I am a 39 year old female who has suffered--and I mean suffered--from vasovagal syncope for the past 18 months. I, too, had a positive tilt test in June. I fainted within 3 minutes of being upright without any medication to induce symptoms. Both my pulse and my BP were undetectible. I was placed on lopressor for several months and titrated the dose up to 50 mgs twice per day. It did not work and left me very lethargic. I was then sent for an endocrine workup which showed nothing abnormal. Finally, in September, I went to a cardiologist who specializes in syncope. (I did this on my own) He repeated the tilt test and I fainted in less than one minute--again--without medication. He also conducted other tests including a 24 hour holter and a carotid massage. Both these tests were normal except for some PVC's detected on the holter. He placed me on Theo-Dur which is an asthma medication. Two weeks into therapy I began to feel normal again. Although I have occasional symptoms, I am functioning much better--almost normally. I rarely have to sit with my feet up on my desk. I can sit and have dinner in a restaurant without feeling like I am going to faint. I don't have to lie down in public places when I am out shopping, etc. Life is so much better.
My only comment to you is that I would try everything else before going to a pacemaker. I would also recommend seeing a cardiologist that specializes in syncope. The one I found happened to have trained at the Cleveland Clinic.
Good Luck!
You should make an appointment with a cardiac electrophysiologist at a large medical center and get evaluated for vasovagal syncope. If it is confirmed that you have this disorder, you may be eligible for the study. Even if you are not eligible for the study, there are already circumstances in which a pacemaker is placed for vasovagal syncope.
I too, have vasovagal syncope and would like to know how one would find information to participate in the study involving the human-testing of this type of pace maker. I had vagal reactions in the beginning of both heartcaths that required Atropine to speed up my heart. Atleast twice a day, I have the vasovagal syncope just by moving my head back slightly or even just sitting straight in a chair with good posture.
The first time this happened, I was lying on the bed on my tummy, as I lifted my head back, my whole body started buzzing and my heart rate slowed down to the 30's. It took every bit of my being to force myself off of my tummy and onto my side to stop what was happening to me. Makes me wonder if I had not rolled over, what would have happened? Would I have died? It surely felt like I was leaving for good.
Thanks for your time, Gail
I think a pacemaker would probably be a good idea in your case. It may not eliminate your symptoms or the episodes of near-syncope, but would hopefully convert an episode of complete loss of consciousness to just an episode of lightheadedness. Pacemakers have been used for years in patients with vasovagal syncope; the study is just trying to prove that this approach is indeed scientifically valid.