On a bit of a side note, I am a singer/guitar player in a band. I share lead singing duties with another member. With the type of music I play, I often have to really belt out the notes which requires a great deal of exertion on the part of my lungs. At the time of the leg pressure episode, I was noticing that it was becoming very taxing on me to force those notes out, much more than ever before. I didn't see any reason for this to be happening other than I was getting out of shape so I began exercising on my treadmill to increase my lung capacity.
The day after the night at the ER I went back to my doctor and explained to him everything that had happened. Ultimately, he told me to give it a little time and see if it goes away. He also suggested I get an MRI to be safe and possibly see a neurologist.
So I gave it some time and it did seem to go away for the most part. Some nights I would feel it in my leg a little, but it wasn't nearly as bad as before. Also, after some weeks passed I noticed a similar feeling of pressure/tingling in my left arm.
Months passed. I saw my doctor a couple of times in this span of time, but he didn't really have anything noteworthy to say about it. Also, it was becoming much more difficult for me to sing on stage as time went on. When I was singing the hard parts, it would knock me for such a loop that I wasn't sure if I was going to pass out on stage sometimes.
At around February 20th or so I came home and went to bed like any other night. For some reason, though I could not fall and stay asleep. My heart was beating really hard and every time I fell asleep I woke back up immediately with my heart beating like mad and an extreme feeling of disorder. I tried for hours to go to sleep with no avail. It was somewhat similar to the way I was feeling back in September. I went the entire night without sleeping because of it.
I saw the doctor the next day and told him that my heart was beating very hard and it was keeping me from sleeping. He listened to my heart and did an EKG. Everything was normal. Later that day the leg pressure came back just as bad if not worse than the first time. That, coupled with the heartbeats made me start to panic a bit. After a while I began hyperventilating and tried the ol' paper bag technique to combat it. Again, my mom convinced me to go to the ER. My sister lives a quarter mile from the hospital and I decided to stop there and try to relax in hopes of avoiding a trip to the ER (my sis is a nurse.) I was having an almost full blown panic attack by the time I got there, but I was able to calm down after awhile and the panic symptoms went away. The leg pressure and heavy heartbeats did not.
A week passed and all the while I continued to have heavy heartbeats that made it difficult to do much. My band had a show at a bar and I bit the bullet and went through with it. Typically my band starts our set with me playing bass, then half way through I switch instruments with the other guitar player. For the first half I was feeling very light headed and my heart was racing pretty much the whole time. When we switched instruments, I knelt down to pick up my instrument cable to plug my guitar in and when I stood back up I experienced an extreme head rush with very heavy heartbeats. My heart was beating so hard that I seriously was not sure that I wasn't going to have a heart attack. Somehow I managed to collect myself and finish the set.
After that, the symptoms I had became worse and I started to have new ones. I started to have a constant nausea, unable to eat anything without feeling horrible. Eating a big meal would cause my heartbeats to be more heavy and fast. I felt an odd swelling in my neck (not throat), down near the collar bone. Also, I was always dizzy. Not a light headed dizzy, more of an altered perception dizziness if that makes any sense. My heart was so sensitive to physical activity that I couldn't do anything without feeling like it was going to explode.
I saw my doctor again as these symptoms were changing. He called them "bizarre." He said that it sounded like it may be a hormone imbalance and ordered a series of blood tests, a stool test and a 24 hour urinalysis. Every single one of these tests came back completely normal. All of my vitamin/mineral levels were nominal. I think he though it was hyper/hypothyroidism at the time, but my levels were normal. I finally went and had the MRI done. Normal.
During this period of time, I was not eating or sleeping much. Every time I ate it made me feel horrible so I was avoiding meals. Not a good idea of course. The heavy heart beats were keeping me form getting full a nights sleep every day. There were a couple of times where I went more than two days without any sleep. Plus, all of this was very taxing on me emotionally. The fact that I was feeling so horrible and my doctor was pretty much clueless as to the source was really depressing me.
I began to get what I have been calling 'mutant welts' at this time. When I wake up in the morning, I usually have giant, bulging welts on my arms that are painful. Not all of the welts are like this. The mutants usually start to fade within two hours of waking up. They are only present in the morning after waking up and I have never seen them appear before my eyes like the other ones.
