wow i dont know where to start so please bear with me I am in wicked pain and my spelling is gonna stink.. I am 31 yrs old and for almost 10 ten yrs-after the birth of my son- i have had fibro, myofascial pain sydrome and chronic mirgraines. recentaly added arthrist to the list that is both in my hands and back. so i deal with a lot of pain every day, since i do its easy to tell what pain is what, so finding a doctor that will take me seroiusly is a joke, thank gods my family doctor knows me and trusts me or we would have never found this.
for about a year now I had been dealing with huge back pain-to the point at times i cant even dress myself. it satrted last jume while my hubsand was at air force tec school in mississippi and we live in ny- in a nut shell i have 2 kids, a home and a lot of animals that i took care of alone for 7 months. when my back got really bad we tried everything(thank gods for my family doctor and my parents or i would be wow i dont know where).. i did pt for weeks, a pain clinic for months, even a spinal clinic.. all of which was a huge joke-my pain only got tons worse, no one but my family doctor would even listen to me, or run any testing at all.. the most i got was the pain clinic did 2 sij inejectons in my low spine- which took most of my low back pain-well i couldnt feel anything in that area for about 5 months..
i went to my ob to get a pap done wow last year and told him my periods where wow just werid-when it first came it would hit with such force bleeding would run right down my legs, i would go threw 1-2 pads every 3 hours etc.. he said no reason to worry, so i bought it till this year. about 3 months ago i started clotting huge-like the size of my fist-which during my pap this year he again said not to worry and pap came back clean. well i talked with my family doctor after these huge clots just kept coming and she sent me to have a ultra sound down. they found a 7 cm cyst on my right ovary.. went right to the ob-which he was so nice and ran a cancer blood test that day b/c cyst wasnt clear looking. a week later it came back 15 points above normal... he couldnt belivie i wasnt in there months ago with huge amounts of pain, any normal person would have been dieing..
well 3 weeks ago monday(i talked them into doing surgery 3 weeks early b/c my husband is going back to base for 2 weeks and i will be alone with two kids) i had a the lapo surgery sorry- the one i didnt have to get opened up for. it took them over 3 hours to do my surgery, my hubsand was in tears thinking i had cancer and they had to take everything out b.c normally ob said i would be out in less than 30 mints..
i did come back cancer free thank gods-but the cyst had grown to over 10 cm just in those 3 weeks- so it got almost 3 cms bigger. i ended up having my left ovary out, part of the tube, and the cyst removed. the cyst was also hooked to my pevlis. it took 3 hours b/c i had so much scar tissue from past surgeries he couldnt see my ovary..i ended up having very bad Endometriomas in the left ovary and they couldnt save it but the right one looked clean. he did talk with my family about 3 1/2 hours after i went in and only to say i had Endometriomas, i had the left ovary removed, i was cancer free.
we didnt see him or any ob after my surgery or when i was released 3 hours after my surgery was done. i seen a nurse who gave me a list of things not to do and what was normal post op issues to call for. i have had many sugeries and always had some kind of doctor check me out and talks to me before leaving the hosptial. so all the above issues i had no idea about till my post ob apt, like how big cyst was, why it took 3 hours, that i had part of my tube removed etc..
since surgery i am so bloated i look like i am 9 months preggers, i cant wear any jeans at all or wasted pants, or underwear. it took me almost a week to move my bowels, or to have any gas let out. i have baisically been living in pjs..i had had huge pain all over my left side, to the point i am crying myself to sleep every night, when i can sleep-i have to sleep with 1-2 pillows under my left side. i cant cough, pee, lay down, laugh or do much walking with out wanting to cry. he told me this should have gone away(my post op apt was 2 weeks ago) and i should be fine with in days and did a ua test. well everything came back clean, on that.
well wesnday the ob called my hubby and me both said 2 ua came back clean and I should be fine. he acted very annyoyed that we where calling so much, but he never us calls back. he said he wont offer me any antbotics till he sees me, but they gave me only one chocie for a apt, which was a hour later with a ob i didnt know. well i have two kids and couldnt get a sitter. so we called my family doctor and got in on friday...
the ob office was then calling me saying well we can get you in right after you see your family doctor, so see her first and let us know. so i go and my family doctor flipped. for many reasons-i am so huge with bloating, my bowels are not moving right, she says they are way to quite, when she pressed lightly i was in complete tears..she wants me to go get 4 different xrays and two different ultrasounds on thursday. she also re did a ua test just in case.. i now am on pain meds every 4 hours till my pain is under control-she says she wants me on them for at least 1-2 weeks steady..i asked her if i should still go to my apt with the ob and she told me its up to me but she is covering every test she can think of. one thing she thinks maybe happening is my scar tissue is swelling up so bad its pressing on my colon and maybe other organs.. she said it maybe be i am ok-but she was leaning more towards something it up.. so we called and cancled the ob apt and just said family doctor is willing to take care of me.
well i get home just walked threw the door and ob office is calling me. they are now telling me i have a strep infection in my urine and I need meds for it now. i did the 2 ua test over a week ago. i just flipped out- i told her the ob just called me 2 days ago telling my hubby and I both my ua test was clean and he was not going to put me on anything. she asked me why i went to my family doctor-so i layed it on the line, one u told me to, told her all the tests i was having run and the sec flipped. omg we never knew you where having all these issues wendy hun. OMG mm yes you did its all in my files b.c we have been calling for 2 weeks to have me seen, and even told him on the phone and during post op apt about this. then she changed her story and i just had a border line strep infection so she guesses thats why the ob said i didnt have one. she still wanted to call me in meds- which i said no- my family doc redid a ua test today and will let me know if i had a infection by monday. i called the family doc office and let them know what was going on.
well since yesterday pain is so much worse, which ***** bc it was my 11th wedding ann. now is down my legs and also getting wicked right shoulder pains on top of the ones in my gut. just got my period and i am going threw a super pad or tampon every 1-2 hours and having huge clots. the ob said my perios would be normal from now one, so we are lost. we are calling family doc in the am asking if i can just go to the er. my huband leaves for 2 weeks on thursday when my tests are bening done and the pain is just overbearing. i am not sure if the er can run the xrays and ultrasounds but i am thinking they can. that way if something is wrong we will know that day and something can be done before he leaves. we both just dont want me home alone with 2 kids and something going very wrong...
anyone have these things happen?? should i just go to the er or wait till thursday for the tests?? i am very scared, heck we both are... sorry it was so long, you all might agree i am mental lol