Hi Michelle, I am glad that you are finally going to get someone who will work with you and for you, not against you. Sometimes dr.s get so caught up in who is right and which procedure THEY do and What Diagnosis They do, that they forget they are working for You and for Chris. Chris is the one who is going through all this REd tape and having the hardest time, but you as his mother and caregiver have to speak up for him and find the right dr. which it sounds like you may have succeeded in finding at long last.
Make sure you keep on this new ENT and it sounds like Chris is about to get the right diagnosis and mayby the pacemaker he needs. Whatever it is that he needs, I hope his turn up at bat is a HOMERUN! Good luck and keep us posted!
Fluffypurrcat
Michelle,
So sorry you are still battling for Chris......Be sure to take some time for yourself so you'll be stronger if/when the next battle arises.
I love that Chris' ENT is willing to work with you!! That's great news! Maybe he will be able to facilitate another opinion on the appropriateness of a pacemaker implant. If another doctor says it's best to wait, then I'd probably sit tight. Hang in there, you've got a good team player to help you now!
Connie
I think it is important that your doctors speak with one another and know what is going on from ALL aspects of your child's well-being. That you found an ENT that wants to pull all of the information together instead of treating each symptom as a separate entity is WONDERFUL.
I think your gut is already telling you what to do. Let the ENT "get to the bottom of it" and be your advocate. Because doctors are able to speak the same "language," perhaps his discussion will reveal more than you are able to express, and any holes he has in understanding will be clarified. Then...he can clarify things for you.
Good luck. I hope things take a turn for the better.