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Why The Stonewalling/Wait For Bile Issues??
I am a 51 year old male, 6' 1", usually about 185 lbs. I have lost ten pounds in the last three days, liver enzymes all elevated, many 2-3 times normal, Alk. Phosph. elevated nearly 4 times normal, and GGTP elevated over 8 times normal. I have pain in the colon with cramping, back pain, and had nausea prior to my ER visit this week.
The bottom line out of all this is that apparently there is sludge and/or stones in the bile ducts. I had my gallbladder removed at the end of April and the liver enzymes crept up starting in June. It is now CHRISTMAS and my medical situation appears to be urgent at this time. The ER doc did NOT order an ultrasound, preferring to tell me that all my labs were normal, a statement contradicted by reading same which ironically were copied and provided to me before I left the hospital.
However what I am being told by doctors is:"Your liver enzymes are about the same as they were"(in other words, "no problem" and "why are you bothering us on this?"). And it was the same deal with the gallstones that were finally found and resulted in classic pain symptoms back in January--which took four months to finally get to the point where a positive ultrasound for stones indicated the need for urgent surgery at that time, the first ultrasound being negative. My question may not seem all that important since it is not focused on the medical, because it certainly seems as if the proper next step is to undergo ERCP, but there is an obvious issue of how to survive until that is scheduled due to my inability to eat without making my symptoms so worse that eating really does not seem to be a good option right now.
My question simply is this: WHY does it seem that institutionally, when presented with gallstones or stones or sludge in the bile ducts, that the medical profession is so RIDICULOUSLY SLOW in responding to these issues?? And a corrollary to that is:WHY are Gastroenterologists seemingly trained to focus on tests that have little or nothing to do with the immediate problems here such as colonoscopy and upper endoscopy, when each of those will certainly miss the mark on the immediate issue?
Thank you.
The bottom line out of all this is that apparently there is sludge and/or stones in the bile ducts. I had my gallbladder removed at the end of April and the liver enzymes crept up starting in June. It is now CHRISTMAS and my medical situation appears to be urgent at this time. The ER doc did NOT order an ultrasound, preferring to tell me that all my labs were normal, a statement contradicted by reading same which ironically were copied and provided to me before I left the hospital.
However what I am being told by doctors is:"Your liver enzymes are about the same as they were"(in other words, "no problem" and "why are you bothering us on this?"). And it was the same deal with the gallstones that were finally found and resulted in classic pain symptoms back in January--which took four months to finally get to the point where a positive ultrasound for stones indicated the need for urgent surgery at that time, the first ultrasound being negative. My question may not seem all that important since it is not focused on the medical, because it certainly seems as if the proper next step is to undergo ERCP, but there is an obvious issue of how to survive until that is scheduled due to my inability to eat without making my symptoms so worse that eating really does not seem to be a good option right now.
My question simply is this: WHY does it seem that institutionally, when presented with gallstones or stones or sludge in the bile ducts, that the medical profession is so RIDICULOUSLY SLOW in responding to these issues?? And a corrollary to that is:WHY are Gastroenterologists seemingly trained to focus on tests that have little or nothing to do with the immediate problems here such as colonoscopy and upper endoscopy, when each of those will certainly miss the mark on the immediate issue?
Thank you.
Hey Jeff:
It doesn't wrap it up. You're no quiter. In fact, I'm even odds you're a scrapper. Why should this be any different? You have survived more in one pinky what most have in two lifetimes and you are still standing. Isn't it possible that there are a host of surprises waiting for you here? Humans ARE incredible in both their capacity for doing good and their propensity for evil. You think we're so different but we might have a lot more in common than you think. Fighting the past is an uphill battle. It can't cause us physical harm and yet its damage compounds daily. I KNOW you believe in God. Why do you think I answered your post? Why do you think you posted when you did? Why do you think you decided to trust me enough to share such personal insights and crappy news with? Most people don't have time for the pain of others because they have enough of their own. It doesn't make them weak, it just makes them human. Guess what? We're not most people. We have a unique opportunity to help others with the knowledge we have. To ignore that is a tragic waste.
You are a good man with a good heart and a crappy attitude. I like you. You're honest and forthright and you are worth so much more to me than a boatload of yes-men, soothsayers or Sunday-morning Christians. That doesn't mean you couldn't be a little nicer but, hey, I don't want you to strain yourself. [Insert laugh here!]
