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What type of doctor should I take him to next? What tests? Any advice?

My teenage son has chronic mesenteric lymphadenitis with severe abdominal pain and nausea, unwanted weight loss, but without constipation or diarrhea.  This has been going on since December 2015; the pain is debilitating such that his life is completely dysfunctional and he can not attend school or perform any daily activities. Thinking he may have chronic appendicitis, his appendix was removed almost 3 months ago;  no relief in symptoms and a biopsy of both the lymph node and the appendix were "normal." He has had numerous blood and fecal tests as well as abdominal and pelvic CT scans and an abdominal US.  An "upper" workup by a pediatric GI specialist revealed nothing. So, a couple of questions:
1. What type of doctor should I take him to next?  GI? Oncologist? Infectious disease? Other? All of the above?  
2. Specifically what tests should be ordered and what diagnoses should be ruled out?  
3. What are the possible diagnoses for this condition?  
4. What else should I have asked?
5. Any advice?
1 Responses
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1530171 tn?1448129593
Your son could be seronegative when testing to detect infectious conditions, causing the mesenteric  lymphadenitis.
Suspect are infectious agents like Pathogenic Mycoplasma and their Co-infections (borrelia, bartonella, babesia, ehrlichia...), which makes them notoriously difficult to detect by blood tests.
They hide deep  in the tissues, evading both detection
and the effects of antibiotics.
Also  having the ability to envelope themselves in cellular membrane from the host's own cells, the even evade the immune system!
For this you would have to contact an LLMD and the testing to be done by IGeneX Labs.
Oh, could you detail ALL his symptoms?
And do you have a cat in your house?
But first you need to ensure that the most common cause, Yersinia, has been 100% ruled out!

For relief, your son can try some demulcent herbs, which soothe and protect inflamed internal tissues, like aloe vera, slippery elm, licorice, etc.

Until you get all this sorted, having your son on an SCD
protocol, may prove beneficial.
It is definitely worth looking into it.
My daughter following a case of salmonella, suffered similar symptoms to your son and after doing the medical merry-go-round for a couple years without a firm diagnosis, decided to do the SCD program(a modified version) and that eventually gave her back her...life!
Not 100%, but at least she's leading a functional life, finished College & University and is now a Holistic
Health Practitioner and Yoga instructor.

Please let me know what you think and also post your answers, when you have a chance.
Best wishes,
Niko

Helpful - 0
2 Comments
Thank you! All his symptoms... there are two pages of them!  Where to start?  The biggest thing is endless exhaustion, brain fog, continuous nausea, and extreme abdominal pain, presumably from the mesenteric lymphadenitis. He has been gluten free, egg free and dairy free for almost a year. I will check out the SCD diet. Thank you. This is all so overwhelming.
Thanks for the LLMD heads up.  I didn't know there was such a thing.  I am looking for a provider.
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