Hi I have Hypertrophic cardiomyopathy also known as IHSS,ASH . I would also be happy to help out if I can. Best advice I can give is check out the HCMA you are not alone.
Welcome to the site, Shark. You have something called Hypertrophic Cardiomyopathy which is what this disease is now usually called. IHSS stands for: Idiopathic (cause unknown) Hypertrophic (enlarged) Subaortic (below the atrium chamber) Stenosis (narrowing). My daughter had a very serious case of this disease; we were told it was probably one of the worst in the country. We've lived with it for many years. If you have questions, I would be more than happy to try and help you in any way that I can.