1.5 years Dilated Cardiomyopathy

[kadur]

Hi, My daughter has Dilated Cardiomyopathy. She was detected with this condition, when she was 9 months old. Please let me know what are the ways we can find the causes or rather rule out the causes. This condition was diagnosed while the baby was in India. Now, we have just returned to US last month. While in India, they have collected her blood sample for testing cartinine deficiency. Although, there was no deficiency with that vitamin, the doctors suggested us to continue cartinine vitamin supplements for her as there are not much side effects. Currently she is on enapril, lasix, digoxin. Her EF when we had checked last month was 25%.

Please let us know what are the procedures available here to find out(or rule out) the causes for dilated cardiomyopathy. Also, please let us know if there are any research institutes who are pursuing stem cells therapy to this problem. thanks

[kadur]

Since, we have travelled back to India. Please if possible, suggest us if there are any medical procedures available in asian countries for this problem?

[kadur]

When she was diagnosed with this condition, her EF was 20% and  the doctor who was seeing her told us that, she cannot survive as her heart was hardly beating. After 3 months the EF had increased to 37%. But then, in 6th month scanning it had reduced to 20% again. Doctors eventually increased all her medication dosages. And in 7th month its around 26%.

Now, doctors have suggested to start with carvedilol.