Aa
What type of cardiomyopathy do I have?
cardiac cath. revealed non obstructive CAD. moderate CAD, mild to moderate cardiomyopathy, EF35-40%, chronic a-fib with very low ventricular response, VVIR pacemaker installed , Synthroid75mcg, Lanoxin 0.25mg daily and 0.375 mon, Wed, Fri, Enalapril2.5 mg twice daily, Atenolol 12.5mg twice daily and Coumadin 5mg daily and 7.5 on Sundays. echocardiogram dimensions Aortic root 37mm, aortic valve opening19mm, left atrium 44mm, LV end diastolic dimention 48mm, end systolic dimension 31mm, Septal thickness 9mm, posterior wall thickness 10mm. The overall impressio was normal left ventricular size, function,regional wall motion, the ejection fraction lower limits of normal, approx 55%, left atrium is mildly dilated,the aortic root, right heart chamber are not dilated, aortic sclerosis with no stenosis in any of the four valves seen, there is moderate 2+mitral insufficiency, there is moderate 2+ tricuspid insufficiency, mild to moderate1-2+ pulmonic insufficiency. My present Cardiologist says I have Primary Cardiomyopathy. Heavy drinker for thirty years and would tend to believe that my condition could more properly be discribed as Alcoholic Cardiomyopathy. I also remember the surgeon who performed the heart cath commenting on an enlarged septum! Is a reading of Septal thickness 9mm considered enlarged? and if so would my condition be better described as hypertrophic. I am very confused. Please help. Thank You~~~~Mark
Hello Arthur,
Yes, the message I send you at the PVC-support-group at Yahoo of course never got there, cause I forgot to sign in.
Anyway I shall probably not go there again.
All that GIRL-POWER, WOW!!
Telling people what they need!!
The reactions you got and the judging; too much for me!
Don't like that. I know what I need for myself.
Your messages have been a GREAT HELP to ME. So....thank you.
Next week I'll see my heart-specialist; I'll ask him about the quivering.
We will be in touch, bey ***IANNA*** ;-)
Yes, the message I send you at the PVC-support-group at Yahoo of course never got there, cause I forgot to sign in.
Anyway I shall probably not go there again.
All that GIRL-POWER, WOW!!
Telling people what they need!!
The reactions you got and the judging; too much for me!
Don't like that. I know what I need for myself.
Your messages have been a GREAT HELP to ME. So....thank you.
Next week I'll see my heart-specialist; I'll ask him about the quivering.
We will be in touch, bey ***IANNA*** ;-)
Hi,
If someone has expierenced thousands of pacs and pvcs daily please tell me? It is the worst possible feeling on earth very debilitating! Just one question if a person does have thousands a day wouldnt there definitly be something wrong with them?
If someone has expierenced thousands of pacs and pvcs daily please tell me? It is the worst possible feeling on earth very debilitating! Just one question if a person does have thousands a day wouldnt there definitly be something wrong with them?
You are describing the exact internal vibrations I experience.
As I understand it, these may be coming from foci themselves (probably located in the pulmonary vein connections to the back of the heart). Several people have commented that they experience this very uneasy sensation.
Early on, when my PACs first started, I did notice a nervous feeling centered in my chest, but did not think much about it.
Typically, it appears to present itself right after sudden exertion, sudden excitement (even upon waking from a vivd dream).
My EP and others I have communicated with, suggest it may be that the tiny signals from the foci are being amplified by cross talk with the epicardial nervous system (nerves surrounding the heart). Typically, when those internal vibes are going full strength, it's very uncomfortable and some PACs begin to show up.
The explanation here may be that the foci may belong to a class referred to as "hidden"...ie, they have a difficult time launching "skips" because they are not located in the best position to do so. Do you also notice your skips are somewhat controlled by your body position? In my case, when lying down, they are almost not present (even when the internal vibes are going)...if those vibes are particularly strong, some PACs do get through.
I have noticed that when one of these "attacks" is going, they seem to last about 5-15 minutes...just coincidentally about the same as the half-life of freshly released adrenaline. So, my pet theory is that the adrenaline released (with stress, sudden movement, etc) kicks up the foci, which in turn, gets some of their "noise" to show up as PACs. We apparently belong to the chosen few who have the ability to notice the foci.
