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unexplained abdominal pain

hi,
iam nineteenand  have been having for 2 months now unexplained pain in my right side of my stomach uner the rib cage. the pain is constant and all day. when the attacks come which i never know when to expect them they come with a vengence and go through to my back not around only through sometimes they hit into the middle of my stomach and then go through the back i have gotten a ct and endoscopy and blood work and every thing thank gd came out negative but the pain is endless and using all my energy. the docotor put me on prevacid thinking it was ulcears and lefsin for spasms the prevacid didnt do a thing the lefsin only help for 20ish min. along with the pain comes symptoms of naseau, car sickness which i never had before, loss of appetite and weight, extra saliva that i always have to spit out and not being able to anymore sleep through the night anymore. is there any advice from anyone of what this maybe?any help will be appreciated thank you in advance
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Avatar universal
Just read this post.  My daughter is 16.  She has constant pain in her abdomen right above her belly button.  It never goes away, but sometimes it gets worse. This has been going on since June of this year.  Now she has constant headaches to go along with this.  She has had a colonoscopy, endoscopy, ultrasound of her gall bladder, kidneys, and liver, movement test, and, most recently, a CT of her abdomen.  She also had an MRI of her head.  ALL results were normal.  We had to take her out of school, she stopped all her dance classes, and now barely gets out of the house at all.  Needless to say, we are all frustrated.  I was surprised to find this many others with similar symptoms.  What can it be?
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Avatar universal
Wow. This is EXACTLY how I am. I am 18 and it just feels like every time I eat anything I get these attacks, like you explained. I can hardly ever even attend my college classes anymore because of them. I too went to the hospital and they couldn't give me any answers. They just kept telling me "Your tests are completely normal, and scans. You are a very healthy young lady!" I am so frustrated. I don't know what to do anymore. I may get 3 hours of good sleep a night and the rest is just painful and restless. As I'm writing this I can feel an attack coming on, and I know its going to be a rough night already! >_<
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Avatar universal
Hi there
I've just discovered this stream, I've had pain in my upper right abdoment for 18 months now. So many tests and scans but nothing can be found. Took tramadol all this time, now switching to gabapentin/zyban mix for 'chronic pain'. I've had two colonoscopies,my appendix removed and a road trip round my organs, still nothing. Had a gallbladder scan and finally a hida scan which said that ejection fraction of gallbladder was 'abnormal' but the surgeon said that the level was normal. They are now refrring me to another guy, so that's three specialists/surgeons on the case now and I'm still suffering every day. I did think food made the pain worse. I'm gluten/wheat and starch free.  One day this just started, and its never gone away. There are so many people on the net with the same symptoms but there are so many who don't have answers.
How are you now? Are you still unwell? I feel foryou, I know this was a long time ago now but I hope over time they have managed to resolve things for you
:)
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Avatar universal
hi i was just wondering if anyone is still reading this and can give me some insight i know it has been a while but i was still hoping!! have a good night
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hi i know its been awhile and i havent been on but here is the latest updat i think since i have been on of me. the doc thought that i had shingles and put me on neuronton which didnt alleviate the pain but made me loose alot and made me more nauseous than before so after a month of horror i went back and he took me off of it. then he wanted me to try accupunture and my parents at this point were willing to try anything to make me feel better so they gave it a shot and besides the fact that i got 30 needles all over my body and then heat for 1/2 hr it didnt do a thing for my pain. so the doctor sent me for an mri of my thorasic spine he thought that there might be something pushing on it and wanted to see so i went for the mri and the results for a change were there but it had nothing to do with my stomach i have a tumor and cyst both benine and no where near my pain on my spine is the cyst and very close to it is the benine tumor so they sent me for an asap neurologist appt and he thoruoghly checked me out and he said he wants to watch to see if the tumor is getting bigger but its not on the same nerve path as my stomach issue and he suggests that i go back to the doctor and see what he says and thats where i am standing right now cuz i havent gone back yet sorry its been so long since i updated i hope that all of you who are going through the same or similar pain get better soon and that you dont have the same issue as me where all the results thank G-d come back negative but still dont know why there is pain also i am still on a pain killer every night for my stomach thats the only way i alleviate some pain. im trying to cut it less and less but some days its terrible and i feel like i cnt live through that day!! thank you for listening to me and for all those who responded in the past or will respond thank you as well
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Avatar universal
hey,

wow its been awhile! so pretty much i had that test and of course came back normal. Now i am seeing a specialist at USC medical center and they are giving me an ERCP to check for sphincter of oddi dysfunction. Ask your doc abiut that. I hope youre feeling better.
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Taliaes, my personal opinion about taking this drug is - no. Not because of the drug itself, but because this may mask all your problems, and it just doesn't lead anywhere.
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i just didnt trust him in the way he was telling me i should get accupuncture he didnt say it was a must but he was saying that it might alleviate the pain with the other meds he put me on. my original GI that i have been seeing for 6 months sent me to him and he knows that he is considered a well know doctor. the pain killers i have been on since mid april when i just couldnt take the extent of the pain and needed some relief. thank you so much for your opinion it really means alot i was just wondering if i should be taking this new med which is a cure for shingles and kills out my nerves in my stomach area where it hurts its called neurontin
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Avatar universal
You were asking for comments on suggested procedures.

