Hi, I am a 22 year old female. I have been having chronic pain since the age of 15 and I have been diagnosed with Fibromyalgia because there has been nothing found that is explainable for the pain. I also have a heart condition that is currently diagnosed as inappropriate sinus tachycardia but is now getting looked into as POTS. I have bruised very easily and extensively ever since i was a child. I can be poked and get a bruise. Also i wake up with unexplainable bruising in various places on my body, legs, arms, etc. I have had thinning hair for as long as i can remember, but my hairdresser noticed about 3 months ago that my hair is gaining elasticisty and is now breaking off in chunks in the back of my scalp. I have to be very careful when i brush it so I do not pull too much hair out. Hair falling out has never been a problem for me, and neither has elasticity of my hair. I commonly find myself fatigued after doing little to nothing. I've always equated that to depression, but now i am not so sure. I have had varicose veins in my legs since i was about 14 years of age. I am so embarassed of my legs that i rarely wear shorts. I had never thought much of my varicose veins because my mom has them too. I get frequent phantom migraines that are unexplainable by my doctors. I think the worst part is the pain that i feel. I often wake up with joint pain that lasts all day--although i have never dislocated a joint that. The only thing that has worked well for my pain is Laser Pain Therapy. I was on Vicodin 10s and that didnt even touch my pain but the laser pain therapy worked well for me and stopped the pain for a while but now its back and worse than ever. I have had multiple ekgs done and they all come up inconclusive or "perfect" as the doctors say. I go to the ER frequently for chest pain in fear i am having a heart attack because my pulse gets up to the 170+ range and they do the ekg and say i have no reason to be in physical pain. I am just seeking answers. Or help to find answers. If you know of anything this sounds like please feel free to share your thoughts and opinions. I go to the doctor in 3 weeks to get tested for POTS and on May 4th I go to the geneticist for a screening to try and figure out if i do indeed have EDS or not. Thank you for your comments and help. Positive vibes.
