ICD

[crippledcowgirl]

I was born with a congenital heart disease called tetralogy of fallot. 2 years ago I received an implantable cardio defibulator, as my heart had gone into V-tach. 2 wks ago my defibulator finally went off and saved my life, as my heart went into one of the worst rhythms called V-Fib..which is sometimes called "sudden death".  I don't know anyone else who has an ICD...so just wondering if anyone out there would like to share their experiences with receiving shocks, coping, etc. Any info from someone who understands would be great :) Thanks

[crippledcowgirl]

I believe that my ICD is set to fire after VT beats. However my heart rate goes up so quickly that I pass out before the shock.  I have never passed out before having these arrhythmia's.  The last time I passed out in the shower and smashed my head and teeth (broke one tooth)...I woke up in the bottom of the tub...scared to death.  I guess passing out is what scares me the most.  I am having alot of anxiety about passing out and hurting myself again. I realize the ICD is a life saving device and am so thankful to have one. Without it...I would not be here. Do you know of any websites that have information on ICD's??  I have checked out the Medtronic website and found it to be impersonal, and not all the helpful. I have sent the company an e-mail about setting up a forum for those with ICD's. It's always a comfort to know that you are not alone and to share your story and here the stories of others.

[josie490]

I've sent you a private message with a fantasic and very active adult forum for people with cardiomyopathy.

[mariop]

Try this link;

w ww.pacemakerclub.com

[Cleveland Clinic]

It can be difficult to live knowing that at any moment your ICD can fire and shock you, but you have to remember that this is essentially a life saving measure. There is some new data which may apply to your situation, in which the ICD is prevented from shocking you by waiting for an increased number of VT beats before committing to shock. Check with your electrophysiologist about this, because it may decrease the number of firings.