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212059 tn?1292938529

PVC's for the last 10 months.

I'd like to start out by thanking everyone on this forum. I've been reading for months now and your words have gotten me through some pretty rough days. I've suffered with pvc's for the last 16 years. Oddly enough they began after the birth of my second child. I've never had more than a hundred or so a day until 4 years ago when out of nowhere I started getting 20,000+ per day. My cardiologist did a full work-up and told me to relax and they'll go away. After 2 weeks they went away. Two weeks later they were back again. I was in full panic mode at this point and started taking Zoloft and Xanax which I found very helpful and no, the Zoloft did not increase my pvc's. Again, 2 weeks later they went away and I was back to my normal one hundred or so per day. Two years later I stopped the zoloft but kept the Xanax in the medicine cabinet just in case. All was well until last August. I was on vacation in Cape Cod relaxing and having a great time when BAM, out of nowhere they came back. Only this time I average about 1,000 to 2,000 per day. They are on and off with no set pattern. Sometimes they get worse two weeks prior to my menses. Point being this... I just can't stand them anymore. My gp thinks I should try a beta blocker. My cardiologist tells me that the beta blocker will do more harm than good and not to worry about them. But as you all already know that is easier said than done. A friend of mine has pvc's and her cardiologist told her to take Toprol as needed when she was getting large numbers of pvc's. Has anyone else ever heard of this? I wonder if I should just try the beta blocker and see if it gives me any relief. I'd appreciate any advice.
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Avatar universal
hi been 9 yrs.do you still have these? I,ve had these too a long time,they only came on now then..now past week its everyday.i cant count them.but I can feel them in my chest upon walking even..I mostly feel mine with acid reflux.we have a nerve in our brain called vagus.it worked on 32 things..but I never went and had them checked.its always the same as you got don't worry oh ok..I drink caffeine,going to try weeing off it..if your still online leave me a message or a private message let me know how your doing..thanks
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Avatar universal
Hi,  I was first diagnosed with PVC's on accident .  My GP discovered Bigemeny while I was having my physical.  He immediately sent me next door to the hosptial for an ekg.  Anyway, 8 years later i still get them and they come regularly 4-6 days before my cycle, during my cycle, and up to 5 days beyond...and then they wain. so, I have tracked this for over a year...it's like clock work.  Also. after eating a heavy meal, or eating too late and then going to bed within an hour or so.  I take magnesium now, and Omega 3, try to eat fish two times a week, and no caffine.  My Cardio-Electrophysiologist says PVC's are annoying, their like a  theif in the night, but it isn't life threating.  I have been seeing a counselor, and a naturopath.  Looks like hormones play a big part, and so does digestion.  And let's not even start with the ANXIETY.  Who wouldn't have anxiety if they are constantly monitoring their heartbeat.  Here in these blogs, folks know how many beats, irregular and in between...it's amazing.  Afraid to drive...go places...waiting for the inevitable Heart attack... Not going to happen.  Our hearts are structurally normal.  So, definitiley STRESS...(whether you think you have it or not), and hormones, and diet....dehydration (not enough water daily.  and by all means sleep.  That's when I have had them the worst.  I am convinced on the digestion correlation though.  I know how frustrating they are ...how you just want them to stop...how you don't want to go on...why do so many of us have them? etc.  I have had all the test...wearing a 30-day monitor now.  Guess what? they put it on at the end of my menstrual cycle...it went off for like 5 days...and then NOTHING.  I decided to chill..meditate...learn deep breathing...coping skills...got a puppy.  And it has really helped.  THe beta blockers made me dizzy and low pressure...lightheaded.  Done with those.  I also have an anti-anxiety med for now...helps too.  I am faithful as well.  One love...G
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Avatar universal
Thanks for the respone.  I have cut out caffeine-too afraid to drink it :-)  Oh, I did have some decaff sweet tea, which does have trace amounts of caffeine huh?  I have been getting much more sleep; but I am pretty sure mine is due to severe stress.  I am trying to work it out, but my mind won't let me just yet :-)  It's a rough road, but hopefully one day I will be able to help someone else who is just starting out.

Good for you that they are gone-you are blessed!  I hope you continue to feel good.
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Avatar universal
Hi, I posted a few weeks ago to state my experience with PVC's. I emapthize with iamfaithful, as I am only a few years younger than you, and I felt the same way you did when they happened. It's frightening and hard to concentrate on anything else.

