I agree w. Ken on this that alot depends on what type of cardiomyopathy you may have and if it for certain has been confirmed thru testing. There are basically 3 types :
1. Dialated Cardiomypathy or an enlargement of the heart
2. Hypertrophic Cardio which is an overgrown heart muscle basically
3. Restrictive Cardio which is a stiff heart muscle.
You need to have the docs after confirmation tell you what type it is so that you can proceed from there. I would ask that as my first question, ask if it is 100% confirmed (none of that i highly suspect stuff because that doesn't cut it) ask them if they feel it is reversible, ask them what the treatment plan will be, what type of meds they will put you on, if it will effect the long term effects of your life such as having kids, physcial activity limitations, ask them what red flags that you should look out for if any that you would need to seek immediate medical attn., ask how they felt this happened to you, ask what percentile of risk that you are in for it becoming progressive, ask them why this wasn't caught before now, ask them how many patients he/she has dealt with that have this same type and if there is an expert in the field in your area that they can refer you out to for a second opinion for confirmation...those are just a few of my thoughts....
One more thing: please add some questions I could/should ask my doctor! I really don't now what to think of this. I've never been able to run much and have felt more and more tired for the last two years, but I've never thought I might have a heart disease, although I have noticed some rhythm anomalies since the age of 13.
Lots of sunshine in your lives!
I don't have reference for the numerical classification of cardiomyopathy, and don't what it represents.
I had dilated cardiomyopathy 7 years ago, and medication has returned my heart to normal size and functionality. A dilated left ventricle almost always does not have heart muscle damage that may be caused by virus, etc. Under that circumstance the heart muscle may cause the heart wall to thicken and that would be restrictive cardiomyopathy. It can be progressive and sometimes not.
If you have any other information, you are welcome to respond. Take care, and thanks for sharing.
Big thanks! :-) Now I know that I should ask my doctor if my heart muscle is already damaged - I had no idea that cardiomyopathy isn't necessarily a life-long disease.
Thanks for the response. I wish you well going forward.
I am very surprised that you got that dx. without any image test (echo, nuclear test, RMI..).
If you really had that, only Metropolol seems very poor medication to me.
In any case do not forget to ask for the status of your ejection fraction (EF) and evolution of sickness.
If really is a cardiomypathy, keep in mind that, in an small percentage, can be genetic reasons that can be tested in advance if you plan to have family.
If you do not get convincing answers, ask for a second opinion.