Stomach ....

[Riah171996]

Hi. I'm 18 and have been dealing with this pain for years but it recently got worse.  Everything I eat I get stomach pain. It is unbearable. It causes nausea all day. I can't eat for days depending on the pain.  I drop weight in a day. The pain is so bad the doctor gives me oxycodin and I'm only 18. No one has any idea what's wrong with me. I'm starving. When I take one bite of anything. The comes back or makes the pain worse. I usually have nausea all the time even if I don't have pain. Recently I started throwing up which i never do. Because I don't have anything in me. On top of that. I literally get 10 migraines a day. I'm always burning up and when I stand or walk around it makes the nausea/ pain worse or I literally throw up. I have so many doctors. I thought I would put this out there and see if I get something. Thank you for your time.  

[silverfox67]

    So sorry you are in so much pain.  Just a thought - you might try drinking green tea.  It might soothe your stomach enough to be able to eat something.  Also it would bring your iron levels down as Porphyria causes high iron.
     I have Hemochromatosis and drink green tea to make me anemic as too much iron can cause liver damage.
    When you are able to hold anything down, start with sipping aloe vera juice.  That should help with the nausea and bladder spasms.
     Wishing you the best...

[Riah171996]

Thank you, and I've had ct scans to see if I have MS. Which won't show up anyway till I'm older. And cts scans/ blood tests for acute intermittent porphyria. Which also can sometimes not show up till later. And I have full signs for both of those. Like,  I have depression, bladder spasms, siezures, stomach pain, nausea, joint pain , sometimes constipation. There all signs for acute intermittent porphyria. Also lately my blood pressure has been high. I have so many doctors that one wants one test then I go to a different doctor and that doctor doesn't want it so they cancel it and it's so confusing. We wanted to go to johns hopskins but my endurance doesn't cover it. All I really know is that I've had a few ct scans and that always come back normal. I've had a look into my bladder. And while they were in there my appendix were about to burst. So that got out just in time as well.
Thank you for help and concern.

[Everlastingocd]

Hi,

I'm sorry that you are suffering so. I would like to know more. Like what type of things have been ruled out?? What x-ray's, ct scans, etc if any have been done and did they show anything??

The first thing that came to my mind was maybe a tapeworm, or some sort of parasite?? Just a thought. I will try and research and help more if you would help. I know what its like to have pain that no one can explain. Whatever happens, I sure hope you feel better soon.