I'm against proposed acupuncture, and pain killers will not solve a thing. This doctor obviously just want to earn from you. You said you had bad feeling about this doctor, this is your feeling, which you should consider and listen to it. I guess your parents want you the best and give you advices according to what comes in their mind. It is OK to listen all parties. I'm trying to help to understand you what is hapening with you.

Doctor you trust in, is a must.
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what did i do wrong i do not understand. my parents sent me to these doc i dont choose them
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100% against.

Talies, you have your intuition which works, you have smart parents (send them my congrats), and you stick with these lousy, greedy useless doctors!
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hi, sorry it took so long for me to get back to you. so basically i went back to the doc and he doesnt know what is causing the pain but doesnt think its anything dangerous so he put me on pain killers and up-ed the dosage and then in a couple of months he is going to slowy try to take me off of it basically if i dont take the med i cant live, sleep and i have absolutely no appetite i can have a cucumber for supper and be full for the night with alot of nasea and pain. he then went and sent me to another doc who he thinks can handle my situation better. i dont really like this new doc but i am still giving him a shot cuz its my last hope. and this doc doesnt think it has to do based on all the tests that have been done with my organs but he thinks it has to be with my nerves so he put me after examining me on meds called neurotin-which is what someone takes when you have shingles and he is also pushing acupuncture-thats his sell though. he thinks i should still stay on the pain medicine and on tiop this med. as well. i dont know what to do my parents are very very against me taking this new med. it has very scary side effects. also besides the fact that i hate needles i dont think accupuncture will help me any. just wanted to hear anyones opinion on this whole situation thanks for all listening to me!!!  
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Avatar universal
hey i hope that this test finds whatever it needs to and doesnt cause any additional problems. I am going to see a doctor that my GI reccomended me to he specializes in unknown pain of my area or something to that extent. I dont think the doctor will give me that test cuz they feel like they gave me so many others that came out clear. they wanted to do the endoscopy where i swallow a pill and it has a camera inside or something but i cant swallow pills so thats out of the question. my doctor gave me a higher dosage of pain killers cuz i broke down crying to him telling him i cant take it and if it was up to me and i knew what i was doing i would take something and cut that area out. going to the ER is out of the question. they gave me the HIDA scan which also if i remember correctly check how the organs work so whats the diffrence. i'll let you know in a week from now when i go to this new doc how it went. thanks for updating me and good luck to you!!
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Hey so i saw the new doctor and he didnt really have a whole lot to say but on friday im having an endoscopic ultrasound. They put you completely out for it and its a good test to see how the actual organs are on an ultrasound. Ask your dr. about this or about Sphincter of Oddi dysfunction. The only problem is the testing for this causes pancreatitis a lot so they dont like doing it. Ask for different meds if youre in pain. Vicodin works wonders. You can hide it in food if you cant swallow the whole thing. Good luck with everything, i know its frustrating.

Julie
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Avatar universal
Look, taliaes, it won't help you to make diet trials for lactose intolerance and celiac and alergy and so on.

You said you have
- pale diarrhea
- URQ pain
- thick saliva

Combination of these three symptoms goes ONLY with bile flow problem, which may arise from:
1- liver
2- gallbladder
3- bile duct
4- pancreas
5- tissue surrounding bile duct and pressing on it

All your three symptoms suggest ONLY to above causes, NOT to colon, small intestine, gaster disease, and NOT to lactose intolerance, celiac or allergy.
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ok thank you for the concern i really appreciate it. i am going to the doc tomorrow one last time to see if he can do anything for me and if not then between getting a new doc and trying my own experiments maybe something good will come out of it. i dont know if i wrote the earlier but i went off dairy thinking i might be lactose intolerant and it didnt work at all!!
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Because your current doctors made some weird decisions and it doesn't look they know what they are doing. Well, any new doctor will probably get all your documentation, I was only not sure, how this papers travel at your place from doctor to doctor.  
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just out of curiosity cuz i am not understanding why would it matter if the doc sees me hida scan and not all the other tests that i took. if it came back negative/clear why would it matter?
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Be sure that your (new) doctor will see the document with HIDA scan result.
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sorry i thought i did i guess it didnt go through a couple of them didnt. the test came back negative
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No, you haven't posted any results.
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i meant clear
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the doctor is trying to do everything in his power 2 help me but cnt seem to figure out whats wrong
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sorry i thought i posted the hida scan came back lear
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