About two weeks after the show at the bar, I had fallen asleep one night. After an hour or so of sleep, I woke up with the extremely heavy heartbeats, shortness of breath and I was shaking almost violently. Once again I went to the ER. The ER doctor there (different one this time) was much more compassionate and actually seemed to give a crap about me. She ran a bunch of tests and an EKG. All normal. She couldn't see anything wrong and sent me home.
A few days later I went to my doctor again. He told me that he thinks that my symptoms are stress/panic related and suggested that I try Paxil. I was very reluctant to try it, but I gave it a shot. When I took it, it made me extremely dizzy. I felt like I was a foot taller when I looked down because the medicine was altering my perception so much. I told the doctor of this and he recommended a smaller dose. I tried the smaller dose the next day, but it still messed me up, though not quite as bad. It was causing me to lose even more sleep so I decided not to take the Paxil anymore.
I normally weigh somewhere between 148 and 152 lbs. I was down to about 138 by the time I started the Paxil. I decided then that I would force myself to eat regularly no matter how sick it made me because I was getting sickly thin.
Two weeks later my doctor ordered a CT scan and an upper GI test (because I requested them.) At the time I thought a 'hiatal hernial' could be causing problems because of possible stimulation of the vagus nerve. Those tests came back normal. I had to drink a bunch of barium for the upper GI. The tech told me that I might cause some constipation/sluggishness. The evening of the day of the upper GI I started to feel a discomfort in my side just below my ribcage on the right side. As the night went on it got worse and worse. By the time 8 pm came around it was almost excruciating. I had to hunch over when I stood and could only ease the pain by sitting in a specific way. It lasted all night. By the time I woke up it had subsided for the most part, but since then I get occasional sharp pains in that same spot. I realize that the pain could just be from the barium building up and causing discomfort.
A few days ago I tried to work, but I was so easily fatigued that I couldn't do more than about ten minutes of work without seeing spots and having my heart beat out of my chest. Also, I felt pains in the left side of my chest around my breast. Later that night I had two or three very painful heartbeats that came and went very quickly.
That is where I am now.
here are my current symptoms
-Heart palpitations, heavy/fast heartbeat. My heart always feels like it's working too hard. The slightest activity causes it to beat very hard and fast which makes me feel physically horrible.
-Nausea/difficulty with eating. Anytime that I eat to the point of being full I feel awful. My heart beats even harder, I feel like I'm going to throw up. The nausea is not as bad if I eat small amounts.
-Shortness of breath.
-Dizziness. Not necessarily lightheaded, it just feels like my ocular perception is off.
-Weight loss. Despite the fact that I have been forcing myself to east, I'm still progressively losing weight. I'm down to a 133 lbs and am wasting away.
-Warm feeling in the left side of my face. This one is kind of weird. Most days I get a strange warm feeling in my head at my hairline on the left side. No tingling, just warmth.
-Pressure in left inner thigh. Most often in the evening, I feel a pressure in my left thigh right on the big vein. In the last couple of weeks it's actually become a little painful. It's usually condensed to a quater sized area and sometimes makes my whole leg tingle.
-Urticaria. It's always there. I've tried changing my diet around, but nothing seems to slow it down except the Claritin and Zantac. There are a few things that I know will cause a reaction. Tylenol will cause a moderate reaction. Ibuprofen will cause and extreme reaction, my whole face will pretty much become a giant welt. Caffeine will cause a moderate reaction. I think that milk causes a reaction, but I am not positive.
My thoughts on everything:
First I want to make it clear that I am nearly positive that anxiety/panic is NOT the root of my problems. I will admit that I was scared when this stuff started happening to me and I did have a few panic attacks. But those were certainly caused by my other problems, mainly the tachycardia. Seriously I am one of the most laid back guys you would ever meet and in the last four weeks or so I have accepted the fact that my symptoms aren't going to kill me. The way I have written this makes me sound like a nervous wreck, but I promise that I'm calm about it all most of the time.
