I have a milk allergy which might be causing my breathing problems

[ill13632]

anyway I'm adjusting to no prednisone- thanks very much these pulmonologists are kind of really unconcerned about my health- it is taking forever for me to get a BIPAP machine even though they could have ordered it months ago
anyway I took the HC suppositories and it helped a little but then the bleeding returned and you can't be on them long term I don't think

[ill13632]

the pulmonologist did for 1 month after I took the HC at 25-50mg a day for 10 days

[patient915]

I would recommend asking your doctor if they took general biopsies of the intestine to specifically look for crohn's disease.  What doctor perscribed you the prednisone?

[ill13632]

I don't remember- the GI said something about testing for H pylori so I think they may have

[patient915]

But did they take general biopsies?

[ill13632]

the first colonoscopy I had I had polyps removed some of which were neurofibromas

[patient915]

Yes, but sometimes the doctors don't take biopsies and then crohn's can be easily missed.

[kev543]

maybe u should go get another opinion.

[kev543]

From my understanding ill 3632 said that the GI doc confirmed no chrones. All they found was Gerd Hemmeroids and asthma.@ill is your asthma extreme or life threatning?

[ill13632]

I don't know I have sleep apnea and have no energy during the day, always falling asleep can't work long

[ill13632]

thanks a lot- yeah I've been on the HC and then prednisone for 25 days now- I still have bleeding I think from the hemmarhoids

[patient915]

There is a very very small chance of having Crohn's with negative scopes, but this would be very rare.  Did they take biopsies?  If you don't have a confirmed diagnosis of crohn's, I would recommend going off the prednisone.

[ill13632]

thanks very much
prednisone helps me relax and breathe better- but could I have Crohn's with negative endoscopy and colonoscopy?  I've had cramping before

[patient915]

I'm going to respond to the prednisone question quoting from wikipedia.  Prenisone is often used in treating life-treatening diseases:

Prednisone can be used in autoimmune diseases, inflammatory diseases (such as severe asthma, severe allergies, juvenile dermatomyositis, angioedema episodes, severe urushiol-induced contact dermatitis, systemic lupus erythematosus, ulcerative colitis, rheumatoid arthritis, psoriatic arthritis, Still's disease, Bell's palsy, idiopathic thrombocytopenic purpura, Crohn's disease, pemphigus and sarcoidosis), uveitis, various kidney diseases including nephrotic syndrome, and to prevent and treat rejection in organ transplantation. It can also be used to treat autoimmune pancreatitis.

Prednisone is used as an antitumor drug. Prednisone is very important in the treatment of acute lymphoblastic leukemia, Non-Hodgkin lymphomas, Hodgkin's lymphoma, multiple myeloma and other hormone-sensitive tumors, in combination with other anticancer drugs.

Intravenous application may be employed for cerebral inflammation, as in the periodic attacks caused by multiple sclerosis.

Prednisone is also used for the treatment of the Herxheimer reaction, which is common during the treatment of syphilis, and to delay the onset of symptoms of Duchenne muscular dystrophy.

Yes it has a lot of side effects, but it has also saves many many lives.

[ill13632]

sometimes after using the HC suppository I feel irritation and pain- what could be causing the breathing problems?  I use the inhalers every day and don't smoke

[ill13632]

Can I have Crohn's disease even with negative colonoscopy?  I am still having the breathing/relaxing problems that gets better with 5mg of prednisone

[ill13632]

I used to have a milk allergy when I was young but I thought I outgrew it

[ill13632]

does HC also have the same aging and negative effects on organs and the body?  I feel like I should continue for the HC suppositories for another day even though I've been on HC/prednisone for about 22 days now since I'm still bleeding a lot

[ill13632]

which blood tests/allergy tests can I have done please?

[kev543]

just google( can food intolorence cause breathing problems) you will learn more about it. i hope this helps you.

[kev543]

that is a very good question. you would have to figure that one out by doing a process of elimination diet. Start with dairy products if you like and do not eat them for several weeks. then if that doesnt do it, move to something else. or if there is something that you eat or drink with just about every meal, try eliminating that. i've read they have an in home blood test for food intolorence that is practiced in the UK but i dont think the state have it. you can google it though. if it is a common perservative then you will have to eat organic foods and stay away from fast foods and caned foods.

[ill13632]

I have asthma and use symbicort/proventil and singulair- I have trouble breathing and relaxing sometimes
what preservative/foods could I have allergies to?