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Is it takayasu arteritis

My wife have been complaining about shortness of breath, fatigue, headache and when we saw doctors she had no pulse. Doctors immediately take CT angiogram and diagnosed with takayasu type 1. Although her ESR and CRP is normal.
the CT show that her both subclavian arteries and proximal auxiliary arteries have absent contrast opacification which means 100% blocked with distal collateral formed. And her basilar artery and vertebral arteries have streaky contrast opacification.
The doctors said there is no surgery to be done as the subclavian arteries are blocked 100% .
But one thing that was show is that her inflammatory indicators are normal like ESR and crp, heart function normal, liver function normal.
I need opinion is it takayasu or other types of vasculitis.
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Avatar universal
Wait there is no other circulatory path and they wont try and open the arteries?

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12 Comments
Sorry i just reread it and there are collaterals... im still unsure why won't they go in?

What meds is she on now?

Are they helping?

Blood work is not always indicative of whats going on in the human body.  But in all honesty she could have any autoimmune condition affecting vessels.
She is at a private hospital in India. The blockage is inaccessible and it is almost long block like 7 cm. The doctors said the success rate is low. As she has collaterals, it is better not to risk for surgery.
But still they are not sure of takayasu
Are they aggressively treating the autoimmune issue?
No
Is rheumatologist involved??
Yeah, our doctor is rheumatologist.
She is 30 years old
I am looking for some opinions from expert in takayasu. I could show her/him the CT
I think thats a good idea.  What is the current rheumatologists plans?
We will meet the rheumatologist after four days for a follow-up. Then they will give medications. Till now she has been taking prednisolone 15mg and aspirin.
Feel free to pm me if you want to private chat instead.
I texted you!
Avatar universal
Although acute phase reactants such as ESR and CRP are generally used as an indicator of inflammation and disease activity, mounting evidence suggests that these markers cannot reliably distinguish active from inactive Takayasu arteritis.

Source: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4012521/
Helpful - 0
4 Comments
Thank you. I have told this to my doctor but she said if you had taken the medicines before the blood test I would have considered takayasu but without medications how the CRP and ESR could be low if this is takayasu.
They said how it could become deactive without any medications
There are exceptions to everything. Lab tests do not always follow everything by the book. Maybe your wife's case is atypical.
Doctors couldn't find any inflammatory indication. They said we might need to do pet CT
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