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does chronic appendicitis exist?
Here I go again looking for answers! at 16 was told I had IBS,wasnt too bad nothing I couldnt handle or tolerate..have some bad days constipated or the big D with cramps but didnt hit me like what im having now for last 7 months,usually had relief after bm, now its severe abdominal pain,belly button area, low left and right side pain,,sometimes radiates upper area and pelvic/rectal pain,stabbing pain,not crampy.Lost almost 60lbs,metal taste in mouth,heartburn,bloating,bad nausea,hair loss,appetite loss due to the pain (was on ensure but just now starting solid food..nothing agree's with me)bm's alternate,fever and night sweats,trapped gas (i havent been able to pass gas in months)alot of bowel noises and rumbling.After bm still continue to have urge to pass gas or stool but cant,Many trips to er,nothing can be found wrong,but this mimics appendicitis or sometimes partial bowel obstruction,few times a month wake from sound sleep with "gassy diarrhea attacks" feel clammy/sweating/ feel like im gonna die.In April was in hospital for 3 days for this pain.Have had many procedures,tested for porphyria,celiac lactose intolerent,sprue,negative,mercury/toxin poison now.waiting on results.Many catscans,pap/pelvic exams,and ultrasounds,
Colonscopy-normal?,gi noted on biopsy some inflammation,said its ibs.
endoscopy-normal
hida scan-gallbadder is ok
laparscopy-no endometriosis
kidney ivp-no stones
I'm 28 and use to be active,I had to quit my job (cosmetologist) because most of time I cant even stand up,any ideas or similar experiences appreciated,ty (:
Colonscopy-normal?,gi noted on biopsy some inflammation,said its ibs.
endoscopy-normal
hida scan-gallbadder is ok
laparscopy-no endometriosis
kidney ivp-no stones
I'm 28 and use to be active,I had to quit my job (cosmetologist) because most of time I cant even stand up,any ideas or similar experiences appreciated,ty (:
I feel exactly as you do. I have been having intermittent abdominal pain from belly button to RLQ for about 2- 2.5 years. Every doc or NP I have seen so far as looked at me like I am making these symptoms up. I suffer from horrible night sweats mainly located to my abdominal region and wake up with my tshirt drenched some mornings. I get clammy, hot then cold, sweaty and also deal with loose stools every other BM. I hate feeling like this. The providers say well your labs are normal and you don't have rebound tenderness. I bring up chronic appendicitis and no one takes me seriously. I am at the point of just stabbing myself to that region just so they have to go in their surgically. Ha! I won't because I don't want to deal with sepsis or leakage in my abdominal cavity. I am at the point of giving up. I lose weight and then slowly gain some back but I can't keep living like this. What options do I have at this point? I admire the hell out of your resilience and I feel like I have been suffering with an ongoing infection for years too. My body is strong but my quality of life is beyond poor especially if I have to keep living like this. Thanks for your story it gives me hope:)
2 Comments
Yes it exists. I had atypical chronic appendicitis for 3 years and had multiple diagnosis from several doctors, one of then even diagnosed me with drug over dose but couldn't figure out how I was covering it up (no I wasn't on drugs) usually I heard it was something to do with my bowels so they would give me pain meds a shot of muscle relaxer and send me on my way. Finally I got a Dr that refused to discharge me from the E.R. til he figured it out (after telling him about the multiple attacks and diagnosis) they ran several test including sonogram and ct scan. After finding nothing he consulted with the general surgeon and they took me to surgery,(this was after being in er for over 16 hours) where they put a visual scope inside me.I woke up and the Dr told me I was very lucky because he had never in his career seen an appendix as infected as mine was and they couldn't find it because it never swelled up. So keep looking for that dr that will finally listen to you!
Hi. What ER did you go to and/or what was the doctors name? I am always discharged from the ER with 10/10 pain still, because they say it is not chronic appendicitis. Please, if anyone has any names of a doctor who listened to them I am desperate. I keep paying 50$ copays to go to new drs every week, but none listen. I can't afford my medical bills anymore. I will travel anywhere I just need this to be removed.
I feel exactly as you do. I have been having intermittent abdominal pain from belly button to RLQ for about 2- 2.5 years. Every doc or NP I have seen so far as looked at me like I am making these symptoms up. I suffer from horrible night sweats mainly located to my abdominal region and wake up with my tshirt drenched some mornings. I get clammy, hot then cold, sweaty and also deal with loose stools every other BM. I hate feeling like this. The providers say well your labs are normal and you don't have rebound tenderness. I bring up chronic appendicitis and no one takes me seriously. I am at the point of just stabbing myself to that region just so they have to go in their surgically. Ha! I won't because I don't want to deal with sepsis or leakage in my abdominal cavity. I am at the point of giving up. I lose weight and then slowly gain some back but I can't keep living like this. What options do I have at this point? I admire the hell out of your resilience and I feel like I have been suffering with an ongoing infection for years too. My body is strong but my quality of life is beyond poor especially if I have to keep living like this. Thanks for your story it gives me hope:)
hi i think i have the same symptoms as yours, is it possible to tell me where i can find that doctor? thank you
I have had pain for several years. I remember it getting really bad about 3 and a half years ago when I was pregnant. I had the pain before that but when I became pregnant I was so scared something was going to rupture during labor I went in to get it checked out.
