New in the medical forum but sadly not new to sickness. I have been sick for about 8 years now and sadly no closer to answers. I have been down a rabbit hole desperate for answers and have received multiple diagnosis's along the way, but no treatment for any of them have worked.
This all started during a pregnancy 8 years ago. Before that I was fine, but the pregnancy definitely triggered something and sadly I miscarried but the symptoms never went away and more popped up over the years. I will write the ones that most bother me now first.
Constant feeling of swaying, bobbing, and like I am rocking boat
Horrible head pressure - Feels like my head is being squeezed in a vice. Had this for almost 8 years. MRI didn't show anything out of the ordinary.
Awful acid reflux, pellet like stools, stomach bloating, pain, tight throat. Now I think about it I had severe bouts of constipation a year before getting other symptoms so can't help but think if there is a huge gut component to this I wasn't aware of.
Allergy like symptoms - sneezing, itching inside of nose, ears and throat, random rashes on face, knuckles, random itchy bumps on legs that come up sometimes and itch for about 20 mins and then disappear.
Sometimes I am really hot and feel like I am burning up for about 20 minutes then it disappears. No allergy symptoms touch these symptoms whatsoever. Tried all over the counter meds with no relief.
Awful brain fog - constantly feel poisoned/drunk and like my brain is poisoned. No relief ever from this in the whole time I have been sick. It is 24/7. Gets worse with sugar, alcohol, coffee and stress.
Light and sound sensitivity - Lights look bright and like my brain can't process them properly. Sounds can make me flinch and feel like they are jarring.
Terrible dry eyes and mouth - doctor suspects sjogrens but I only got this in the last year and a half so I don't think this is a man cause but maybe a byproduct of what else is going on
Burning mouth syndrome. Metallic taste in mouth, severe post nasal drip
Twitching, random flashes of light when closing eyes before sleeping, constant exhausted feeling. Not like I could sleep, more like bodily tired and no rest ever feels enough
Joint achiness and pain, stabbing sensations all over body, back pain, bladder irritation (feels like I have a UTI but I never do when checked out).
Tingling in feet and hands. Sometimes wake up and leg or arm has gone completely asleep.
Shortness of breath - Have woken up gasping before
Appetite swings, difficulty regulating body temp
Feeling like no matter how much water I have it doesn't fulfill my thirst
Sweats at night (sometimes)
Crawling sensations on skin
I am severely sensitive to all medications and supplements. I can't seem to take anything it making me feel significantly worse.
I try and stay positive but it is so hard living with this with no answers or improvement in symptoms.