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Can anyone help me?

Posted By Susan on January 14, 1999 at 10:24:05:







I have multiple auto-immune problems and recently dx with Hypertension.
I also have been asked by my Nephrologist to seek care from the CCF as soon as I could relating to my total all medical problems to get control of the illness itself as he worries the disease itself is not being treated by my physicians.
I am currently onso many medicactions, three for heart,Metoprolol200mg day, VerapamilHCI 240mg,and clonidine 0.2mg2xday. I am still having high BP and the doc I recently went to seemed not concerned and said I shouldn't go to ER if these occur.
I was or should I say I felt very confused and I didn't bother to say anything else at time of appt because he didn't even care to lookat a copy of journal I havebeen keeping,nor did he say anything a bout any follow-up appt. I see many physicaians likeI said due to multiple health issues
I did explain that sometimes I do know when these are occuring now because my face goes numb on both sides at times, and once my hand shook and felt like I was holding a glass of cold water, without glass if that makes any sence, maybe he thinks Iam a "nut", I don't really care to worry about what he thinks as I am concerned this is something to be concerned about.
Current meds:
Hydroxychloroquine  200mg 3x day      
Metoprolol   100mg 2x day            
Azathioprine 50mg 4x day        
Folic acid   1mg day                
Clonidine(Catapres Eq) 0.2mg 2x day        
Verapmil HCI  240mg day          
Prevacid 30mg day              
Neurontin 400mg 4x day      
Prednisone 40mg day            
Atrovent 4 puffs day        
Vancenase 2x day                
Pretz spray 2x day                
Azmacort 2 puffs day          
(I HATE TAKING ALL THESE MEDS!!!)
DIAGNOSIS:
Hypertension,Fibrosis,Neurogenic Bladder,Peripheral Neuropathy,Sjogrens Syndrome,CNS,
Arthritis,Asthma,Scoliosis,FM,Reynauds Syndrome,TMJ,
Polymenoria,Migraines
*other findings:Lupus???(several docs have said YES,call me PeeNut!)"I don't care what they call this,as long as I am treated for when need be. Validation will come, I know!"
Illioguinal Neuropathy,Tendosynovitis,chronic sinusitis,Epichondilitis, Photosensitivity rash(many times as child had sun poison,blistered terribly,once in service as well,almost court-martialed for destruction of Govt. property,1st/2nd degree burns),nose/mouth ulcers,alopecia,PVC's, PAC's, Arrythmias, Bygemeny(sp),pitting adema,polyp cysts in nose, no gag reflux as well as lining of throat and nose damage.Dr.Arbour says he can't help, this is the disease causing this???...so need not return, hubby present for visit as well.
***********************************************************************************
Allergies:
Sulfa drugs    Codeine    Ultram    NSAIDS   Tolectin/Motrin    Estrogen  Progesterine
*many reactions to many meds at times,become very sensitive for some reason.* Many trips to ER for hives, swelling reactions.
COPY OF jOURNAL i GAVE THIS NEW DOCTOR:
some December/January BP monitoring               Tuesday, January 12, 1999
*****************************************************************
Times      Symptoms                  BP/Pulse           Comments
10PM      face went numb           222/197P49         ???
11PM      same feelings               176/170P120       ???dizzy still
               same episode               162/137P88         "               "
" "           "                  "              145/105P117       all sitting up position
*****************************************************************
1:46AM Monday/was asleep and awakened 159/142P115   ???
"                                                  "            171/163P110    ???
                                                                 172/164P96      ???
                                                                 156/100P102    came down fast!
*****************************************************************
11AM Tuesday another numb in face, pain in head as well at times andpressure in forehead area.
176/155P121
172/144P114
156/136P100
141/96P117
145/133P117
135/81 :)P118
*****************************************************************
same day as above, time was 12:53PM
256/233P82
158/149P121
177/158P126
136/93P115
157/137P121(many times I went o sleep after these to rest,not understanding at all whatwas gong on they last ed different amounts of times, some seemsed forever! argh!confused and feel so unsure what is going on and WHY?!?!?!
*****************************************************************8:40AM
150/95P94 :)
146/100P92 :)
*****************************************************************
Jan23AM, yet again awakened by this and didn;t know why?!?!?!
174/153P91
182/159P91
151/109P92
185/164P78  ???
166/101P75
148/96P62
*****************************************************************Jan7
176/155P121
172/144P114
156/136P100
141/96P117
another episodesame day
145/133P117
133/81P110 :)
I can tell now when it feels strange , but not painful, but after my chest is hurting sometimes, too much pressure and feels like someone squeezing me! Pain was in left side of head, like lighning bolts! :'(
*****************************************************************Sunday10th, terrible day!!! :'(
5:30AM awakened to
158/146P103
168/100P105
136/91P101
143/90P100
162/96P100
169/144P101 ???
163/99P96    ???why up and down now???
158/98P96
164/100P112
7:50Am(took random BP)
142/91P67 :)
9:30AM
153/138P112
10AM
151/111P128
10:20AM, after walking just from bedroom to kitchen and sitting down...
227/177P123 ???
142/97P124
153/93P124 face got numb, felt like I was in a heavy work out feeling, exausted, out of breath, and just drained! wheezing aslo, heart feels sore.
5:30PM. head so sore,chest so sore, feels like a muscle was torn,dull chest pain, butkind of like a releif,like when I had costro many a times.  
166/162P128
141/132P126
136/86P120 :)
6:50PM
166/142P86 same numb feeling and pressure inhead after
164/155P76
140/132P123
180/160P117 ????up???
145/97P117  ???so fast down???
203/160P61???too strange and why is this happening???? I need to know!!!
notes say:
behind head sore now, dont know to implode or explode(hey have to keep sane )heart feels sore and beaten up! :'(
7PM
183/151P124
143/110P118
140/92P121
****************************************************************
Monday 1:35AM
138/106P114
131/97P110
148/96P115 seems to be releaved now, yippee!!have had pressure, nausea, stmach hurts,neck feels still swollen,heart feels so bruised to even when brething,but seems to have something happened, i an take breaths easily now, still sore at times and still get occasional spasm like pains like i get in bladder too aften!
what is this, I have no clue, anyone!?!?!?!?!MY spine still hurts!!!! :"((((
Add on: Wednesday, January 13, 1999Doc, would you be concerned????thank you for any help in right direction....seems I may be comingyour way sooner than later as I do have a few caring doctors that too need and want me  to get good care and releif. Thanks ofr your time and your services.
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