Tested for Celiac?
I get food allergy tests done to make sure you dont have any. Do a comprehensive stool study to check for parasites and yeast overgrowth. Though the white tongue is almost for sure a yeast overgrowth.
If you do not take probiotics, you should be, at least 15 billion cultures, probably more.
Hydrogen breath test would be good to, check for bacterial overgrowth.
Look around for a clinic that specializes with digestive disorders. To be honest, it really sounds like you havent seen a doctor that can help you. truth is, most GI specialist dont know anything. If its not celiac, crohns, or colitis, they just say you have IBS and send you on your way.
Another thought is to see if there is a holistic doctor in your area and see them. They tend to look past the confines of western medicine.
I'd also suggest going on a FODMAP diet. Its not easy to follow, but it should help with your symptoms for sure.
Celiac test was negative (doc put me on gluten free and fodmap diet anyway). Tongue was scraped for yeast also negative. I eat half a scrambled egg, a banana, yogurt, and rice chex everyday. I'm also on a priobiotic and 2 medical foods: enteragam and ibgard.
Breath test negative too. But I agree they just label it as IBS when they don't know. It also seems like its getting worse, foo I could eat 6 months ago makes me sick now.
Hollistic doctor would be my suggestion. Or even going to one of the big time digestive disorder clinics in new york, chicago, or cleveland.
Yeah, my husband and I are discussing the Mayo clinic. Thanks for your replies!