Anyone else have these problems?

[helpplease1979]

Hi, I'm new to this site, but I hope to get some helpful info. I am very confused on what could be wrong with me. I am 30 and I have had problems since I was 10. Most of the Drs that I have seen have pretty much looked passed me, plus it doesn’t help that I didn’t have just one dr. Anyway, I have a few problems that I know for sure. I have 3 heart conditions.....SVT (about 200 and above), MVP, murmur. I have "attacks" where I have rapid heart beat, body shakes, hyper ventilating, lose awareness (almost like fainting symptoms), dizzy, light headed, and I get a flush feeling over my body.  I have no warning and no time to take action before they happen, I can sometimes have one or have them back to back.  I can go months without one or have them constantly, I’ve had two node ablations, insertion and removal of loop recorder, none of which have solved my problems.
I also have degenerative bone disease (but I’ve never had any treatment for it), IBS, Carpal Tunnel, Arthritis, and chronic UTI.  Now the reason I’m on this site is because I have a lot more problems that I’m worried about, I have constant pain everyday, I know it sounds stupid but it’s true.  My major pain right now is in my left knee and both my ankles, and my skin hurts at a light touch.  I can not use my left thumb; I can’t even open the door with my left hand.  I feel like I have creepy crawlers in my legs, and when I try to relax at night my legs jump out of nowhere.  I have a very high pain tolerance, but I don’t know how much more I can take.  I don’t have health insurance so I don’t know what to do, any advice would be wonderful.  

I don’t know if this helps but my grandmother does have fibromyalgia, Is it hereditary?  Thanks for all of your help.

[Encephalomalcia]

Have you ever seen a chiropractor?  A chiropractor can help the carpel tunnel and a lot of symptoms associated with nerves, muscles and bones.  If you do have arthritis, you will have to be careful that you are not developing a lot of inflammation in your body.  Inflammation can also be in your arteries, which would create a sticky spot for cholesterol to start building and eventually lead to blocked arteries. You need to control the inflammation in your body.  Make sure that you are taking care of yourself now to prevent serious heart disease in the future.  Take care.

[LivingInHope]

Wow, it sounds like you have a lot to deal with.  From the mayo clinic website:

"Connie Luedtke, R.N."
"If one of your parents or siblings has fibromyalgia, your risk of also developing the disorder increases dramatically."  

I have two siblings myself who have been diagnosed with fibromyalgia, and it definitely can cause a lot of pain.

Have you looked up restless leg syndrome?   Have you had your catecholamines and plasma free metanephrines checked?  Your epinephrine and norepineprhine can both cause your heart to race.  High norepinephrine I've read can induce a panic attack.  High norepineprhine is not brought on by anxiety, but norepinephrine helps to maintain your blood pressure.  It is part of your autonomic nervous system.  Panic attacks can bring hyperventilation, violent shaking, tachycardia (though it should not bring SVT), dizziness, light-headedness, and flushing.

Have you ever heard of dysautonomia?  If not, you might want to check out ndrf's website.  It's an org that posts articles about it.  Fibromyalgia, IBS, migraines, tachycardia and fainting issues are all in the dysautonomia family.  This website also has a forum for dysautonomia.

You might want to check into interstitial cystitis and endometriosis of the bladder if you are not getting definite tests that show you have UTI, as both of these conditions can mirror the symptoms of a UTI.