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REMOVAL OF ICD

I HAVE BEEN DIAGNOSED WITH ATRIAL FIB AND V-TACH ALONG WITH VENTRICULAR FIBRILATION. I ALSO HAVE CHF. WHAT ARE MY CHANCES OF SURVIVAL IF I HAVE MY ICD REMOVED?
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Avatar universal
i was diagnosed 8yrs ago with a.r.v.c after my 23yr old brother died suddenly playing football. i have had my i.c.d fitted for over 7yrs now and carry on a normal life!! i work 7days a wk as a scaffolder!! their arent really many restrictions to what you can do with your defib other than run around like a lunatic!! if your worried about it goin off whilst lifting things and having fun. go back to your specialist they can tweek it to suit your needs with the confidence to you that it is still there to save your life!!!
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Avatar universal
Hi John, how did you get on re removal. I am due for replacement next month, and I am struggling with the decision. Don't want the chance of ending up a veggie dePendant on this machine!
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Avatar universal
Hi, I don't know how long ago you posted comments. I am due to have my icd replaced in Aug 2013, in the UK. I too am a depression sufferer with bi-polar.
I think about the end and don't know if I really want to extend it. It is a concerning dilemma, if you can help with your final decision I would really appreciate.
Who can you talk to?
Michael
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Avatar universal
I had an ICD implanted just before Christmas, I went for a check up last Monday when the Nurse suddenly asked me how I was feeling, I said fine, she then said that the previous morning 6.20 to be exact, she said the device shocked me, and the reason was my electrical pulses in my heart where so faint she doubted that anyone without an ICD would have made it.
I have to admit I have hardly slept since Monday, one moment I'm fine, the next I want to burst out crying I am so scared.
The shock did not hurt at all, I was awake at the time she said, the only thing I remember before waking up after passing out, was a sudden and very severe dizzy spell.
I then realized that the same had happened a few weeks before, on that occasion I was shocked twice within 5 minutes, all occasions exactly the same, starting with a severe dizzy spell, then waking up.
I am so worried for my Daughter, I think that's what the tears are about, she is almost 19 but has mental health problems, my wife left last March, I am so worried it is doing none of this any good,
I have always considered myself a big guy who could handle anything, but this has got me scared stupid, and I cant go to the A&E because there is nobody to look after my Daughter.
I am hoping that time will be the healer and the more I get used to it, the better I will feel, especially when I think that last Sunday, without my ICD, I would not be typing this now.
This
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Avatar universal
in 1987  age 27 was mugged stabbed in chest/heart had myocardial contusion resulting in low ef,was put on ace inhibitor,alot of em,ef went back to normal,recovered fully,THEN in 1998 had M I ,vtach the works.. they put in icd shocked the hell out me alot,come to find out that i had anneurysm,heart doc says lets resect enneurysm,and u wont need icd--after open heart surgery to remove anneurysm icd out had neg eps study and it came out in 1999 and so far im fine,think my ef is around 40 or more,take  metoprolo n lisinopril daily--see primary have bloodwork done and even ekg yearly,but i havent seen heart doctor in 10 yrs,all they want to do is echoes/thalium studies up da ying yang then giv ya bad news,no thanx!!!! i wud have had that icd removed even if i had pos eps.i want to live in peace,in no way was any of my life peaceful or fun when i had icd,FEAR personified!!and besides the eps doc told me in 99,the icd damages ur heart w/each shock. yes icd may save ur life,but hows life when ur constantly in fear of being hit by a damn recking ball 24/7---i guess ima big baby but i feel peace now booby
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Avatar universal
why did the your insurance cancel you? was it because you had it turned off? I had one put in 2008 they told 5 -  7 years. 4 years later they are telling me I need a new battery. It has never gone off. I just want it out.
Helpful - 0
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