Aa
Gallstones- clear scan.
can you have gallstones if they don't show on a scan?
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Have they checked your Parathyroid? - not the same as thyroid. A VDD can be caused by small tumors on the Parathyroid gland.
Thanks so much for taking the time to think about my questions and try and answer them! The only connection between VDD and gallstones is that having the gallstones may make it more difficult for the body to absorb VD and so fixing the gallstones would have possibly fixed the deficiency if you see what I mean.
On 16th Feb I finished a 16 day daily dose of 20,000 UI Vit D3. I now have to take a 20,000 UI dose once a month for next five months and then go back for Vit D and bone density blood tests. I have had no benefit at all since taking the supplement and if anything my fatigue and memory/cognitive problems have gotten worse. I have been taking a dose of Osteo-Care vitamins every day since finishing the high dose tablets on my docs advice, there is calcium in this supplement, I also have a bowl of muesli with skimmed milk and a fat free yoghurt every day so think this should be ok for calcium??
Pain problems have been ongoing for 11 years. Starting with simple dequervains tenosynovitis in pregnancy which led to a botched dequervains release where I sustained nerve damaged, lots of scar tissue and a severed tendon this led to a further op to remove scar tissue/ look at tendons and ligaments and then a final op to remove a particularly damaged branch of the radial nerve. I no longer have the Finkelstein pain but have a lot of hypersensitivity, weakness and deep bone/tissue pain in my wrist and fingers of that hand. I developed knee pain 5 years ago which has not been diagnosed. Then in my second pregnancy 2 1/2 years ago I had very severe SPD and was house/wheelchair bound for 6 months. I have never fully recovered, although the pelvic gap has closed, and suffer daily with pain in my hip joints, sacroiliac joints, lower back and cocyx despite acupuncture, massage, hydrotherapy and physio and currently "Foundation training" which I am trying myself at home. I take 240mg Dihydrocodeine daily. I have also suffered with fatigue however I have a 2 yr old who doesn't sleep, work full time and am also studying for a law degree so this seemed normal. It is in the past 6- 8 months this symptom has gotten worse and I litrerally fall asleep whilst working or as soon as the kids are in bed before even getting my PJs on, I have not suffered with anxiety, depression or cognitive problems until 6 months ago when I noticed revising was becoming more difficult, and from getting very high grades I ended up crashing in an exam, in floods of tears and having to walk out with an unfinished paper. The loss of appetite/ nausea stuff started about 3-4 months ago and culminated 3 weeks ago in the ER admission due to severe upper abdominal pain, sickness and diarrhea.
So as things are I have had a diagnosis of fibromyalgia last year that I never agreed with as I didn't recognise myself in the symptoms at all and I have had a number of professional opinions since which agree that I do not have FM. I then had a diagnosis of chronic regional pain syndrome from a rheumy, but it was after he received my blood tests back that he discovered my VDD and has said he is hopeful that a lot of my symptoms are due to this and so may well be fixable. My only worry is that if I feel no benefit (and some detriment) after having the super high dose how well can the small dose affect me over the next five months? Recently my general health has been much worse with a long lasting cold, conjunctivitis twice and a UTI all since Christmas. I do think part of the problem is that there is no holistic way of treatment in our health service, so I see a different person for each different thing and no-one ever looks at the overall picture.
I realise that's a heck of a lot of information and I don't expect you to read it but I felt there was no point in giving you half a story :-/
Anyway thanks again for your help and I will certainly look into the suggestions you've already made.
On 16th Feb I finished a 16 day daily dose of 20,000 UI Vit D3. I now have to take a 20,000 UI dose once a month for next five months and then go back for Vit D and bone density blood tests. I have had no benefit at all since taking the supplement and if anything my fatigue and memory/cognitive problems have gotten worse. I have been taking a dose of Osteo-Care vitamins every day since finishing the high dose tablets on my docs advice, there is calcium in this supplement, I also have a bowl of muesli with skimmed milk and a fat free yoghurt every day so think this should be ok for calcium??
