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Avatar universal

No energy, my get up and go got up and went

I have HOCM and congestive heart failure, I have an ICD and I am tired all the time, It seems like I am so tired all the time that I just sit in front of the tv. Dont even want to do hobbies. not much interest in anything involving a little work. Is this the best its going to be?  What can i do to get my energy back? or will I ever get it back? I have been told a heart transplant is in my near future. I know me worrying about my heart is not helping. I feel like I have been sentenced to prison!! what else can I do?
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Avatar universal
First thing I would do is work on depression it can make your symptoms twice as bad. I have had to do this for a long time. If you do need a transplant you will need a positive outlook.
Second is learn to pace your self. I can do a little bit at a time but have to rest If I over do it, It can take me days to recover.
Third maybe this should be first. Control your heart failure medications, fluids, exercise, Follow your doctors advice.

In 91 they give me a few years when I got the first ICD implanted. After finding the right meds my heart improved a little for a good while. When I got a handle on depression and anxiety I actually felt a little better. I read some good stories from people with CHF and transplants and with technology getting better everyday gives me hope.  
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Avatar universal
Thanks for your words of encouragement, Im sure some this is depression but Im on meds for that, Some of my problem is that its so hard to get use to the idea that I have a medical condition that will at some point take my life and Im just sitting waiting for it to get bad enough that they will do the transplant, In the mean time I make expensive trips to the E.R. when things get really bad. Its like I have worked all my life since I was 13 with a paper route so that I can retire and enjoy my time with my wife and kid. Now Im using what little I have been able to save on these trips and procedures. Its so easy to get down when I start thinking about the situation and II guess Im trying to find any little piece of hope I can find to hang on to. Any way thanks for the insight. Ill really watch the depression thing.
Thanks again
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