However, mine have compeletely stopped (knock on wood) by doing the following things:
1) Cutting out caffeine completely. Not one gram of caffeine.
2) Sleeping at least 8 hours a night. I haven't gone to sleep after 12 am since.
3) Eating better foods (I don't think this does much though)
4) Doing a little bit more exercise (just going for walks, etc.)

Anyway, i know it's different for everyone, but I truly think the caffeine and sleep are HUGE ones. They say stress does it too, but I am not stressed. Well, I would assume anyone with PVC's would have stopped caffeine a long time ago, but in case you were still having the occasional coffee (even non caffenated has caffeine), I would urge you to cut it out 100%. The sleep thing is a big one too. Hope this helps.
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1 Comments
Are your pvcs still gone? Or have they come back like mine do all the time. I go on the treadmill and get my heart rate up to 150 for 30 min and it resets my heart but then they come back with a large meal or randomly
Avatar universal
Hello-

I too am a sufferer of PVC's.  I am on metoprolol 25 mg and have been on it since May of 07 when this whole thing started.  I was begging for drugs at that time because the sensationof the PVC's were so awful to me.  The meds have helped, but now I am ready to be rid of them as I have a fear of TAKING  the meds now, I know, call me crazy.  I also have Xanax to take as needed.  The beta blocker will have me very sleepy sometimes and other times it doesn't seem to bother me at all.  When I first started having PVC's I thought I was going to die.  I cried ALL the time, called into work too many times to count, and I had just started a new job, I lost over 30 pounds because I couldn't eat, etc.  I really thought my life was over and I am only 37 yo.  

I must say that I have had a lot of stressful things happen to me in the last few years, but I'm not sure that's the culprit of my PVC's.  I also notice a HUGE increase in them right before my cycle, sometimes during and after, and if I have not gotten enough sleep.  I am always trying to pintpoint a cause and sometimes I swear....THERE IS NONE.  I can go days with just little flutters or a few small PVC's, but when those ugly ones come- you know the ones, where it feels like your heart has just dropped or stopped- I become a complete basketcase as I did this morning.  I don't think one can ever get used to that feeling.  

I wonder why there is so much discepancy over the use of beta blockers or any medication to help with the PVC's.  My doctor told me beta blockers and benzo's "basically" work the same way.  Some doctors prescribe them right off and some don't want too.....can somoone enlighten me on this?  I have been begging to come off of mine, but my doctor said he wants to make sure I don't have a "relapse" before he weans me off.

I have worn montiors, had an echo, nuclear stress test, CT, xrays, been to the ER so many times.....I just don't know anymore.  I just hope one day that I will not be so sensitve to the sensation of them as I understand everyone has them, some people just feel them and others don't.

