Hi You seem to have the same symptoms as me-my blood tests all cam back normal even an X-ray o back. Joint pains-and pain -crampy in left side. not been able to eat wheat or years -now nuts seeds dairy etc all give me the runs and bad pain in side. My cousin has ulcerative colitis-was treated or years or its and in his 50s got worse i am now 50 and i have been told or years was IBS when couldnt eat wheat -now more and more oohs are causing it.I thought i had fibromyalgia because of pain in hips top and low back -hand arm neck shoulder-you name it! my coeliac test was neg -but it would be as not eaten wheat or years-gives terrific pain then makes me sick.
been worried about all sorts as let is where colon is. Now hoping i will get referred to a gastro-gp she me to gyna-cos i have fibroids and a kidney cyst-but i know its bowel related when food does it.
Orangey-color of the stool could indicate fat malabsorption which can occur with gluten-sensitivity, as can the joint pain, headaches and stomach discomfort. Please make sure the doc checks you out for gluten issues. If he does blood work, make sure he also checks out the level of total IgA. If that level is low, and all the other markers for gluten issues come back negative - and you're told you don't have the problem - please go a step further and do an IgA-gliadin fecal antibody test. Blood tests for gluten problems can be notoriously inaccurate and can often come back negative when gluten IS the problem.
Well stress can definitely worsen migraines (both types) and it can cause many GI symptoms. The only reason I can think of that they don't want you changing your diet until after your appointment, is if they are testing you for celiac disease (gluten intolerance) which can give you a false negative if you stop gluten before the test.
never heard of that but worth looking into. Since I have been under stress, which is thought to have started the migraines, I have been wondering if stress it also the real reason for my stomach being so crazy. I was going to start changing my diet to see if it helped the nausea and pain but that will have to wait as I was told to not do that until after my appt. Apparently they want to test for some things. seems crazy to me.
Well you could be having abdominal migraines. I would recommend trying a migraine diet. The list is really long of things to avoid but it includes avoiding things like chocolate, red wine, dairy, artificial sweetners, processed foods, etc.
I have been seeing an neurologist for a few months. She thinks I am having migraines which seems to make sense. We have tried steroids and a few different types of triptans and I still seem to have around 20 days a month in which I have some type of headache (though it ranges in severity). She is suggesting I would be a good candidate for botox therapy now, which we are looking into. I decided to at least wait until after my first appt with the GI doctor and then go from there. it seems like a tricky thing as I was told the headaches could be causing the stomach problems or the stomach problem could be linked to the headaches (?). seems kind of crazy... But, I can manage with the headaches more than the stomach problems.
I also haven't changed my diet and I haven't eaten any orange foods that could have possibly changed things. I have noticed that lately I cramp pretty badly before I have to have a bowel movement and this is happening 2-3 times a day.
Welcome to the gastroenterology community! Did you ever see the neurologist, and if so what did they say? Has your diet changed at all recently? Have you been eating lots of orange colored foods?