My pain is exactly on McBurney's Point. The pain started getting so severe I would collapse when it hit me. I asked my primary care physician about it and he poked around and said he didn't know what it was and went to leave the room. I basically demanded he send me to a surgeon. The surgeon verified an umbilical hernia but said there was nothing to do while I was pregnant and get a CT scan after I had the baby.
I also had the OB-GYN do an ultrasound and he found nothing wrong.
After I had the baby, life got in the way and almost 2 years later I went back to another surgeon. He was useless. I sat there and pointed right to my appendix (having no idea it was even located there) and said "it feels like it's going to burst" and he just said there was nothing wrong and to get a CT scan if I wanted to (which I paid for out of pocket since I had no insurance at the time). He sent me a letter saying he saw the hernia but nothing that would cause the RLQ pain and told me to poop. Seriously. That was it. I wasted over $1000 out of pocket for nothing. He was terribly rude and one of those dr's that seems to hate his job. He also failed to tell me I had an ovarian cyst on my ovary in the exact spot I was having the pain (it was seen on the CT scan by my newest surgeon).
I now have insurance again and have been scrambling to get everything fixed that I can since I've already met my out of pocket max for the year (I had the accessory navicular bone in both feet and had surgery on one in Sept. and get the other done in Dec.).
The pain has gotten far worse and much more frequent. I have had sharp stabbing pain along with flu like symptoms, including waking up shaking uncontrollably, then sweating, etc. 4-5 times in the past 5 months. The pain has been at a dull ache with flare ups sometimes daily for an entire month now. It's never lasted this long.
Anyway, I have again had a (clear) pelvic ultrasound and scheduled an appt with a GI specialist for next week. I saw a surgeon a few weeks ago who wanted me to have the ultrasound (to check that cyst which is gone) before he moved on with a plan to laproscopically fix my hernias, check around, and TAKE OUT MY APPENDIX!!! I mean, he just calmly said "if the hernias bother you we'll fix them, look around, and take the appendix out". I was in shock that I might have a chance at a normal life again lol.
I go back to see him on the 30th and would like to have a colonoscopy beforehand since it might show something and I am still nervous he will change his mind about taking it out because it just seemed to easy. I almost feel lucky to have hernias since he has a valid reason to go in and insurance will cover it all.
Btw, my primary care dr told me there's no such thing as chronic appendicitis even though I never even mentioned it to him. I don't mention it to dr's because I know they think it's BS. BUT what is strange is that in his notes on my chart he put this "I feel the likelihood of chronic appendicitis is remote". You can't say something doesn't exist and then say the chance is "remote". If I don't believe in Santa Claus and I heard a noise at the door I couldn't say there was a remote chance it was Santa! lol
At any rate, I am somewhat hopeful I will have my hernias and appendix fixed before the end of the year. I am almost excited for them to look at it and test it and say yes, it was sick. I want proof to show those doctors who wouldn't help me so that maybe someone else will be helped and they won't be so quick to say it's a myth.
If he takes it out and all goes well I will be sure to share his name on here so that maybe someone else could benefit from his experience with me. I tried desperately to find a list of doctors who know that chronic appendicitis is real.
My pain is exactly on McBurney's Point. The pain started getting so severe I would collapse when it hit me. I asked my primary care physician about it and he poked around and said he didn't know what it was and went to leave the room. I basically demanded he send me to a surgeon. The surgeon verified an umbilical hernia but said there was nothing to do while I was pregnant and get a CT scan after I had the baby.
I also had the OB-GYN do an ultrasound and he found nothing wrong.
After I had the baby, life got in the way and almost 2 years later I went back to another surgeon. He was useless. I sat there and pointed right to my appendix (having no idea it was even located there) and said "it feels like it's going to burst" and he just said there was nothing wrong and to get a CT scan if I wanted to (which I paid for out of pocket since I had no insurance at the time). He sent me a letter saying he saw the hernia but nothing that would cause the RLQ pain and told me to poop. Seriously. That was it. I wasted over $1000 out of pocket for nothing. He was terribly rude and one of those dr's that seems to hate his job. He also failed to tell me I had an ovarian cyst on my ovary in the exact spot I was having the pain (it was seen on the CT scan by my newest surgeon).