Helpful - 0
391561 tn?1227047215
Hi, the "fish flopping" feeling is probably A-fib. (atrial Fibrillation). Suffered from it also, and that was exactly how I described it, lol.
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Avatar universal
I HAVE HAD PROBLEMS WITH MY HEART.SEANCE I WAS ABOUT 10 YEARS OLD. I AM NOW 39 YEARS OLD. IT SEAMS THE OLDER I GET THE WORSE IT GETS .3 YEARS AGO I LOST MY JOB BECAUSE I WAS HAVEING TO MANY HEART PAPUTAIONS.I GOT SO BAD I COULDN'T DO ANY KIND OFF. STRESSFUL WORK . I WOULD HAVE TO LAY DOWN TO TRY AND EAZ THE PAPUTATIONS.LAST YEAR I WAS TOLD THAT I HAVE VENTRICULAR BIGEMINEY.AND WAS GIVEN BISOPROLOL BETA BLOCKER. THAY HELP BUT THAY DONT STOP THE PROBLEM FROM COMEING BACK . SO I HAVE TO AVOIDE STRESS AND AGRAVATION. MY HEART GOS OUT TO THOSE WITH THESE PROBLEMS. GOD BLESS YOU ALL.             FROM RUSS39.
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Avatar universal
I had an ablation in March 2007 for SVT and just recently started having pvc's. The sensation I feel is like a stabbing, shocking pain. The pain comes and goes and sometimes it comes with a rapid heartrate. They told me not to worry about the pvc's because they are harmless, but I do get lighheaded and have heart disease and had a heart attacl in 2002. My cardiologist incrased my Lopressor and this has not helped as far as I can tell. They come when they want to and they are painful to me.  I feel like my heart is being shocked over and over again.
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383138 tn?1314167773
Hello,
I hope someone can help with any ideas for me. With a holter monitor test I have been diagnosed with PSV, PAC, and PSVT about 5 years ago. It got worse in the last year (I think because I have become very sick with chronic severe lyme disease it has affected my heart too). My cardiologist put me on Toprol 50 mg XL, which seemed to help the fluttering for a while. But now in the past month along with the chronic fatigue and pain from the lyme I have been having bad episodes of my heartbeat pounding fast, feeling faint, feeling pressure in chest and sweating, it will even wake me up at night and usually happens while laying down. These episodes can last from 10 minutes to hours with breaks in between. I also sometimes get that intense quivering feeling like my heart is spasming for a few seconds (very intense and scary!) this comes sometimes with the fast beat and sometimes just out of the blue with normal beating, I am getting this almost daily, sometimes a few times a day. A few times the quivering lasted more than a few seconds and I almost passed out then it stopped. I feel my heart is going to just give out one of these times! My cardiologist just told me to increase the toprol to double, but I also get episodes of very low blood pressure (89/45 or around that), especially during the "fast beating episodes" - Normal for me is 127/74. So I am worried the toprol will get it too low if I increase it since it already gets so low at times. What I really worry about is the intense "quivering" I can even sometimes feel it doing that when I put my hand to my heart when it goes on. I also sometimes feel a sensation in my chest just before it starts, my cardiologist thinks it is the PVC's, but they did not catch an intense episode on the holter, only slight fluttering once in a while, so I wonder what this really is? Does anyone have any idea, or could a PVC feel that strongly intense? It is definately not just a fast beat, it feels like erratic flopping or jerking, I guess like a fish flopping around or quivering real fast. My cardiologist doesn't seem to understand, I have not gotten the chance to explain the sensation, only try relaying messages through his nurse and it is not getting the message across. They only go by what was showing on holter monitor, but that doesn't help me when I did not have that while wearing holter.  I am ready to give up on them. But I am so scared of this, anyone know what this could be? Please help! Sorry such a long post.
Thank you,
angelize
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329165 tn?1515471990
It is so nice to know that I am not alone in my battle with miss-beats!  I am female, 32yrs old.  I had Ablation done (05/11/2007) but was unsuccessful, because a "normal" person has 1 sinus node that needs to be Ablated.  I had 3 and Electro-doc was only able to ablate 1.  I get 8-10 miss beats per minute, all day long.  At night I am bothered with Tachycardia and I am soooooooo tired all the time.  yes, there are worse things that could happen, but this is annoying and really taking over my life!

I have mild MVP and mild regurg... could this condition also have a negative effect on my heart rhythm?
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Avatar universal
Hi everyone, I am a recently new sufferer of PVC's. Except it happened to me when I was in Vegas for New Year's - I spent Dec 31st in a Las Vegas emergency room, and was probably the worst day of my life (of course I am 33). It seems a lot of people are struggling with this apparent "no big deal" issue, but I certainly unerstand how it can become quite annoying. I also feel like I lose my breath for a millisecond when it happens, so it's not like it's just a sensation. Anyway, I don't think I have it quite as bad as some other people on this board, but I'm taking all the vitamin, not taking Caffeine (I used to drink TONS of diet coke), and trying to be healthier (I am only about 10 pounds overweight, otherwise quite healthy). I feel them about every other hour now, but it was every 5 minutes in Vegas... anyway, I hope this stupid ailment goes away for everyone, in the meantime, just think there could be much worse things... I think...
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Avatar universal
Hate to burst anyone's balloon but prednisone is what is apparently CAUSING my PVC's.  I've been on a short-course o prednisone the last three weeks.  Started out at 80mg p/day (taking it for Sudden Severe Hearing Loss related to my Meniere's Disease)  Have tapered down to 40mg per day since the PVC's started, two weeks into my treatment.  Went to the ER with chest discomfort last weekend but no heart attack.  Seeing a Cardiologist on Monday.  Can't WAIT to get off the prednisone!!
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Avatar universal
Hello, everyone and I truly feel your pain. As, I type this comment I am going through the worst 2 weeks with PVC ever.  I've had the ablation procedure last September for SVT, now I am have episodes of PVC more frequent, especially about 1  week before my period.  Just seems as if isn't one thing it's another.  I battled with SVT for 27 years before my procedure, so I figured when I was wheeled all was over and fix, but then this happen.  I've got my physical with my primary on Thursday and I will like some relief my count is about 3000+ per day.
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Avatar universal
20,000+ per day???
Do you people with high amounts of PVC s feel them? - Because I feel every single one. Luckily, 100 a day would be out of the ordinary for me - 12 is a bad day for me. I just can't believe it because I notice them - they are VERY obvious to me and I don't think I could function if I was feeling on every few seconds all day long.

