Thank you everyone. I appreciate everyone's input. I actually have had some movement in my situation. The specialists are looking at mostly myasthenia gravis or possibly m.s.
Hi there. Glad you are here. So, you know, I also have twitching but for me it has to do with two things, too much caffeine earlier in the day and stress. However, you are right, there are more serious ailments that can cause this. My twitching is just around my eye and yours is more invasive too.
It sounds like you have been through the ringer over the years and I want to say that I'm so glad you are doing well now or at least much better. I don't think things like bipolar go away but it sounds controlled along with other issues and that is fantastic. I'm so thrilled for you that the addiction is also under control. I agree that once you've got psych issues and addiction in your medical file, you are not always treated the way you should be and things are chalked up to that rather than looking or new reasons. I'm sorry if you are experiencing that.
So, you've worked with a neurologist. That's who I'd have sent you to. And if you've just talked to them but not been examined, I would think I'd go back. Muscular twitching can be caused by Amyotrophic lateral sclerosis (ALS), also sometimes called Lou Gehrig disease.
Neuropathy or damage to the nerve that leads to a muscle.
Spinal muscular atrophy.
Weak muscles (myopathy).
Hate to lay it out that way, but that's a list I have.
Now, you CAN also have twitching with anxiety, don't forget.
But if you also fear MS, a neurologist would be the person to begin looking for that.
Here are the signs of MS https://www.webmd.com/multiple-sclerosis/multiple-sclerosis-symptoms#1
You might also post in the medhelp neurology community for answers. But would love to help support you through this! I'm again, so happy you are doing well these days and want to see you remain so! hugs
Hello~I would certainly give a good chiropractor a try, you may very well have some pinched nerves causing these issues. The chiro will take some x-rays, study then and then go over the results with you. After a few treatments, you should start to feel better. The reason I am suggesting a chiropractor is because you have been to your GP, neurologist and other doctors and so far, none have been able to really help, so, maybe the chiro will be your answer.