Over the period of time I have had PACs (about 2.6 years), this internal vibration has changed somewhat. It went from very distinct attacks (5-10 minutes) that had a thumping frequency of about 150-200 bpm, to the present, where the attacks don't seem to be quite as intense or as often, and the thumping occurs at about 200-300 bpm. I have been exercising my head off throughout this peroid, and have also noted that after exercising the vibes change their character to a "buzzing" sensation...meaning that they are vibrating at an incredible rate...the good news is that when they are like that, there are no PACs...apparently, when the foci fire at that rate their signals cannot interfere with the normal heart rhythm.
I have tried taking the anti-histamine, benadryl, at night in an attempt to see if I could get a more restful sleep...mixed results...the theory here was that benadryl has a side effect of inhibiting cholinergic signalling between nerve cells...I was hoping that was the signalling that was behind the cross-talk. At the present, I am simply learning how to keep calm when these attacks come, and find that they are less frequent and do go away within 5-15 minutes...as long as I don't get anxious.
I hope this list of experiences helps you. If I ever find something that works, I'll be sure to post it.
-Arthur
As I understand it, these may be coming from foci themselves (probably located in the pulmonary vein connections to the back of the heart). Several people have commented that they experience this very uneasy sensation.
Early on, when my PACs first started, I did notice a nervous feeling centered in my chest, but did not think much about it.
Typically, it appears to present itself right after sudden exertion, sudden excitement (even upon waking from a vivd dream).
My EP and others I have communicated with, suggest it may be that the tiny signals from the foci are being amplified by cross talk with the epicardial nervous system (nerves surrounding the heart). Typically, when those internal vibes are going full strength, it's very uncomfortable and some PACs begin to show up.
The explanation here may be that the foci may belong to a class referred to as "hidden"...ie, they have a difficult time launching "skips" because they are not located in the best position to do so. Do you also notice your skips are somewhat controlled by your body position? In my case, when lying down, they are almost not present (even when the internal vibes are going)...if those vibes are particularly strong, some PACs do get through.
I have noticed that when one of these "attacks" is going, they seem to last about 5-15 minutes...just coincidentally about the same as the half-life of freshly released adrenaline. So, my pet theory is that the adrenaline released (with stress, sudden movement, etc) kicks up the foci, which in turn, gets some of their "noise" to show up as PACs. We apparently belong to the chosen few who have the ability to notice the foci.
Over the period of time I have had PACs (about 2.6 years), this internal vibration has changed somewhat. It went from very distinct attacks (5-10 minutes) that had a thumping frequency of about 150-200 bpm, to the present, where the attacks don't seem to be quite as intense or as often, and the thumping occurs at about 200-300 bpm. I have been exercising my head off throughout this peroid, and have also noted that after exercising the vibes change their character to a "buzzing" sensation...meaning that they are vibrating at an incredible rate...the good news is that when they are like that, there are no PACs...apparently, when the foci fire at that rate their signals cannot interfere with the normal heart rhythm.
I have tried taking the anti-histamine, benadryl, at night in an attempt to see if I could get a more restful sleep...mixed results...the theory here was that benadryl has a side effect of inhibiting cholinergic signalling between nerve cells...I was hoping that was the signalling that was behind the cross-talk. At the present, I am simply learning how to keep calm when these attacks come, and find that they are less frequent and do go away within 5-15 minutes...as long as I don't get anxious.
I hope this list of experiences helps you. If I ever find something that works, I'll be sure to post it.
-Arthur
P.S. I speak only for myself. My opions.
Mr. Wilson,
You really are an egomaniacal buffoon. You think you know everything about PVC/PAC. You think you know more than the doctors, the scientist, and the researchers. If you know so much why don't you publish a paper. A book. A case study.
The people at PVC forum are certainly not all "Aunt Bee" types, who are interested in "Oprah's" opinion. Speaking for myself, I am more the "Bridgett Jones" type. (and I am sure you have no clue who that is)
In addition, exactly what "type" are you. The type that puts all people into one catagory (aunt bee) because they get tired of hearing your drivel. The "the whole world is wrong, I am right" type.