I now have insurance again and have been scrambling to get everything fixed that I can since I've already met my out of pocket max for the year (I had the accessory navicular bone in both feet and had surgery on one in Sept. and get the other done in Dec.).
The pain has gotten far worse and much more frequent. I have had sharp stabbing pain along with flu like symptoms, including waking up shaking uncontrollably, then sweating, etc. 4-5 times in the past 5 months. The pain has been at a dull ache with flare ups sometimes daily for an entire month now. It's never lasted this long.
Anyway, I have again had a (clear) pelvic ultrasound and scheduled an appt with a GI specialist for next week. I saw a surgeon a few weeks ago who wanted me to have the ultrasound (to check that cyst which is gone) before he moved on with a plan to laproscopically fix my hernias, check around, and TAKE OUT MY APPENDIX!!! I mean, he just calmly said "if the hernias bother you we'll fix them, look around, and take the appendix out". I was in shock that I might have a chance at a normal life again lol.
I go back to see him on the 30th and would like to have a colonoscopy beforehand since it might show something and I am still nervous he will change his mind about taking it out because it just seemed to easy. I almost feel lucky to have hernias since he has a valid reason to go in and insurance will cover it all.
Btw, my primary care dr told me there's no such thing as chronic appendicitis even though I never even mentioned it to him. I don't mention it to dr's because I know they think it's BS. BUT what is strange is that in his notes on my chart he put this "I feel the likelihood of chronic appendicitis is remote". You can't say something doesn't exist and then say the chance is "remote". If I don't believe in Santa Claus and I heard a noise at the door I couldn't say there was a remote chance it was Santa! lol
At any rate, I am somewhat hopeful I will have my hernias and appendix fixed before the end of the year. I am almost excited for them to look at it and test it and say yes, it was sick. I want proof to show those doctors who wouldn't help me so that maybe someone else will be helped and they won't be so quick to say it's a myth.
If he takes it out and all goes well I will be sure to share his name on here so that maybe someone else could benefit from his experience with me. I tried desperately to find a list of doctors who know that chronic appendicitis is real.
I had a sharp pain after I sneezed that felt like something exploded right where my appendix is over two months ago. Have had IBS type symptoms for years but never a diagnosis on that. But I never had a pain like that. that night my belly felt full and warmand was achy all over. Next day it seemed somewhat better and then that night its was achy. On monday it seemed to be improving so I didnt go to a doctor. Dumb. By Thursday I was still having pains but it was mostly at night. I went to an urgent care and the lady refused toorder me and ultrasound and said she thought it was a pulled hip flexor muscle and constipation. and that if it did not go away in 2 weeks to see and internal medicine doc. Well it felt better about 2 days after I saw her. I did however seem more constipated at times than usual after that. Well now recently 2 1/2 mo later after that I started getting pain just to the right of my belly button and sometimes it would be on the left or cause a shooting pain up higher to the right. but mostly a dull ache on the right. I have been eating less and lmiting certain foods. but this is going on over a week now. Thinking it could be an inflammed appendix?? better that than crohns or something worse. but who wants to be cut open. I will be getting an image of my gut on tuesday and today is Friday. Hope it all goes well.
I'm 11 years old and every month I had abdominal pain since I was 9, the Doctors thought I had bad eating habits but my dad when he was little had a really bad abdominal pain just like me and one day he got a really bad pain so bad that he couldn't even stand up or raise his leg that day they took him to the hospital and he got surgery and it was from his appendix, like most people know there is two types of appendicitis one being acute that comes and stays and you have to get surgery and another one the rarest chronic appendicitis it comes and goes away,so my dad had the chronic appendicitis but like it is so rare the Doctors didn't even believe it existed but appendicitis surely can be very deadly if your doctor doesn't spot it right away it can lead to death because in chronic appendicitis there is a last pain that if not treated quickly you appendix can rupture and infect all your organs. So in my case I got the last pain 2 days a go it was so bad my parents had to carry me to the car my parents took me to the ER ( Emergency Room) When I got there my dad told the Doctors about his chronic appendicitis when he was a teenager at last I got surgery and got my appendix removed yesterday and I really thank God for being at my side and not letting my appendix rupture. After my surgery the Doctors didn't believe it was chronic appendicitis but it really was.
If you don't believe chronic appendicitis exists and you have this symptoms,Abdominal pain every certain time period,vomiting,and can't move a lot please go to the doctor and tell them to check your appendix before it's to late.Good luck hopefully this helped
If you don't believe chronic appendicitis exists and you have this symptoms,Abdominal pain every certain time period,vomiting,and can't move a lot please go to the doctor and tell them to check your appendix before it's to late.Good luck hopefully this helped
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