Hang in there, Jeff! Reach out whenever you need someone and I promise you, if I'm physically able, I'll be there for you.
You're right. This is a great site. There's always something to be said for incentives that are by the people and for the people.
All the best,
Sam
It doesn't wrap it up. You're no quiter. In fact, I'm even odds you're a scrapper. Why should this be any different? You have survived more in one pinky what most have in two lifetimes and you are still standing. Isn't it possible that there are a host of surprises waiting for you here? Humans ARE incredible in both their capacity for doing good and their propensity for evil. You think we're so different but we might have a lot more in common than you think. Fighting the past is an uphill battle. It can't cause us physical harm and yet its damage compounds daily. I KNOW you believe in God. Why do you think I answered your post? Why do you think you posted when you did? Why do you think you decided to trust me enough to share such personal insights and crappy news with? Most people don't have time for the pain of others because they have enough of their own. It doesn't make them weak, it just makes them human. Guess what? We're not most people. We have a unique opportunity to help others with the knowledge we have. To ignore that is a tragic waste.
You are a good man with a good heart and a crappy attitude. I like you. You're honest and forthright and you are worth so much more to me than a boatload of yes-men, soothsayers or Sunday-morning Christians. That doesn't mean you couldn't be a little nicer but, hey, I don't want you to strain yourself. [Insert laugh here!]
Hang in there, Jeff! Reach out whenever you need someone and I promise you, if I'm physically able, I'll be there for you.
You're right. This is a great site. There's always something to be said for incentives that are by the people and for the people.
All the best,
Sam
Well it seems we live in two different worlds;there is no such thing as a palliative care center in the United SwissBank of America!!!
Well so reallynow....but anyway I'd love to live in Canada and all that nevertheless thanks so much for your support. I do think it's the same thing for all Celiacs, at least after JFK, the man my father personally nominated for President in 1960 and a stone cold diehard Irish Celiac for certain whose main lifeline in life was named Corticosteroids, ie, the drugs we love to bash due to performance enhancing effects used by pro baseball players and so forth.
And for CalGal, ohyeah, been following the diet and strictly since 2002. That was age 45 so for 45 years I was doing damage and was as ignorant as the rest of the physicians who are trained in ignorance. Not that anything ever really beat the band worse than five weeks on a locked adult mental ward at age 11 then banishment from my school. That was certainly the most notable thing before age 45. It ruined my life, no job, no wife, no kids, no life. I guess that means lifelong retirement but I would have given anything to have anything better. And I mean anything. So it ain't just the disease that *****, it's all that Robin Williams might find less than clown material.......
Welp that about wraps it up, sliding down the steep backside of the mountain I remain yours truly.....one of the first supporters of this website and if ya don't believe me ask Pastor Kevin Schmidt who sent me a nice letter and I mean my donation was nothing but hey I think I got more from his kind thanks than I have from my local congregation over 21 years of faithful service thereto.......human beings ARE incredible!!
Well so reallynow....but anyway I'd love to live in Canada and all that nevertheless thanks so much for your support. I do think it's the same thing for all Celiacs, at least after JFK, the man my father personally nominated for President in 1960 and a stone cold diehard Irish Celiac for certain whose main lifeline in life was named Corticosteroids, ie, the drugs we love to bash due to performance enhancing effects used by pro baseball players and so forth.
And for CalGal, ohyeah, been following the diet and strictly since 2002. That was age 45 so for 45 years I was doing damage and was as ignorant as the rest of the physicians who are trained in ignorance. Not that anything ever really beat the band worse than five weeks on a locked adult mental ward at age 11 then banishment from my school. That was certainly the most notable thing before age 45. It ruined my life, no job, no wife, no kids, no life. I guess that means lifelong retirement but I would have given anything to have anything better. And I mean anything. So it ain't just the disease that *****, it's all that Robin Williams might find less than clown material.......
Welp that about wraps it up, sliding down the steep backside of the mountain I remain yours truly.....one of the first supporters of this website and if ya don't believe me ask Pastor Kevin Schmidt who sent me a nice letter and I mean my donation was nothing but hey I think I got more from his kind thanks than I have from my local congregation over 21 years of faithful service thereto.......human beings ARE incredible!!