I think that everything is tied together. I think that the welts were the first sign, the leg pressure and difficulty singing were the next signs. Then the onslaught of symptoms over the last two and a half months means it's getting worse. The doctors I've seen don't seem to believe this, but it makes sense to me.
Why would I suddenly be allergic to stuff I've eaten/taken my whole life? I realize that allergies can develop out of nowhere, but it just seems too coincidental to me. I have two theories as to why this is happening to me. Bear in mind that I am not a doctor at all, but I have been doing a ton of research and have been approaching my conclusions from a logical, point of view.
The first theory is that it is a parasite. Maybe Giardia or H Pylori. The weight loss and gastrointestinal problems may support this. Also during the summer my friends and I go swimming in a river near my house. I am a much worse swimmer that them and I tend to swallow a lot of water when I'm thrashing about. Could a parasite like that get into my bloodstream and possibly affect my heart?
My other theory is that it's my gall bladder. I don't have much to base that on other than the pain I've been feeling in my side.
The doctor referred me to and allergist at OHSU (Oregon's big fancy medical university) and my appointment is in one week. I am praying that they will solve my problem, but I'm afraid that they might write it off as simply allergies or anxiety. That is why I am posting here.
That's pretty much all there is to it. I'm sorry for making you read so much, but honestly I'm getting very desperate for some help. Whatever this is, if I can't get past it it's going to screw my life up even worse. I'm planning on moving out and going back to college in the fall, but I can't do it if I can't work and save some money. Even if someone can point me in the right direction as far as tests and stuff it would help me so much.
I deal with parasites at work all the time (I'm up at Audubon in Forest Park) and other than Baylis (which causes neuro problems) I can't think of one that would hit a person systemically and cause the type of symptoms you have.
Yes, you're upset and anxious but you weren't when the urticaria first started. It's all the other symptoms that have been added on that are wearing you down. I'm glad you're going up on the hill. Being a teaching hospital, they may be more up to date and be able to think outside the box. Ask them if you should see a rheumatologist. Lupus and similar problems tend to hit women most often but it doesn't mean you couldn't have one of those diseases. The fact that the steroids helped you, even for a while, makes me think you should go in that direction.
I do hope they find the answers for you. This seems to be progressing.
Thank you for your concern. I will ask them about the rheumatologist and mention lupus to my doctor.
Did you ever get to the bottom of your symptoms?
I had similar symptoms for a couple of years. Taking Magnesium Chloride and Kelp tablets really helped me....
Let us know how you are !
I am just wondering to know what was your diagnosis after all those investigations? I had all of your systemic symptoms and not a clear answer from anybody yet!!?
Try to neutralize or cut back your sodium intake with potassium, no smoking
You need to get off any product that is Zantac or alike Zantac it's what is causing your heart beating fast anxiety attacks and fatigue. I had same issue came off it the next day I was back to normal
Orl13 id like to know how you are doing now days if you ever read this I'd love to speak with you as I recently started those same symptoms in july. I've never had this problem before until now. At first they lead me to believe it was panic attacks and had me all doped up on 3 different meds and it never helped. Took me off them cause i was having adverse reactions. Put me on propanaloll 10 mg.for heart palps and i was allergic, then cartizem 30mg and it literally put me down on the ground. Anyways, i had to undergo gallbladder surgery i had a cystic duct obstructuon where a stone was stuck in the duct. My doctor thought it had something to do with it. She said it takes awhile for the duct to go back to normal so it spasms causing the heart to beat faster. Next she said it could be the kidney stones. I had 10 removed about two months ago. Then mono she said could cause it i had three things wrong with me at the same time. I was in the ER every other day wracking up them doctor bills it is sad. I haven't been to the ER in awhile. Like you I've sort of accepted this for what it is but it scares me half to death.it is not anxiety and you're not alone. The only anxiety i get is from the palps happening. I have tested my heart rate to be as high as 177. I've sweated and downed the water. I just want it to go away! It takes over your life so i understand. I am 28. I have 3 kids to take care of. So yeah since the surgeries it is STILL happening on and off just not every single night like before like every couple nights now lol. I avoid all caffiene. My doctor let me in on how calcium can cause it. So watch dairy!! I have a appointment out of town hoping to get to the bottom of this.