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What's wrong with my ear?

About 7 months ago in the course of a week my right ear began to feel clogged, full, i was dizzy, had some vergito spells, pressure headaches, ringing in my ear and a sore neck.

I've had a CT, MRI (showed sinus infection but I had a cold during my MRI and took 2 rounds of antiobiotics which didn't improve anything), balance testing and blood work all which are normal.  Although my dizziness has improved I'm still left with head pain, a constant 'roaring' sound in my 'bad' ear, occasional sinus pain, reduced hearing, neck/head popping sounds and some tremors in my neck/head.

I saw an ENT and he diagnosed with with Meinere's but after researching a bit I think I have more symptoms involved.  For some reason my neck by my 'bad' ear is constantly sore, I seem to get these head/neck popping sounds espically if I move in certain positions, my nerves in my face and neck are affected and I tend to get tremors or muslce spasms here as well.

I read an account of a lady with a perilymph fistula (PLF) who leaked CSF which caused tremors, headaches and other neurological symptoms all of which I've experienced.  The only thing with my 'theroy' is that my dizziness is gone and only comes back on occasion.  I'm wondering if I can have a PLF somewhere else in the ear which doesn't affect dizziness or if over the last 7 months I got use to the dizziness somehow.

I really do think that some sort of trama happened to my ear.  I first noticed the neck spasms after swimming unwater around 5 feet deep where i felt a tinge of pain my ear... a few weeks later a Chiro. did an 'ear adjustment' to open my eustation tubes and that's when things really got worse.

Any insight would be very helpful.

Thank You,

Christine
4 Responses
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Avatar universal
Its not swimmers ear or sinus ? I have the same issues. I was told I heard something in my pass as a child that tairarise me and its coming back to hunt me though my ear, I also was told I am not alone with this one lady seen something as a child and felt she could not see but she could it was a mine thing it feels real your body can manufacturers whatever you think or your fears , I cannot think of anything in my pass as a childed or adult I heard to have this happen  i was told i my have put it so deep inside I my never remmber, I did have a fungus it happened because my hair was breaded it to tightly, and I thought it tranfered to my ear not so I had water ear swimmers ears didn't know a thing about swimmers ears then turn out i have sinus issue   after that was fixed  but after going to so many doctor it may hold some truth after so many doctor later  there not seeing anything I feel something in both my ears a year later I do remember as a child my mother and grandmother's saying your pass can come back after you get older through your body being a kids only thing cross my mine is what the hxxx there talking about I pop in for some water just said yes I understand so I can kick rock and keep it moving to the door to go play, but from reading about it now that I'm dealing with this younger people get it as well I have to tell myself it's not real the system disapate there are time that do not work now I have to go to the doctor for this. Some food or medication make it bad for me.
I am not a doctor just nor am I saying you have the same issues I am  I have the same issue you are having.  I was just blessed with a upfront doctors that really care that listed to.me and I respected enough to listen to them...
I Love those guys not just the doctors. The ladies in the office as well
Helpful - 0
Avatar universal
Its not swimmers ear or sinus ? I have the same issues. I was told I heard something in my pass as a child that tairarise me and its coming back to hunt me though my ear, I also was told I am not alone with this one lady seen something as a child and felt she could not see but she could it was a mine thing it feels real your body can manufacturers whatever you think or your fears , I cannot think of anything in my pass as a childed or adult I heard to have this happen  i was told i my have put it so deep inside I my never remmber, I did have a fungus it happened because my hair was breaded it to tightly, and I thought it tranfered to my ear not so I had water ear swimmers ears didn't know a thing about swimmers ears then turn out i have sinus issue   after that was fixed  but after going to so many doctor it may hold some truth after so many doctor later  there not seeing anything I feel something in both my ears a year later I do remember as a child my mother and grandmother's saying your pass can come back after you get older through your body being a kids only thing cross my mine is what the hxxx there talking about I pop in for some water just said yes I understand so I can kick rock and keep it moving to the door to go play, but from reading about it now that I'm dealing with this younger people get it as well I have to tell myself it's not real the system disapate there are time that do not work now I have to go to the doctor for this. Some food or medication make it bad for me.
I am not a doctor just nor am I saying you have the same issues I am  I have the same issue you are having.  I was just blessed with a upfront doctors that really care that listed to.me and I respected enough to listen to them...
I Love those guys not just the doctors. The ladies in the office as well
Helpful - 0
Avatar universal
Its not swimmers ear or sinus ? I have the same issues. I was told I heard something in my pass as a child that tairarise me and its coming back to hunt me though my ear, I also was told I am not alone with this one lady seen something as a child and felt she could not see but she could it was a mine thing it feels real your body can manufacturers whatever you think or your fears , I cannot think of anything in my pass as a childed or adult I heard to have this happen  i was told i my have put it so deep inside I my never remmber, I did have a fungus it happened because my hair was breaded it to tightly, and I thought it tranfered to my ear not so I had water ear swimmers ears didn't know a thing about swimmers ears then turn out i have sinus issue   after that was fixed  but after going to so many doctor it may hold some truth after so many doctor later  there not seeing anything I feel something in both my ears a year later I do remember as a child my mother and grandmother's saying your pass can come back after you get older through your body being a kids only thing cross my mine is what the hxxx there talking about I pop in for some water just said yes I understand so I can kick rock and keep it moving to the door to go play, but from reading about it now that I'm dealing with this younger people get it as well I have to tell myself it's not real the system disapate there are time that do not work now I have to go to the doctor for this. Some food or medication make it bad for me.
I am not a doctor just nor am I saying you have the same issues I am  I have the same issue you are having.  I was just blessed with a upfront doctors that really care that listed to.me and I respected enough to listen to them...
I Love those guys not just the doctors. The ladies in the office as well
Helpful - 0
Avatar universal
MEDICAL PROFESSIONAL
Christine,

What did your audiogram show?  Many of your symptoms do sound like hydrops (Meniere's disease).

This answer is not intended as and does not substitute for medical
advice - the information presented is for patients education only.
Please see your personal physician for further evaluation of your
individual case.
Helpful - 0
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