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Vaginal infection 1+ year. won't go away, all tests normal?

For the past year I've been dealing with some kind of (vaginal) infection. Back in January of '09 I had a UTI for the first time, went to the dr, was put on Cipro. After a week or two the UTI went away, but then I developed this constant discharge, that is white and kind of pasty, has a sour smell, and I have occasional pelvic/back pain and pain with insertion. I was told BV and/or yeast but the cultures do not grow anything out. No yeast, no fungi, no bacteria, no aerobic or anaerobic bacteria. I just have 'lots' of white blood cells and a few 'clue cells' every now and again. I've been on constant medications, about 15-18 different kinds, including a 2 month round of steroids (they thought it was auto-immune, but those only made it worse). Had 2 cyrosurgeries because I was also told it was 'cervicitis' and the procedures would help--they didn't. I am negative for all STDs and had a normal papsmear. Had a vaginal ultrasound done and my ovaries were fine, I just had inflammation internally. The doctor I've been to most recently said that my vaginal tissues look very healthy and he is perplexed that every test is coming back normal; he started to think maybe the discharge was coming from my endocervix, so I'm on more meds that I have been on before, but the culture is still not growing anything out.

I've seen a ton of doctors and everything some how always comes back normal. However, this is NOT normal. Maybe it is a coincidence that it started after the UTI a year ago, but it is driving me crazy! I have not had sex at all since this started. It has put quite a strain on my relationship and has made me incredibly depressed. I am only 21 and as far as I know, I am very healthy, aside from this. I've never had any problems before and I just don't know what to do. This problem makes me feel disgusting and I'm just scared that no one can even diagnose me with anything. Please help!

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Avatar universal
So...in order to write in again to ask follow up questions, this site makes you pay for it. That's nice.
Helpful - 0
Avatar universal
Thank you for the encouraging words. As much as I try to maintain a positive attitude and tell myself it'll get figure out soon, it's just so hard. I try to keep myself distracted by doing a bunch of things, but find that I cry myself to sleep about 5/7 days. My immune system has been pretty good until a few days ago. Came down with a really bad cold and man, oh man, has my discharge and irritation been bad. Probably the worst it has ever been. There goes any progress I may have been making...

I wish the doctors could just take this one out and give me a new one or spray my innards down with disinfectant! Lol

As sad and frustrating as it is, I really appreciates others, like you, that also turn to message boards to seek answers, comfort and give advice. I don't have anyone besides the bf in real life to lean on (and men just don't understand) so it is nice to at least be able to turn to folks on the internet in similar situations. I mean, between all of us with this sort of problem, SOMETHING has to be figured out, right?

Many, many years ago my aunt had endometriosis but the time she had it, the term and diagnosis did not exist. She suffered for years and finally, a good 5 or so years later, they found out about endometriosis and sure enough, that was her problem. I hope it doesn't take that long to figure out what this is, but I'll still hold onto that hope.
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Avatar universal
I know my situation isn't the exact same or as severe as yours, but believe me I feel your pain. Last year I went through some gynecological issues for months and months so I know what its like to deal with doctors who can't tell you whats the matter and kind of blow you off.  Its really saddening, angering and scary all at the same time.  I'm your age and so I think its even more frustrating because you feel like 'im young i shouldnt be having weird health or issues like this'. keep a positive attitude and hopefully things will get better... I think the stress of this is probably reeking hell on your body and immune system as well.  I wonder if all of the medication has damaged the skin and now its causing horrible irritation or have you always had the irritation? O yea and I just want to say YOU ARE NOT DISGUSTING, having these issues does not mean anything about you, do not let this consume you, its good to remember that eventually it will go away and things will get better.
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Avatar universal
I've avoided sex completely since this started almost 14 months ago now. I can barely insert the applicators when I'm put on medication or tolerate the speculum during an exam. It's put a tremendous strain on my relationship, especially since I live with my bf, but I know if I try it's going to hurt like hell and I rather not ruin that experience for myself. Not to mention, I feel too disgusting with this discharge.

I recently noticed that sometimes when I urinate there are pieces of like skin tissue looking stuff. I emailed my gyno about this and he said to come into the office to give a urine sample. I did. He said everything looked fine, except there were traces of blood in it. This is the second time I've given a urine sample that has come back with 'traces' of blood, 2 different appointments at 2 different doctor's offices. Neither said anything about it, aside from it was there.

Shouldn't this raise some kind of red flag?

This is so frustrating. What the heck is going on with my body?!
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Avatar universal
I have had a discharge for about 2 months that has a sour smell and definitely smells more after sex.  The difference is that mine is not white, its greenish yellowish and is very thick.  I went to the doctor because I thought I had BV or some kind of infection, but when I went she said everything looked normal and that she would send out a culture and order some tests.  The culture test came back normal and so did the tests (trich, chlamydia, gonorrhea). I also had my pap about a month and a half ago and it came back normal. The doctor told me the same thing (mandapanda527) about the 'lots' of white blood cells, which means 'i am fighting off some kind of infection'. I feel every person that has posted's pain.  It's very frustrating going to a specialist, such as a gynecologist, and having them not know what is going on with you. I have another appointment with a different doctor next week and hopefully something will come out of this, but unfortunately I have little hope. I don't think anyone has asked this, but does anyone get a smell or a raw irritated feeling after having intercourse after you noticed this discharge or are you all avoiding it?
Helpful - 0
Avatar universal
As everyone else who has a comment on this site, I have tried everything, Dr's/prescriptions and antibotics, nothing worked.  Now, I am on Premerin, also using ALBOLENE to clean the whole area inc. dn my thighs.  Also, clean with this moisturizing cleanser after URINATING.  At least I am not BURNING as before, TIME WILL BE THE ANSWER....if all this works all of you will be notified.
01reddog
Helpful - 0

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