Flecanaide-Ablation-NSVT

[VTBen]

I have PVC's and RVOT VT.  Had six ablations (one epicardial) with over 60 burns. Didn;t work.  I'd like to hear from anyone who had extensive ablations, to see if anyone compares to what I've had..  Also I really may need to try Flecanaide and would really appreciate any personal info on anyone taking the drug for PVC's or NSVT, or any other info about the safety of treating these conditons with Flecanaide.  Its hard to get any info on these things in medical literature.

Thanks

[Momto3]

Hi,

I had pvc's RVOT and LVOT.  Had 2 ablations.  There were 12 burns with the LVOT ablation, but I don't have the records for the first procedure so I'm not sure on total burns.  I was multifocal for a long time and because I developed cardiomyopathy as a result of persistent pvcs, an antiarrythmic and/or ablation(s) became necessary.

I was on flecainide for 3-4 months, but b/c of side effects related to central nervous system (vivid, weird dreams, shaky, increased anxiety - didn't need that!) I was switched to rhythmol.  Apparently, it is very important to take it on a routine and the doctor was hoping flecainide would work b/c you only have to take it twice a day and rhythmol is taked (at least for me) 3x/day.  No troubling side effects with the rhythmol.

Both medications helped alleviate the pvcs BIG time!  However, I opted to try the ablation(s) when I was told I would need to stay on the RX for the rest of my life.  I knew going in that it may take more than one procedure b/c I was multifocal and the doctors wanted to ablate conservatively.

I was told that flecainide was safe with a normal cardiac workup.  Although I have MVP/MR, I was still prescribed flecainide and it was considered a safe medication.  In my case, it was more important to treat the cardiomyopathy since the doctors felt the CM was a result of pvcs.  They were right because after 2 ablations, my EF returned to normal and has stayed there for over 2 years.  I still get occasional episodes of NSVT, but nothing in comparison to the past.  

Where (city) did you have your ablations done?

Good luck in getting the answers you are looking for.

Connie

[RARELVOT-VT]

F/32 HAD 3 ABLATIONS IN 10 MONTHS NOT SURE OF HOW MANT BURNS MADE. IT WAS FOUND I HAVE A RARE FORM OF LVOT-VT AND I WAS ON THE FLECANAIDE AND LOVED IT UNTIL I GOT THE TREMORS/SHAKES. THEN I DID NOT LIKE IT SO MUCH. IT DOES WORK. I DONT FEEL THE LAST ABLATION WORKED I JUST HAD IT 6 WEEKS AGO AND SOMEHOW I NOW KEEP GOING INTO A-FIB FUN PASSING OUT EVERYDAY MAKES WORK INTERESTING. I JUST STARTED TO FEEL THE VT AGAIN LAST WEEK AND THAT SUCKS. DR DOES NOT FEEL I HAVE THE VT JUST THE NEW A-FIB THAT WAS DOCUMENTED ON A HOLTER FOUR WEEKS AGO. SO IF YOU WANT THE MEDS BE SURE YOU KNOW WHAT YOU ARE GOING TO TAKE SO YOU KNOW WHAT COULD HAPPEN TO YOU. BE SAFE

[dasha15]

I have been on Flecainide for 3 months, so far without any side-effects and it has  totally stopped my very frequents PVCs & NSVT. I have to make sure that I drink plenty of water during the day and take it regularly at the same time every day. Before that I was on beta blockers and Verapamil which did't work. I am booked for an ablation next week because I don't want to stay on the medication forever.

Not sure what RVOT VT, I suffered from bigeminy (PVC's every other beat) and NSVT and Flecainide helped these big time.

[sewnice50]

I have taken Flecanaide for several years now. I think its been three. I have lost track.  I started out with 100 mg 2 times a day and went to 150mg 2 times a day when the A fib came back. Now I am doing well. I notice no side affects.  My hands do shake very slightly sometimes but I did not even realize it was from the Flecanaide.  I would like to look into ablation but how sucessful is it really?

[tofheart]

i have had several ablation attempts but to no avail.  i have several different kinds of arrythmia and a defibrillator implant.  i am concerned about flecainide. i have been on it for one year now and it does help, but i have congenital heart defect . one dr told me it would ruin my heart, the other one said it would be fine.  i dont know who to believe but i do know it works.  i can actually stand up without getting afib and when i get nervous now its not as bad as before.