My daughter was in the hosp for 8 days as it took 5 days to pinpoint her pain as all her tests were normal .. many ultrasounds the past 2 yrs, bloodwork, etc., etc. until she got so sick this go-around that she passed out and was admitted to the ER to r/o appendix.
Her appendix could not be seen on the CT Scan bcz of thickening of the Ilieum wall!!! After a team of GI specialists, Surgeons, Peds and Cardio's kept assessing and doing tests they did a HIDA scan which revealed only 5% function of gallbladder (no stones!). She was having a severe gallbladder attack for 5 days in the hospital which they didn't want to maks with meds bcz of inability to r/o appendix!
Bottom line is that she is slowly getting better and all her pre op symptoms are gone!!!! No more severe nausea which led to dehydration, no more pain, etc. Her gallbladder was distended and full of bile when they took it out and the tubes were only 3.0mm in stead of 6mm thick and were wayy too long and probably like that from birth. The inside showed signs of inflammatory changes as we await patholgoy report.
She had Billiary Dyskensia (?sp) at the age of 16 and now has an answer. No more reflux .. Prevacid only masked the true cause it now looks like.
She will continue to be followed by Ped GI's to r/o Crohn's, IBD and EEO bcz of arthritis history, severe allergy to nuts, plums and latex, etc. and the inflammation of the intestines but the scope while inside for gallbladder removal showed normal, healthy intestines by vision so we await our upcoming f/u appt with Pedi GI on Feb 11th to assess her symptoms and see if any endo or colonoscopy are in line or not at that time .... they tested stools @ hosptial as a repeat lab as in Aug they were all negative.
They know now the gallbladder made her so sick and only 5% attributed to the GI symptoms.
Any thoughts, advice, etc. Anybody else out there have both these things going on and undiagnosed properly for 2yrs and brushed off as "probably IBS" and stress .. my poor dd has missed so much school with mini episodes that went away in 1.5days but this one took hold and took the cake YEAH!!!!!!!!
I am a long time member of the Thyroid board and I have GALLSTONES and next attack out mine comes ..... they think it is hereditary and I crinched when they asked my history as mine should have been removed 9 yrs ago when I threw a stone during a C-Section delivery and they said they couldn't go back in so soon and I played the diet game since then and have been no symptoms for 2 yrs but next time OUT IT COMES and my dd will be MY ADVOCATE LOL!
Cheryl (gallstones, kidney stones, thyroid cancer '07 very small, encapsulated, melanoma gone .. early, stage 1 '07)