They really freak me out, but I dealing with them - even started a blog:
http://nevermissabeat.blogspot.com/
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Avatar universal
When you say you are flying to Cleveland, does that mean you are going to Cleveland Clinic?  What are NSTVs?  Since I have had this problem for 30 years, I have been through what you have been through.  It is a nightmare.  New to me yesterday, I was up in the morning and all of a sudden my heart began to skip.  It was skipping so bad my heart was only 50 to 60 beats a minute and my blood pressure was low.  This went on all day and night, and this morning, it was gone.  Not one skip all day.  I even called rescue to my house yesterday.

Could you give me some information on ablation?  What is a foci and how are you tested for that?  Thanks
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Avatar universal
Well,

   Ok, fisrt off I am in now way telling anyone to try this and I will explain why but the talk about the "sence of well being" happens to be right up my alley. I was a federal police officer for a little over 4 years before I had to resign due to back surgurey. During the year , 9 years to be exact, I had been on every pain med known to man. The best med I took was onxycontin but I will tell anyone, BE CAREFULL! alot of doctors will not give this out and you may have to get to a pain managment clinic to get them. Anyhow, I also hav palpatations and yeas the sence of wellbeign does blot out the palpatations but, the addiction of these drugs is real bad. I was taking 220mg of OC a day at the end and on some days I was taking about 400mgs just to get through it. With opiods, the addiction rate is very high and almost a promise. I was on percocet, morphine, MS contin, dilauted etc. etc. for about 9 years before I made my mind up to stop. I am now on suboxone and have not taken one pain killer for over a year now and beleive it or not this med takes away the mental as well as the physical desire of the drugs. The well being does help with palpatations as far as keeping your mind off of the subject although you slowly become physically addicted to the stuff. Remeber, I started off on 2 percocete 3 times a day and ended up on 20mgs a day of OC in just 9 years. That may not seem like a big deal but the addiction is something to weigh in on. I am now on metoprolol 25mg X's 2 a day and it has all but gotten rid of my palpatations. I only write about this because prednisone eats up your liver and can cause gout. The bright side to gout? If you get it and have an attack, I can promise you you will not once think of a heart palpatation :) Hopefully this helps some of you for what it is worth.
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Avatar universal
I have had PVC's since August.  I do take a betablocker, and they do help.  It's 25 mg which is a very low dose.  I take one in the morning and a half of one at night.  I also take Clonazepam (.5) at night.  This is helping.  I go days without feeling any of the "skips".  Then I get a few days of very mild flutters, usually after I eat.  My cardiologist says I'm on such a low dose of betablocker that it's not a big deal if I have to stay on it forever.  I go back to him in January and he may take me off of it.  I find that sleep plays a BIG factor.  I have had two sleepless nights and I'm feeling the flutters.  When I get rest, and I mean at least 9 hours of sleep, I don't feel them.  Also, I find drinking lots of water helps.  I just got a meditation cd (Indigo something or other for stress and anxiety) and will be using it.  My therapist, GP, OB-GYN and Cardiologist all say it's from stress.  I try to walk at least 40 minutes on the treadmill each day.  I'm not good at getting in the exercise, but it helps.  Prior to the betablocker (Lopressor), I was willing to end it all because I could not take the "thumps" in my chest.  I am able to cope now.  I'm sure the clonazepam has a lot to do with it.  As for being sleepy, I am sometimes and not others, but it's worth it not to have the major skips and especially the bygeminys (spelling????) those were the worst!
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Avatar universal
Try haveing 20,000 skipped beats per day. I wake every morning with HELLO Im still here!!! lol
Ya know i have had these attacks for years. Its just been recently that they have really sky rocketed again. I take zoloft  which did help at one time. Now its not any more. I figure something stressful triggers them and once im in an attack its hard to get out. Once im out i can eat drink what ever and nothing seems to trigger there return. Its just BAM! out of nowhere and there back and usually with a super vengeounce. I like every one else hates them, but refuse to stay home or let them control me. It dosnt mean that im not scared of them especially when im in every other beat skip, but i still keep pushin on. I do notice one thing thow... I do get them more severe when im getting ready to have my cycle. About a week before and usually a day or two into it. I have anxiety and panic and do my very very best to control this as well. Its all in the way we see it. I will do my best daily to wake up and say this is going to be a great day! If i only get a good day its all worth it.
Thanks for listening
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Avatar universal
i have had PVCs for 3 and one half weeks now.  I spend a few days in the hospital last week having bloodwork, ekgs, an echo cardiogram and a nuclear stress test.  All show that I have a healthy heart.  The cardiologist put me on 25 mg of lopressor.  I do not have high bloodpressure so he did not want to put me on a higher dose.  It seems that when i first take it in the morning it gives me a more relaxed rhythm of pvc.  After lunch, and particularly after i eat, my heart does all kinds of things, and it is very uncomfortable, and scarey!  I am obese, and have been told to lose weight.  I walk 40 minutes everyday on my treadmill, and i do get a better rhythm after that.  I have these things all day long every day.  I don't know that I can take this for much longer.  I want to ignore them.  My GP wants me to go to a psychologist.  she also wants to put me on buspar.  i don't know what to do.  i don't know why i'm stressed or anxious.  I've been through Katrina, and things have been bad, but it seems that  would have adjusted by now.  
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Avatar universal
Soopster....the only anti- anxiety-meds I've taken in the last year has been tranquilizers, and I've only taken about 30 total. I really am at my wits end with these PVC's and the runs of NSVT are unbearable. You'd think after 20 years I'd have learned to deal with them, but I've never had them this severe and certainly never had this long of a cycle. The last cycle I had lasted about 3 months followed by about 2 years without any. When I hit my year anniversary of them this year, I decided that I had dealt long enough. Though they won't affect my quantity of life, the quality of my life has gone from a 9 to a 3. It's the pits.

