It sounds to me like you have Chronic Fatigue Syndrome, you certainly have all the symptoms of it The fact that the SED rate was high, also points to it. Have they done an Epstein Barr blood test, if not, ask for one.
As I said, I would say it was either Fibromyalgia or Chronic Fatigue Syndrome, they are both related. I would see a good neurologist and have them run tests and discuss it with them.
I will say, lots of doctors will not recognize this, mainly because there are no drugs for it, but, keep pursuing until you find one that will help and listen.
Thanks for your reply.......I have already been DX'd with CFS years ago. I have no idea what blood tests have been sent off, I was in so much pain yesterday that I just didn't look at my lab papers that well.
I have also been told I have Fibro but I don't believe that I have it. In my lab reports my ALP is high and has been every time my blood has been drawn since Jan 2013, and my EO% is also high and has been the last two times I've had blood drawn (9/11/13 & 2/21/14 and yesterdays blood draw)......I think all this points to an auto immune disorder......but I am afraid since my PCP is treating me for a tick disease, and the steroids seem to be helping......she won't look any further and just thik it was a tick disease.
Thanks again for your reply!!
I have similar have been unwell on and off for a few months I get the symptoms you describe but no sore lympe nodes ...I have been to the med center a few times but no one knows anything I do have a bit low Vit D ..