I would suggest an event monitor to see what those episodes of chest pain are: are they simply PVCS or more organized VT? Also the first line medical treatment for LQTS in adults includes beta blockers, but I don't know about this in children, as I am not a pediatric electroplysiologist.
However, if there are any worrisome signs or symptoms, such as passing out or VT in the event monitor, then an ICD can be implanted to protect against sudden cardiac death.
Hi,
I think you need to have your son seen by a pediatric electrophysiologist (EP) (heart rhythm specialist) soon. Regular cardiologists aren't always experienced enough with electrical heart problems to properly diagnose long qt syndrome. Everyone in your family needs to be assessed. I have long QT syndrome and wouldn't have found out if one of my children didn't show borderline prolonged QT on an ECG. It took me several months before I could find a cardiologist willing to send us to an EP. Some doctors will say that Long QT Syndrome doesn't have chest pain as a symptom but I have met alot of people with it who have complained of chest pain including my son. Please contact SADS www.sads.org for an experienced EP in your area. The US has some of the world's leading Long QT Specialists, especially at the Mayo Clinic. Try Dr. Michael Ackerman. His contact info is easily found on the internet. He is probably the world's top pediatric long QT specialist. He will respond to people emailing with info on their children.
Good luck with this and go with your gut instincts.