I'll let you know how the "quest" goes.

Be well.
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212059 tn?1292938529
Thank you for the advice.  Maybe I will try the beta.  Keep me posted on your quest for the ablation.  I'd do anything to get rid of these pvc's.  What anxiety med do you take?  I took Zoloft for a while and am thinking of starting it again. The Zoloft did not increase my pvc's at all.  

Thank you for your post.  
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Avatar universal
Hi there....I hit my year anniversary of constant multi-focal PVC's a few days ago, so I sympathize. I had a 2 and a half week break after beginning liquid magnesium, but they started up again, albeit, their not quite as bad now, maybe 3000 to 7000 aday. None the less, I'm at my ropes end.
I've started gathering all my test results and have been making plans to fly down to Cleveland to see about having an ablation. I refuse to live my life like this for another year. The small risks involved are minimal in comparison to my quality of life and even if they can only catch one of the three foci's, it might be enough to get me through this.

Concerning prednisone: Prednisone is notorious for it's ability to cause a false sense of well-being. But.., it also has the potential to cause abnormal heart rhythms in itself, along with some other nasty side-effects.

Beta-blockers seem to work fairly well for alot of people here from what I've seen, but not well for me. Toprol wiped me out, and Sectral made my PVC's much worse, though my Cardio thought that it was the med-anxiety taking the Sectral that triggered the increase. Sectral is one of the beta's specifically approved for the treatment of ventricular arrhythmia's as well hypertension.

I think giving a Beta a chance is a sound idea. You have nothing to loose if it doesn't work, but everything to gain if it does.

Best wishes!
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Avatar universal
Yes, prednisone is a steroid. I was on it for a month because of an ear infection. While on the prednisone, it totally stopped my PVCs. They returned shortly after the medication ran out.

I'm not sure why the prednisone stopped them. Maybe the steroid "strengthened" the heart, or maybe it was a placebo from the steroids making me feel like I was literally 18 years old again.
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212059 tn?1292938529
Isn't prednisone a steroid?  How could a steroid give me an overall feeling of well-being?  Has this worked for you?  
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