Congenital Heart Conditions

[Binkie1205]

I have recently Diagnosed with Anomalous origin of the right coronary artery from the left aortic sinus just anterior to the LM ostium, then coursing between the aortic root and RVOT to normal position in right AV groove.

A bit of a mouthful I know however I am informed it may be as benign as a sixth finger on my hand however it may prove fatal. I live in Thailand and can get no definitive course of action that will help me either know what risk is posed to my life nor can I get any advice on what drugs will help this condition. Anyone out there either heard of this very rare congenital heart complaint. I just want to be pointed in the right direction.

I have read of many sufferers from this condition having sudden death.

This worries me as it would anyone. Please can you advise what if any medical procedure can be carried out to correct this and if none what drugs should be taken in order to preserve my life.

I am willing to travel in order that I can be correctly diagnosed and sent in the correct direction. I am totally on the dark and no one here seems able to help.

[tofheart]

will a defibrillator protect you from sudden death?

[anacyde]

My cardiologist tested me for something like this because I had an enlarged heart and he wanted to rule that out.  He said sometimes you can have ischemic cardiomyopathy result from "your heart being wired a little wrong" and having vessels in the wrong place.

The test he ran on me was a Cardiolite Stress Test.  I don't know if we're talking about the same condition, but it couldn't hurt to ask your doctor about that test and see if there is any way of knowing what your risk level is.