CCTGA

[vinvic]

My baby was diagnosed antenatally with CCTGA and pulmonary banding was done when she was 10 days old. she is now 9 months and the cardiologist and surgeons in Sydney, Australia have decided to do the double witch operation? I am still concerned whether this is the best treatment option? According to them its the best option to prevent heart failure in the long run. She is asymptamatic and has no other issues other than the ventricles being switched. any medical advice on this.

[michaelxiaoran]

Hope your child is doing well.  I just knew my baby was diagnosed with CCTGA problem. We are discussing with the cardiologist to do double root translocation. We want to know how is your child now. Did he/she do the double witch operation?

[2210485]

I'm interested as well in how both your cases turn out.

I did some digging and it would appear these operations have a relatively optimistic success rate and good survivability.

Pediatric cardiology and ct surgery however is a very distinct and much more intricate practice then adult cardiology. Further this condition appears to be incredibly rare, so much so that I had to look up what the actual acronym meant. 0.o

I'm hoping that everything turns out all right for you both. I know this is undoubtably an overwhelming and stressful time and I don't want to request anything that would take your time or energy away from taking care of yourself or your family.

However if it's at all possible any information you can share on here regarding your case and what you're going through would be a benefit both to other parents and cardiology professionals on here.

[Foggy2]

Often symptoms develop as the child gets older and can range from mild to very serious - only your doctor who knows her history can help you with that.  If you research online, there are some hospitals in the US that specialize in this disease.  

This disease is very complex but without knowing her complete history, I cannot make that decision for you...and I know this puts you in a difficult spot.  Discuss this more with her docter after doing more research.  Let me know if you have further questions.

[vinvic]

thank you. Could you pls tell me the options briefly. I have done quite a bit of reading and this condition seems complex. My baby has no symptoms at all and never had any problems since birth. however they have done a banding surgery. If there are no symptoms at all, why surgery would be still needed??

[Foggy2]

Since I don't know the severity of her condition, I suggest you talk to her pediatric cardiologist and have him/her explain ALL options available to you/your daughter.  There are several options available, but it depends on the severity of the condition, and you an research this online (I would do this prior to talking to the doctor so you are well informed).

I understand that you want the best outcome for your daughter, but you also have to weigh the risks and benefits in taking on these procedures, which is a difficult thing to do as a mother.

We are always here to support you, so let us know if you have any questions.