support groups for pseudo obstruction

[vetbaby]

looking for children or parents of pseudo obstruction my son has this terrible diease he was diagnosed when he was 2 years old he is now 17 he has good and bad days somedays i just break down cuz i can not make it go away  looking to help anyone who needs it and also give myself some support emotional this is very draining to your soul we have be dealing with this for almost 18 years i have alot of information  that might help plesae contact me at ***@****


This discussion is related to Web site just for Chronic Intestinal Pseudo Obstruction?.

[lester687]

Dr. Paul Hyman who is in New Orleans.  You will have to google his name to get all his information but he was/is  the BIG Daddy of GIPO and did extensive studies on it.  He diagnosed my daughter after years of no one being able to find out what was wrong with her.  He knows his stuff and THIS God awful disease.

[buttons57]

I would love to hear any information you have on this condition.  My son also has this disease and I would appreciate any help..  I sure could use someone to take to.

[buttons57]

My son 27, also suffers from cip and can't hold a job.  This disease is extremly heart breaking.  I took us many years to get a diagnosed, with very little support for doctors. You are very fortunate to have found a supportive doctor.  If you would like to communicate with my son let me know.  He could really use someone with the same condition to talk to.
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