Crohns can infect the large intestine or the small intestine.
I'm wondering why they're thinking of removing his large intestine when he has Crohn's........................??? Does he have Crohn's colitis or ulcerative colitis?
Hi, I am so sorry to hear all your husband is enduring. We have a genetic colon disease in our family and both my sons had their colons removed at ages 12 and 16 and my grandson at 10. We lost our oldest son and grandson due to complication with the disease itself, but my son who is 41 lives a very normal and fulfilling life. Ultrathoner, avid mountain biker and hiker, etc.
The biggest thing is diet after the colon is removed. Your husband will have many bowel movements per day that improve somewhat with time, but learning what foods decrease and increase them is key. He'll learn what to avoid by trial and error. It's imperative that he keep himself well hydrated at all times and even more when exercising or in the heat. If he gets a stomach bug where he is going from both ends it's best to go to the ER for hydration because there is no way to keep him hydrated with this happening. They will keep him for a few hours while they hydrate him intravenously and then he will be fine and released. Both of you need to know the symptoms of dehydration and along with always drinking plenty of water, low sugar Gatorade and orange juice are great at replacing any loss electrolytes and potassium. A banana a day is also good. Is your husband going to have a J-Pouch? If so are they going to do it in two surgeries or one? Rarely does anyone have to have the bag anymore unless it's being done in two steps then they have the bag for 2-3 months while they heal. Let me know if he is going to have the bag permanently or a J-Pouch because the care differs with both. With the bag you want to talk to your local medical supply store about the types of bags available, some come with a filter for odor. Also, they will educate you on how to make sure you get a good seal around the stoma so that none of the stomach acid gets on his skin which just eats it up and it's very painful. They are the most knowledgeable because they carry every product out there and deal with ostomy patients everyday. Either way your husband will live a pretty normal life. Feel free to ask me any questions, I've seen it all.
They will teach him how to do eveything(make sure your there) and will walk him through changing the bag etc. he will feel 10xs better, and they wouldn't remove the whole thing unless they felt it was in best interest of the patient. Don't worry it will make him feel alot better:)