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Avatar universal

any ideas about what's causing my hearing loss?


Hi everyone. this is my first time on these boards... I could really use some help.

i'm a 27 year old female who is experiencing serious hearing loss. this has been going on for about 10 years or less, perhaps.
I have tinnitus in left ear only.
wildly fluctuating hearing loss... I mean it's all over the place. sometimes things are just peachy and I can hear fairly well, while other times I really can't hear a word people are saying. I have to strain and strain to hear them. I hear the noise that they are talking, but can't distinguish words.
I have tried oral and injected steroids into my ear. the injections seem to work for about a week, but that's it. oral didn't really do anything, although I will say I felt GREAT while on steroids. full of energy w/ no aches or pains.

The ent has tested for EVERYTHING. full blood workups, tests for autoimmune, syphillis, etc etc. he says he really has no idea what is wrong with me- it seems like it's inner ear autoimmune, but the tests don't show that.

I'm getting hearing aids in a couple of weeks. when the lady took the earmolds she said "you have incredibly narrow ear canals". is this relevant???

my life is unbelievably stressful, as I basically can't communicate with people in the outside world.

anyone have any suggestions? I have been searching and searching and nothing seems to match my symptoms exactly.
2 Responses
Avatar universal
Hi, here are audiometry results, with some other notes, in reverse chronological order.

Thank again,

e

-----------------------------------------------------
12/17
don't have hearing test w/ me, but L ear had dropped again, got dexamethasone injection...


12/12/08
250 10  15
500 10  20
750  10  40
1000  10  70
1500  20  65
2000  20  65
3000  40  70
4000  60  70
6000  55  65
8000  50  60
audiometry, % correct:
R 84%
L 92%
*injected now into R ear.

12/9/08
250   5  10
750   10  35
1000  10  25
1500  10  25
2000  20  40
3000 40   40
4000 45  60
6000  55  65
8000  60  70
audiometry, % correct:
R 92%
L 64%
*it looked like the injection worked ok... but then 3 days later, it dropped again...

12/1/08
freq. L  R
250  0   0
500   0   25
750   5   50
1000  25  55
1500  55   75
2000  55  75
3000  45  70
4000  40   65
6000  25   65
8000   55  75
audiometry, % correct
R 84%
L 28%
*injection dexamethosone into L ear

11/3/08
250  5   5
500  10  25
750  10  45
1000 10  55
1500  25  55
2000  35  50
3000  25  45
4000  30  50
6000 55   55
8000  65  65
audiometry, % correct:
R 80%
L 92%
*started on 3 wks oral steriods... they made me feel good but didn't apparently affect hearing.  while I was on them (end of week 3) my hearing dropped significantly (see audiometry 12/1)

5/6/08
250  5  10
500  10 15
750  10  15
1000  10  15
1500  15  25
2000  25  35
3000  45  55
4000  40  55
6000  45  50
8000  45  60
audiometry, % correct:
R 100%
L 100%

11/7/07
250  10  35
500  10  40
750  10  45
1000 5   50
1500  10  50
2000  20  45
3000  30 30
4000  30  30
6000 35  45
8000  45  55
audiometry, % correct:
R 90%
L 100%
Avatar universal
Narrow ear canals

Well, I doubt that has anything to do with it....   but how narrow is narrow, how long is a piece of string, and who took your ear mold impressions, how many ear canals has she seen???????

A lot of questions....

But here is the deal, as the face is forming, (during gestation) so are the ears. If there are any facial abnomalities, one can expect to find a hearing loss...  expect but it is not always the case.

All that aside, here is some information that I think will give you some answers:

http://pediatrics.jwatch.org/cgi/content/full/2008/820/1

http://www.ncbi.nlm.nih.gov/pubmed/9108862

http://en.wikipedia.org/wiki/Cytomegalovirus

Because CMV is a members of the herpes family, this means the virus will wax and wane time and time again.  This may be your answer.
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