i am 30 year old female , was mis diagnosed by mat su regional ER for 9 years, they were terrible. Finally by chance i saw a surgon and he was the only one in alaska that had ever even seen a case of mas up close. thank god for hime or i wouldnt be alive.... things went great for ten months and then started having upper abdominal pain, expanding pain , feels like i cant breathe. same sort of pain but not the constant vomitting. but could the pain mean that the defect is comming back.. please help- alaska
I have SMA syndrome and I know that nothing else can recreate its horror. If you are feeling the same *exact* pains, chances are, it is related and not something else. Take a look at this article - http://www.wjgnet.com/1007-9327/14/303.pdf . It was published in the World Journal of Gastroenterology two weeks before I had a duodenojejunostomy in 2008. It answers the question: Why can SMAS patients still experience similar pain and symptoms even after surgery, if the constriction is bypassed or eliminated? The article states: “The main character of SMAS is that the reversed peristalsis is greater than the direct peristalsis, which is the most important reason inducing the symptoms. . . Only releasing from obstruction by operation cannot alleviate clinical symptoms because the strong reversed peristalsis still exists." Basically, during the illness, the intestines learn to accommodate the constriction by pumping backward. After surgery, when the constriction is bypassed, the enteric nervous system doesn't instantly 'forget' to stop doing this. And it is this reversed peristalsis that causes the pain.
This may not be what's happening to you, but it's a thought. What kind of surgery did you have? Now there are lots of options for SMAS. (See the "Treatment" section here for a complete list of them all: http://wikipedia.org/wiki/SMA_syndrome ). If you had a gastro- or duodenojejunostomy, sometimes the surgical anastamosis can accidentally twist or kink up over time, which means SMAS symptoms would recur if you were still relying on the bypass (if the constriction is still there).
Hope this helps :)
It's very unusual for the situation to happen again. And many of the symptoms that are seen with SMA syndrome can be duplicated with other GI issues. But the best thing to do is to call your doc and get some testing done to find out what is going on.