There have been postings on Medhelp whereby a total colectomy has been suggested as a treatment of last resort for chronic constipation.
I underwent a total colectomy about six years ago - not for chronic constipation but for torrential diverticular bleeding. In response to another Medhelp patient's question I recorded my experience on Medhelp as follows:-
http://www.medhelp.org/posts/show/523166
Perhaps you would like to have a look at this and do come back if you have any further questions. It may well be that in your case the operation can be performed laparascopically with less trauma than the "surgeon's hands inside the abdomen" method. In fact it may be an idea to print off my summary and show it to your surgeon at the Mayo and ask whether he/she would predict a similar outcome for you.
regards
Morecambe
I should have thought of this, have you seen an Endocrinologist? Check out the link below. Our endocrine system impacts every major organ in our bodies, and if anythig is out of whack, it has a domino effect. I have hypothyroidism and suffered from contipation due to it being slow.
http://www.ddc.musc.edu/public/problems/diseases/colon/colonicinertia.cfm
This makes me so angry, that they would even say you would have a bag! If by chance you ever need to have your colon removed, you will not have to have a bag, you can have a J-Pouch which means they remove your colon, attach your small intestine to it and your small intestine acts as your colon. My son has this. You are wise to keep getting others opinions on this. MD Anderson in Texas is world renowned for their works with this, so if the Mayo can't help, try them. However, the Mayo Clinic is excellent and I'm happy to see you going there. Have you tried probiotics? Miralax is more of a stool softener, which I don't feel you need. I would experiment with different laxatives until you see the doctor. I feel so bad for you, you have got to be so frustrated with all this! Don't listen to your Gi doctor about this, she is soooo wrong. My son had to have his colon removed at 12, and is a healthy 39 year old today. He is an ultrathoner, marathoner, mountain biker, avid hiker that puts him in the mountains for weeks at a time, and he also competes in jujitzu. My oldest son had his colon removed at 16, we lost him at 32, and my grandson had his colon removed at 10, just lost him at 18. Nothing to do with not having a colon, but to other issues with the FAP. We have FAP in our family, which is no way related to what you have. I just wanted to show you that you won't have a bag, and your life would continue. Please keep me posted on your jouney with this, and if I can find any resources for you, I will PM them to you. Good luck and do take care....
Are you a smoker? What does your diet consist of?