Hello, and thanks for much for reading this!!
My 21-year old son was diagnosed with Marfan Syndrome at age 6. He has been on beta-blockers since that time. During his childhood and teen years, he had severe physical restrictions and had MVP as well as a dialated right ascending aorta.
At this point in his life, the only symptom he sees an enlarge aortic root. It is enlarged at just under 4 cm. He has no joint pain. His breast bone is only slightly protruded. He does have sublixated lenses, but his vision is just fine with glasses. He's tall and thin, and his arm span is only a bit more than his overall height. In other words, the Marfan is not very severe.
I am concerned because the doctor has lifted all physical restrictions...just recommended that he gets a yearly scan and his blood pressure is monitored. My son is also staying on his medication- 50 mg of Tenormin in the morning, and 25 at night.
. It was "hammered" into our brain so much when he was a child, and to have no restrictions now is really hard to understand. We cannot get a second opinion because our insurance won't cover it.
Specifically, I am worried because he wants to join the Army, and it looks like they will let him pass the medical inspection. I don't want his aorta suddenly blowing up, or his eyes popping out because one doctor made a mistake and then the army pushed him too hard. I don't want to seem like an overbearing mom, but I am really scared.
Do you have any thoughts?
Thank you so, so much!!!