Thank you in advance for your time.
How do I go about finding a proper diagnosis when dr's I've been to only treat the immediate symptoms and won't take the time to go over my entire case? I know I have a very complex case and was told by my last cardiologist I expected too much from him, I dread finding a new doctor in Jan, which will be limited by new insurance.
I tried 5 or 6 different BB's and Midodrine; they left me incapacitated for over a year, I took myself off and started feeling somewhat better, but still with problems. Even with meds & a pacemaker/ICD I still have shortness of breath, fatigue, "choking" feeling, arrhytmia's, VT runs, chest pain, bp/hr rollercoaster rides, LE and abdominal edema
This is what I have wrong that testing or surgery has found, any suggestions?
Very frequent complex ventricular ectopys (54,000+ before ablation; 10,000+ 3 months after)
Multi focal PVC's (which narrows substantially with exercise, widening again in recovery 180 ms to 80 ms)
Long runs of Polymorphic VT (VFib'd 3 times during EPS; near RV Apex & HIS)
PAC's (developed after ablation)
PSVT
Nonspecific T wave abnormalities
Bradycardia
Fainting w/no palpable pulse; Neurocardiogenic Syncope/Orthostatic Intolerance (NCS/OI)
Moderate OSA
BP - 130/70 - 150/90 during exercise stress test
Mild Tricuspid & Mitral valve insufficency
Concentric left ventricular hypertropy
EF 40% per cardiac cath
Non-Ischemic Cardiomyopathy
Dilated left atrium with normal left atrial pressures
Cardiomegaly of the heart
Vascular crowding
Incomplete RBBB (started 4/27/2007)
One EKG will be QT internal too short for rate, then I'll have prolonged QT's
Decreased LV Mass 105; LVEDV - 100 & LVESV - 30.5
Increased LV Wall Thickness - 12
Decreased Cardiac Index - 2022
LV (5.1cm) and RV (3.7cm) end diastolic midchambers
RV end diastolic midchamber lateral wall (4mm)
Moderately Increased Left Ventricle EDP - 34
Mild systemic hypertension
I really need to find out what is causing all this.