Pain problems have been ongoing for 11 years. Starting with simple dequervains tenosynovitis in pregnancy which led to a botched dequervains release where I sustained nerve damaged, lots of scar tissue and a severed tendon this led to a further op to remove scar tissue/ look at tendons and ligaments and then a final op to remove a particularly damaged branch of the radial nerve. I no longer have the Finkelstein pain but have a lot of hypersensitivity, weakness and deep bone/tissue pain in my wrist and fingers of that hand. I developed knee pain 5 years ago which has not been diagnosed. Then in my second pregnancy 2 1/2 years ago I had very severe SPD and was house/wheelchair bound for 6 months. I have never fully recovered, although the pelvic gap has closed, and suffer daily with pain in my hip joints, sacroiliac joints, lower back and cocyx despite acupuncture, massage, hydrotherapy and physio and currently "Foundation training" which I am trying myself at home. I take 240mg Dihydrocodeine daily. I have also suffered with fatigue however I have a 2 yr old who doesn't sleep, work full time and am also studying for a law degree so this seemed normal. It is in the past 6- 8 months this symptom has gotten worse and I litrerally fall asleep whilst working or as soon as the kids are in bed before even getting my PJs on, I have not suffered with anxiety, depression or cognitive problems until 6 months ago when I noticed revising was becoming more difficult, and from getting very high grades I ended up crashing in an exam, in floods of tears and having to walk out with an unfinished paper. The loss of appetite/ nausea stuff started about 3-4 months ago and culminated 3 weeks ago in the ER admission due to severe upper abdominal pain, sickness and diarrhea.
So as things are I have had a diagnosis of fibromyalgia last year that I never agreed with as I didn't recognise myself in the symptoms at all and I have had a number of professional opinions since which agree that I do not have FM. I then had a diagnosis of chronic regional pain syndrome from a rheumy, but it was after he received my blood tests back that he discovered my VDD and has said he is hopeful that a lot of my symptoms are due to this and so may well be fixable. My only worry is that if I feel no benefit (and some detriment) after having the super high dose how well can the small dose affect me over the next five months? Recently my general health has been much worse with a long lasting cold, conjunctivitis twice and a UTI all since Christmas. I do think part of the problem is that there is no holistic way of treatment in our health service, so I see a different person for each different thing and no-one ever looks at the overall picture.
I realise that's a heck of a lot of information and I don't expect you to read it but I felt there was no point in giving you half a story :-/
Anyway thanks again for your help and I will certainly look into the suggestions you've already made.
Thanks for your reply. Sorry to hear about what you went through. My problem is I have had intolerance of fatty foods and nausea/ loss of appetite for a few months now, recently I was then taken to A & E with sever pain, vomiting and diarrhea. Both my GP and the hospital doctor believed it was gallstones and geve me no other possible explanation, I have been following the no fat diet since and my symptoms seem to have improved some what. I went for a scan yesterday and they didn't see any gallstones. I am a bit upset as I was hoping to have found an explanation for my issues. Also I suffer with undiagnosed chronic pain and a severe Vitamin D deficiency which isn't responding to treatment. I was hoping that if I had gallstones this would explain the Vit D deficiency so I could sort out the gallstones which would then sort out the Vit D and hopefully in turn my pain, exhaustion and cognitive issues would improve. So basically now I feel I'm back to square one and not sure here to go next. This is why I was wondering whether there was a possibility the scan just didn't pick the stones up.
Hope that makes sense. Thanks again.
Hope that makes sense. Thanks again.
I went 8 months with a painfully decaying gallbladder while waiting on doctors to bounce me from specialist to specialist saying my symptoms were impossible. It is possible for something to be wrong with the gallbladder that won't show up on ultrasounds or most scans. It is possible for something to not show up on a scan because of a radiologist's error, but if they are specifically looking for gallstones, only the smallest would be hidden without any red flags that they would immediately investigate. A scan with contrast seemed to be the one thing that actually showed my gallbladder's inability to function. You could try a more sophisticated scan, but I would consult your doctor first to see if it is even needed.
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way off the beaten track!, BC
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I can't see how any doctor could suggest a non-fat diet, as this deprives your body of essential fatty acids, which are required for brain/hormone function. The whole host of vitamin b's are needed to break down fat. Their diagnosis probably came from the assumption that the gallbladder couldn't release the digestive enzymes to assist with digestion, thus your body had to expel the undigested food. You don't need a gallbladder at all, really. Mine was removed. Calcium defiency could disrupt pretty much every system in the body. Check to see if your diet contains calcium. Other than that, I don't have scans, tests, complete history, or much of anything. A gastrointestinal specialist can conclusively determine the state of your gallbladder. A specialist should have been consulting since day 1.
I'm curious as to the specifics of the pain/brain problems and when they started in relation to the emergency room. I can't give medical advice, but I can try to think outside the box in the hopes of helping you. Just remember to consult a doctor before trying any of my suggestions.