I am so sorry to hear about your husband. I know from experience how awful pancreatitis can be, and hope he at least has a decent pain management doc. I can't imagine going through a huge surgery like a Whipple only to have it fail. Do the docs give you any idea at all as to why he is still having attacks? Another blockage? Scar tissue? Anything? It may be true that there really isn't anything left to do. People with chronic pancreatitis sometimes suffer for years and years until the pancreas basically burns itself out. Of course, by then there's all kinds of digestive problems, but at least no more pain. I know of an excellent gastro doc in the Houston Medical Center (Baylor College of Medicine) who has done some wonderful things with pancreas patients. PM me if you would like his name.
thank you for your response. I would be interested in the gastro's name.
I am a 44 year old female and 4 years ago I had a whipple and since then I suffer from pancreatic attacks one so severe they said next time I might have to have another "mini whipple" My sugeon claims that I too was an unfortunate person and that the pancreatic attacks are not caused by what I eat. It is just the way my duct is (not sure the name) but it is narrow and thus causing the pancreatitis. I to tried to narrow the cause down by either drinking alcohol, which I do not do. And eating higly fatty meals. None of which caused any pain. But yet I suffer from acute pancreatic attacks at least 3 times a year with a 4 days to 2 weeks stay in the hospital and enzyme levels from 800 -1500 to this day I have no answers,
I too had a Whipple in May of 2008... And I suffer from attacks, not sure why I have them but the docs think its nerve damage...
Here is a link to a video my wife took when I was having one so I could show the doctors because they were telling me they have never heard of it...
The attacks started out only two a night but soon got to seven or more... it was unbearable I even asked my wife to shot me one night... I met a woman that had a Whipple and she to suffer from these attacks and told me to have my doctor start me on Fentanyl Patches at 50 MCG/HR every 48 hours... and so far so good. No attacks. They also put me on Cymbalta 60mg to help with nerve damage.. I'm going to stay on the Fentanyl tell the end of the year then they will take me off it and see if the Cymbalta helped...
My husband is 38 yrs old and had a whipple surgery 2 yrs ago for suspected Pancreatic Cancer. Thank God it ended up being Auto Immune Pancreatitis and not cancer. He also was diagnosed with Chrone's 10 yrs earlier. He has never felt the same since the surgery, he is always having "fluttering" feelings and "sqeezing" feelings around where his bile ducts are but recently he is having a pain/feeling that is new on the right side of his abdomen under his ribcage.When I looked up were this feeling was online it looks to be the tail of his pancreas. I am so nervous that this is all happening again.. I didn't realize it was possible to get pancreatitis AGAIN post Whipple....He has been through so much I don't think we can handle this again
Hi. I am a 44 yr old female who had the Whippke surgery done about 7 wks ago. I was diagnosed w/ pancreatitis in 1997. Up until then, my lifestyle included a lot of drinking. When I was told in '97 that if I continued to drink I wouldodor, I stopped. Well stopped for the most part - from drinking 5 - 7 nights a week to 5 - 7 times a year. For many years I did very well. I was healthy. Then around 2001 the attacks came back. They found a non-cancerous tumor in the head of my pancreas. It was drained and again I had some good, healthy years.
Fast forward to 2007, I began having pain from eating. They discovered the tumor had returned. Over the years I had about 1/2 dozen hosptal stays. Many doctors accusing me of only wanting narcotics. Despite the tumor and the rise of my enzyme levels with the attacks. All this took a heavy toll on my marraige & children.
In mid 2010, my husband found a specialist in Boston. He was the first foc to tell me I'd need the Whipple surgery.
This year had been bad with my attacks. After having the tumor drained in Dec. 2010, it was back & twice the size in April.
The surgery went well. I was home in 8 days. I was told I could eat a regular diet. I was feeling much better by week 3 & it has been downhill ever since. I was hospitalized again at week 5 due to dehydration, my white blood count was off & panreatic inflammation. I haven't felt right since.
I am tired all the time. I have more pancreatic & digestive pain than before the surgery and emotionally I am shot.
The GI docs (not the specialist who was too far for me to go for the surgery) tell me I still have pancreatitis, but it should be much better with little to no regular pain. Othe doctors in the hospital, surgical docs, tell me my pancreatitis is 100% cured.
I am a stay-at-home mom with 2 kids ages 12 & 11. My husband works very hard and was amazing for the first 6 weeks. Now he's mad that I'm useless & I'm feeling SO guilty for not being well. My house & life are falling apart & I feel extremely helpless.
I apologize for being so long-winded & detailed but I wanted to give as much info as possible. What I would like to ask is how is your husband feeling? How was his recovery from the surgery?
Anything you can tell me about your experience would be helpful & greatly appreciated. Thanks so much for listening.