Hi Jeff:
I'm so sorry. I'm so sorry they haven't done something for you sooner. If you need someone to talk to or yell at, I'm happy to be your ear or your punching bag, whichever you need. I've been getting the same runaround garbage you had and I'm terrified, too. I'm finally seeing a GI next month and I hope he can give me some answers or at least investigate the issues. If you need a friend, I'll be here for you. All you have to do is email. By the way, if they recommend a palliative care center, GO and try to be nice! Not everyone in the world is out to get you. Some of us are on YOUR side! God bless and Godspeed, Jeff! All the best,
Sam
I'm so sorry. I'm so sorry they haven't done something for you sooner. If you need someone to talk to or yell at, I'm happy to be your ear or your punching bag, whichever you need. I've been getting the same runaround garbage you had and I'm terrified, too. I'm finally seeing a GI next month and I hope he can give me some answers or at least investigate the issues. If you need a friend, I'll be here for you. All you have to do is email. By the way, if they recommend a palliative care center, GO and try to be nice! Not everyone in the world is out to get you. Some of us are on YOUR side! God bless and Godspeed, Jeff! All the best,
Sam
Endrun, I haven't been following this thread, but I'm wondering if you're now following a celiac diet? I know from what I'm reading that there's a lot more going on, but hopefully following the diet might help a little bit.
I went in and had the second liver biopsy attempt, this one successful. It did not show any localized deterioration meaning the deterioration was in another part of the liver and they all feel since I developed confirmed ulceractive colitis that indeed I have primary sclerosing cholangitis and they will wait and see how quickly that deteriorates me before placing me on the liver transplant list(don't ASK me exactly how this works but like everything else it is all unfair).
I am on Mesalamine for the UC and Ursadiol to try to keep the bile ducts clear but the bottom line to it all is I will die eventually and I believe that is within about 8 or nine years. The summary reads: ""Another case of Celiac Sprue we the medical profession royally screwed up by the combo of our arrogance and ignorance."
I am left to wonder if I had gotten on daily cotricosteroids as a younger man would my prognosis be any better....I believe the answer is yes....so there ya go.
I am on Mesalamine for the UC and Ursadiol to try to keep the bile ducts clear but the bottom line to it all is I will die eventually and I believe that is within about 8 or nine years. The summary reads: ""Another case of Celiac Sprue we the medical profession royally screwed up by the combo of our arrogance and ignorance."
I am left to wonder if I had gotten on daily cotricosteroids as a younger man would my prognosis be any better....I believe the answer is yes....so there ya go.
Hi Jeff:
I'm so sorry you are still suffering and I'm SO sorry you are still fighting the system. It seems insane to me that there is so much beaurocracy in the medical system. You obviously need a second liver biopsy after the first one failed. Could you call the GI Doc at Westchester Medical and tell him you are getting the runaround and ask him to schedule a EGD, liver ulstrasound and a liver biopsy or is that where you had the last one? If you feel up to it, let me know how you make out on Thursday? Hang in there, Jeff! You must be incredibly anxious and frustrated. You remain in my thoughts and prayers every day. All the best,
Sam
I'm so sorry you are still suffering and I'm SO sorry you are still fighting the system. It seems insane to me that there is so much beaurocracy in the medical system. You obviously need a second liver biopsy after the first one failed. Could you call the GI Doc at Westchester Medical and tell him you are getting the runaround and ask him to schedule a EGD, liver ulstrasound and a liver biopsy or is that where you had the last one? If you feel up to it, let me know how you make out on Thursday? Hang in there, Jeff! You must be incredibly anxious and frustrated. You remain in my thoughts and prayers every day. All the best,
Sam
Well here it is about ten months since the cholangitis, liver enzymes are still through the friggin roof--which is a description a doctor gave me---and they haven't done a liver biopsy yet. I vomited bile a little over a month ago so obviously there is still an issue with the bile ducts.
This G.I. Doc at Westchester Medical said get an upper endoscopy, get a liver ulstrasound and get a liver biopsy. Scheduling anything is a nightmare, which you can't do while you're there it seems because everything has to go through someone at the other end of a phone line. Then when I faxed two urgent messages to please schedule a liver biopsy after getting the ultrasound of the liver and upper endoscopy, I got a phone call and was told "doctor so-and-so feels you don't need a liver biopsy." Who is this doctor so-and-so and what's the deal here?
What a Goddamnable runaround. But I see the G.I. doc at this week's Thursday afternoon clinic. I suppose I will get an actual direction on where to go now from that, but they lay on their ******* hands with scheduling anything regardless of whether they can get their heads made up of what they want to have done.
