Aa
Multiple Rhythm issues
I am hoping that someone here can help guide me in the right direction. I have not posted in quite awhile so I'll give you my hx in a nutshell...
Dx by holter 8 yrs ago with SVT. started on Diltiazem and did fine except for the daily PAC's&PVC's that I just dealt with. I have very severe asthma which makes BB's intolerable.
-Sept 06' developed Atrial Fib with rapid ventricular response and needed to be cardioverted. Bumped up the Dilt.from 240 to 360mg and started Coumadin.
-Oct 06' had EP study and failed ablation for AVNRT, did flutterline ablation and started taking 75mg of Flecainide 2x day.
-Nov 06' was sent to NEMC in Boston for another attempt to ablate the SVT.
EP felt that it was successful until I turned up in Atrial Flutter 6 weeks later.
-Dec 06' hospitalized again with Atrial flutter, heart rate was 440! Had Nadalol added, decided that asthma flare was worth the risk to keep heart rate down.
-Feb 06' was now referred to the BWH in Boston for yet another EP study which showed that my AVNRT was atypical. The EP felt that he was able to completely close down the slow pathway.
I have not been without an event monitor since Sept. I am at the end of my rope. So when I thought SVT was bad enough, the event monitor, Echo and countless EKG's have shown:
Accelerated Junctional Rhythm, Junctional Escape, LAFB, RBBB, 2nd degree AV block(type 1) wandering atrial pacemaker, IST, NSVT, loss of AV synchrony, left atrial enlargement, Atrial tach.
I just spent 5 days at the Brigham after having 2 near and one full syncopal episode that left me with a nice lump on the head and other various bumps and bruises. I went through my 4th EP study since Oct. So now he's thinking that I am experiencing what he referred to as a "Pacemaker like syndrome", on top of everything else! . I just feel like every time I turn around, it's something else. I'm either suffering with the tachycardia, periods of bradycardia when the rhythm goes junctional, feeling like I'm going to pass out or the constant fatigue I feel.
If someone out there has any advise as to what the heck I should be expecting from this Dr, or any Dr or any treatment that I should push for, I would really appreciate it.
Thanks in advance
Dx by holter 8 yrs ago with SVT. started on Diltiazem and did fine except for the daily PAC's&PVC's that I just dealt with. I have very severe asthma which makes BB's intolerable.
-Sept 06' developed Atrial Fib with rapid ventricular response and needed to be cardioverted. Bumped up the Dilt.from 240 to 360mg and started Coumadin.
-Oct 06' had EP study and failed ablation for AVNRT, did flutterline ablation and started taking 75mg of Flecainide 2x day.
-Nov 06' was sent to NEMC in Boston for another attempt to ablate the SVT.
EP felt that it was successful until I turned up in Atrial Flutter 6 weeks later.
-Dec 06' hospitalized again with Atrial flutter, heart rate was 440! Had Nadalol added, decided that asthma flare was worth the risk to keep heart rate down.
-Feb 06' was now referred to the BWH in Boston for yet another EP study which showed that my AVNRT was atypical. The EP felt that he was able to completely close down the slow pathway.
I have not been without an event monitor since Sept. I am at the end of my rope. So when I thought SVT was bad enough, the event monitor, Echo and countless EKG's have shown:
Accelerated Junctional Rhythm, Junctional Escape, LAFB, RBBB, 2nd degree AV block(type 1) wandering atrial pacemaker, IST, NSVT, loss of AV synchrony, left atrial enlargement, Atrial tach.
I just spent 5 days at the Brigham after having 2 near and one full syncopal episode that left me with a nice lump on the head and other various bumps and bruises. I went through my 4th EP study since Oct. So now he's thinking that I am experiencing what he referred to as a "Pacemaker like syndrome", on top of everything else! . I just feel like every time I turn around, it's something else. I'm either suffering with the tachycardia, periods of bradycardia when the rhythm goes junctional, feeling like I'm going to pass out or the constant fatigue I feel.
If someone out there has any advise as to what the heck I should be expecting from this Dr, or any Dr or any treatment that I should push for, I would really appreciate it.
Thanks in advance
Thanks for your prayers. It seems that after each ablation, I developed new problems. The EP had hoped that in time they would lessen...but, it seems that they get progressively worse. They have mentioned the possibility of a pacer, but that would only help some of the issues. He had mentioned a trial of an SSRI for the IST, but I am reluctant to start it as it too, has some nasty side effects.
so sorry to hear about your troubles...what options are the doctors discussing? Have they talked about the possibility of a pacemaker?
what was the initial onset of these problems for you? have they gotten progressively worse?
You are in good hands at BWH...I hear they are first rate.
Please keep us posted. God Bless.
what was the initial onset of these problems for you? have they gotten progressively worse?
You are in good hands at BWH...I hear they are first rate.
Please keep us posted. God Bless.
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