I'm mother of 7 (10 and under, yes all mine and my husbands ;) ). 33 years old.
I have 2 stones in my pancreas.
4 years ago they misdiagnosed as a 2 cm Kidney stone.
2 years ago, they said it was a 4 cm pancreatic stone (or close to it)
5 months ago, they FINALLY took my word and did a amylase/liapase and it the amylase was up 10x normal level.
Scans said a 8 cm stone.
Now we are going down to Mayo Clinic.
2 months ago, EUS said 2 stones almost stuck together 6 cm in front in the head/neck region of pancreas.
After 1 hr. 45 min. ERCP they couldn't retrieve the stones they said I have an alpha loop type duct.
They said if I'm still in pain remove part of the pancreas, but, they hope to wait until the duct gets to 6 cm (currently at 3cm), then they will rework the duct work or something (I assume Puestow). I get rechecked in February.
They said it was so rare for this, that they dont have a clear idea of what they should do. I'm freaking out! Always healthy up to this point. :(