**** THIS **** and God forgive me for my French.
This G.I. Doc at Westchester Medical said get an upper endoscopy, get a liver ulstrasound and get a liver biopsy. Scheduling anything is a nightmare, which you can't do while you're there it seems because everything has to go through someone at the other end of a phone line. Then when I faxed two urgent messages to please schedule a liver biopsy after getting the ultrasound of the liver and upper endoscopy, I got a phone call and was told "doctor so-and-so feels you don't need a liver biopsy." Who is this doctor so-and-so and what's the deal here?
What a Goddamnable runaround. But I see the G.I. doc at this week's Thursday afternoon clinic. I suppose I will get an actual direction on where to go now from that, but they lay on their ******* hands with scheduling anything regardless of whether they can get their heads made up of what they want to have done.
**** THIS **** and God forgive me for my French.
I had a liver biopsy but it was only a so-called liver biopsy--the INTERN who performed this got ZERO LIVER TISSUE!!! NONE AT ALL!! So that was a TOTALLY WORTHLESS ADVENTURE!!! How do ya like THEM APPLES? It just NEVER SEEMS TO END...
So I remain in diagnostic limbo, or a black hole is a better description. I have to get rid of these people, they are obviously not able to run a medical office and not able to perform what is needed properly. I am going into New York City's Columbia-Presbyterian Hospital before this negligience leaves me DEAD DEAD DEAD.
So far my weight is holding steady after the initial JOLT of losing 17 pounds POOF.
"The liver disease diet--better/more effective/easier than Atkins, The Zone,Jenny Craig, or Marie Osmond!!! Wooohoo!!" However do I feel weighed down by this sickness in every way possible? Oh yeah...and the incompetence of the people handling this doesn't make it any easier...if I'd had a fairly good life facing the end wouldn't be quite so hard, but I've had a rotten life with Celiac undiagnosed for 45 years and my family felt I was worthless and the whole nine yards, became poor and remained that way, could never climb out, well here we have a recession, who the hell cares anyway, the bankers of this world can all drop dead, I don't give a hoot anymore, the greed ruined my life in more ways than one, btw, if anyone tells you the USA has a functioning Constitution, forget about it, they took my car and the courts dissed me over four long years of the case by some Bush appointee Vietnam Vet Nutjob, who the helll cares about anything....
Jeff
So I remain in diagnostic limbo, or a black hole is a better description. I have to get rid of these people, they are obviously not able to run a medical office and not able to perform what is needed properly. I am going into New York City's Columbia-Presbyterian Hospital before this negligience leaves me DEAD DEAD DEAD.
So far my weight is holding steady after the initial JOLT of losing 17 pounds POOF.
"The liver disease diet--better/more effective/easier than Atkins, The Zone,Jenny Craig, or Marie Osmond!!! Wooohoo!!" However do I feel weighed down by this sickness in every way possible? Oh yeah...and the incompetence of the people handling this doesn't make it any easier...if I'd had a fairly good life facing the end wouldn't be quite so hard, but I've had a rotten life with Celiac undiagnosed for 45 years and my family felt I was worthless and the whole nine yards, became poor and remained that way, could never climb out, well here we have a recession, who the hell cares anyway, the bankers of this world can all drop dead, I don't give a hoot anymore, the greed ruined my life in more ways than one, btw, if anyone tells you the USA has a functioning Constitution, forget about it, they took my car and the courts dissed me over four long years of the case by some Bush appointee Vietnam Vet Nutjob, who the helll cares about anything....
Jeff
Just a quick note to see how you? Has anything changed with your symptoms? How are you managing?
You're still in my thoughts and prayers!
Good luck and Godspeed,
Sam
You're still in my thoughts and prayers!
Good luck and Godspeed,
Sam
Hi endrun:
I'm really happy to hear from you. There are more than one GI out there and anyone who yells at you for any reason when they are in hospital should be ashamed of themselves...and censured.
Perhaps you could ask the surgeon who does your liver biopsy if s/he can recommend a good GI. If you want to tell me what area you live in (just city and state), I'm happy to do some research for you.
Good luck with the biopsy and please let me know how you make out?
Hang in there. I know it's a lot **** to deal with and I'm so sorry you are suffering but you do need answers to get yourself healthy.
You're in my thoughts and prayers!
Good luck and Godspeed,
Sam
I'm really happy to hear from you. There are more than one GI out there and anyone who yells at you for any reason when they are in hospital should be ashamed of themselves...and censured.
Perhaps you could ask the surgeon who does your liver biopsy if s/he can recommend a good GI. If you want to tell me what area you live in (just city and state), I'm happy to do some research for you.
Good luck with the biopsy and please let me know how you make out?
Hang in there. I know it's a lot **** to deal with and I'm so sorry you are suffering but you do need answers to get yourself healthy.
You're in my thoughts and prayers!
Good luck and Godspeed,
Sam
It's nice to hear you have something for nausea and pain that is effective. I went back to the ER and got morphine via IV and in pill form. However that causes nausea, so what happens is that with that you trade pain for nausea, perhaps an improvement in the bargain but not the best bargain there is.
I continue to have abdominal pain such as it feels as if someone punched me as hard as they could. It is a colicky pain in the abdomen which doctors become frustrated over because it is not localized to one area or another. I am sorry, I just report what it feels like.
I was dismissed from the practice of a local gastroenterologist because in the hospital I refused his services to do invasive testing after he yelled at me over the phone accusing me of being an uncooperative patient. I mean come on. Well now I have to counter that with the fact that in the event something is going on in my colon and he dismisses me, I then have no local Gastro and during the winter this presents a challenge to travel elsewhere for care.
I do have a liver biopsy scheduled for the end of this week which should provide some answers at least, weather permitting those will be had relatively soon, however let me tell you...a whole bunch of nonsense and **** thus far.
I continue to have abdominal pain such as it feels as if someone punched me as hard as they could. It is a colicky pain in the abdomen which doctors become frustrated over because it is not localized to one area or another. I am sorry, I just report what it feels like.
I was dismissed from the practice of a local gastroenterologist because in the hospital I refused his services to do invasive testing after he yelled at me over the phone accusing me of being an uncooperative patient. I mean come on. Well now I have to counter that with the fact that in the event something is going on in my colon and he dismisses me, I then have no local Gastro and during the winter this presents a challenge to travel elsewhere for care.
I do have a liver biopsy scheduled for the end of this week which should provide some answers at least, weather permitting those will be had relatively soon, however let me tell you...a whole bunch of nonsense and **** thus far.
You're right. I'm in Canada where health care is a given...as it should be everywhere in the world. I'm also in Canada where 46% of my income is paid to taxes to support that system.
I'm really sorry to hear that you are still "sick as a dog." I'm also really sorry that you don't have anyone else in your life.
Please hang in there. I'm sure if you reached out to a local church or social agency, you would find that many people care about your wellbeing.
All the best,
Sam
I'm really sorry to hear that you are still "sick as a dog." I'm also really sorry that you don't have anyone else in your life.
Please hang in there. I'm sure if you reached out to a local church or social agency, you would find that many people care about your wellbeing.
All the best,
Sam
Toronto? In other words, Canada--- where the issue ISN'T whether you have money or not. I live in AMERICA, where that IS an issue. I made the mistake of getting acutely ill over the holiday season.
And...my liver enzymes did NOT return to normal. My clinical condition improved enough for them to deny continuing keeping me as an inpatient. That's all. I'm still sick as a dog. I did get a call today, from the Gastro office confirming my colonoscopy on the 8th. The woman didn't have a clue as to what happened. I filled her in. She advised me to call the biopsy people. I did. It may have been after hours or whatever. I may get a call back tomorrow. Gee, all this to go through a test that could tell you what you have but could also provide buchu dangerous complications. Lovely.
Others in my life. Oh yes, the stuffed dog cares--but only because I put a mouth and a tongue on him--something his manufacturer forgot to do. LOL
I will add you to my extensive list of one, which is the stuffed dog. You are in great company-- as HE is great company lemme tellya(pssst...now that he has a tongue and a mouth, he can't stop talking!). Hahaha.
And...my liver enzymes did NOT return to normal. My clinical condition improved enough for them to deny continuing keeping me as an inpatient. That's all. I'm still sick as a dog. I did get a call today, from the Gastro office confirming my colonoscopy on the 8th. The woman didn't have a clue as to what happened. I filled her in. She advised me to call the biopsy people. I did. It may have been after hours or whatever. I may get a call back tomorrow. Gee, all this to go through a test that could tell you what you have but could also provide buchu dangerous complications. Lovely.
Others in my life. Oh yes, the stuffed dog cares--but only because I put a mouth and a tongue on him--something his manufacturer forgot to do. LOL
I will add you to my extensive list of one, which is the stuffed dog. You are in great company-- as HE is great company lemme tellya(pssst...now that he has a tongue and a mouth, he can't stop talking!). Hahaha.
I'm so glad you went into the hospital. I'm sorry it ended badly.
That's really similar to what happened to me the last time. I was admitted and kept on antibiotics and morphine for six days. They kept me in for eight days. When my liver enzymes got back on track, I was released. I'm still in extreme pain and have Oxycontin HCL for that. The nausea is helped by Motilium (Domperidone). I'm waiting for an appointment with the Liver Center in Toronto to see what's next. The hospital was freezing. I waited for tests for days, too.
Who knows, maybe when they send you to a specialist, you'll have someone to advocate on your behalf with other agencies. The fact that we don't have money should not prevent us from obtaining the very best medical care available.
I wish you the best in everything! Hang in there. I care about what happens to you and I'm sure others in your life do, too.
Good luck and Godspeed,
Sam
That's really similar to what happened to me the last time. I was admitted and kept on antibiotics and morphine for six days. They kept me in for eight days. When my liver enzymes got back on track, I was released. I'm still in extreme pain and have Oxycontin HCL for that. The nausea is helped by Motilium (Domperidone). I'm waiting for an appointment with the Liver Center in Toronto to see what's next. The hospital was freezing. I waited for tests for days, too.
Who knows, maybe when they send you to a specialist, you'll have someone to advocate on your behalf with other agencies. The fact that we don't have money should not prevent us from obtaining the very best medical care available.
I wish you the best in everything! Hang in there. I care about what happens to you and I'm sure others in your life do, too.
Good luck and Godspeed,
Sam
I DID go to the hospital, in fact was ADMITTED for a total of 7 1/2 days and thrown out after that because they felt my clinical condition was good enough. Had an MRCP which was NORMAL. ALL LIVER ENZYMES were elevated and was told by the Gastro this was Cholestasis. However...now they want to do a liver biopsy. I have to WAIT to be called for this. I had severe abdominal pain, was on friggin MORPHINE initially, NPO for four days, cholestatic liver enzyme pattern which got worse all the days I was hospitalized except the last day, and now remain IN NO MAN'S LAND. I was told I was released from the hospital due to an insurance issue. Also this hospital's rooms were incredibly COLD in temperature. How can they get away with this ****?? Please...beyond that, they simply KEEP postponing tests and pretty soon....that alone is going to destroy my liver...whether or NOT anything ELSE will!!
I am so sorry to hear that you are suffering. Go to the hospital, please...NOW! You can't keep carrying on with these symptoms and weight loss. Don't worry about assigning blame right now, just get yourself well! I am going through a very similar situation and I absolutely understand. Try to remember that all medical health professionals are not created equal and you may go in today and get someone who is phenomenal.
I belong to a Yahoo! group which deals with Sphincter of Oddi Dysfunction, Pancreatitis and Undiagnosed Symptoms, among other things. Michele V. is an incredibly amazing woman who owns and moderates the forum and she is also a Registered Nurse. Some of the other members are also medical professionals. This forum is full of people who live with our kind of pain and suffering every day. They have personal relevant experience that REALLY helps including information about ERCPs. To learn more about this group, please email Michele at Sphincterofoddi_pancreatitis-***@**** or visit: http://groups.yahoo.com/group/Sphincterofoddi_pancreatitis.
Get on the mend! Good luck and Godspeed.
All the best,
Sam
I belong to a Yahoo! group which deals with Sphincter of Oddi Dysfunction, Pancreatitis and Undiagnosed Symptoms, among other things. Michele V. is an incredibly amazing woman who owns and moderates the forum and she is also a Registered Nurse. Some of the other members are also medical professionals. This forum is full of people who live with our kind of pain and suffering every day. They have personal relevant experience that REALLY helps including information about ERCPs. To learn more about this group, please email Michele at Sphincterofoddi_pancreatitis-***@**** or visit: http://groups.yahoo.com/group/Sphincterofoddi_pancreatitis.
Get on the mend! Good luck and Godspeed.
All the best,
Sam
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