As for "Martyrs", I do not think anyone here is a "willing victim", or feel that they are "suffering for a cause". No one likes this condition. (as you imply with your statement)(I know that I,for one, hate it) We are here for each other to share, to support, to teach, to learn, and to be compassionate. (don't know that word? Look it up.)
And, yes we do want to know how to get rid of them. Yes, we do want to know what they are, or we would not have a group. Do you know how to get rid of them? If you know how to get rid of them why don't you tell us all. If you know what causes them, why don't you share that information. Hey, you'd be rich and famous. Even the scientific community doesn't know exactly WHY or HOW. Please, do tell. The whole of the medical and scientific field is on edge waiting for you, Mr. Wilson, to tell us all about it.
And while you are pointing your finger saying "they are not happy unless they are unhappy." I would like you to note that while you are pointing that one finger at someone else, there are three finger pointing back at yourself. (So take a look at those other three fingers...YOU are unhappy.)
You think you are head and shoulder above us all, but you are the one who has been "ostracized" by every heart group on the internet-with the exception of this forum. (you couldn't even get people to stay in your group)
Don't you wonder why? It isn't EVERYBODY else. It is YOU. You, to put it simply, (if you can lower yourself to simplicity) do not play well with others.
Have a lovely day.
Kat
You really are an egomaniacal buffoon. You think you know everything about PVC/PAC. You think you know more than the doctors, the scientist, and the researchers. If you know so much why don't you publish a paper. A book. A case study.
The people at PVC forum are certainly not all "Aunt Bee" types, who are interested in "Oprah's" opinion. Speaking for myself, I am more the "Bridgett Jones" type. (and I am sure you have no clue who that is)
In addition, exactly what "type" are you. The type that puts all people into one catagory (aunt bee) because they get tired of hearing your drivel. The "the whole world is wrong, I am right" type.
As for "Martyrs", I do not think anyone here is a "willing victim", or feel that they are "suffering for a cause". No one likes this condition. (as you imply with your statement)(I know that I,for one, hate it) We are here for each other to share, to support, to teach, to learn, and to be compassionate. (don't know that word? Look it up.)
And, yes we do want to know how to get rid of them. Yes, we do want to know what they are, or we would not have a group. Do you know how to get rid of them? If you know how to get rid of them why don't you tell us all. If you know what causes them, why don't you share that information. Hey, you'd be rich and famous. Even the scientific community doesn't know exactly WHY or HOW. Please, do tell. The whole of the medical and scientific field is on edge waiting for you, Mr. Wilson, to tell us all about it.
And while you are pointing your finger saying "they are not happy unless they are unhappy." I would like you to note that while you are pointing that one finger at someone else, there are three finger pointing back at yourself. (So take a look at those other three fingers...YOU are unhappy.)
You think you are head and shoulder above us all, but you are the one who has been "ostracized" by every heart group on the internet-with the exception of this forum. (you couldn't even get people to stay in your group)
Don't you wonder why? It isn't EVERYBODY else. It is YOU. You, to put it simply, (if you can lower yourself to simplicity) do not play well with others.
Have a lovely day.
Kat
Hello Arthur,
I browsed through the archives, and found a message from an Arthur the date 2-6-2002, about internal quivering of the heart.
(Is it the heart that quivers, or the muscles around the heart?)
Is that you, Arthur, who posted so many messages on the page about PVCs and PACs?
In any case, I have(now a couple of months) the same feeling of an internal vibration, while the heart is beating normally or somewhat faster and harder.
I find it very disturbing and it makes me nervous.
It is like when your hands are trembling with fear or from the cold, only this is the heart-area.
It often happens when I have been very busy or when I have had a lot of stress.(I am easely stressed out)Have been all my life. Especially at night, when I lay down in my bed, it is very disturbing; I wake up a lot of times with this quivering feeling, palpitations and PVCs.
Do you know more about them now, Arthur?
And what do you do to make it disappear?
I find beta-blockers do not work for me, they slow down my heartrate to 58-64 while I normally have a rate of 80-85.
The slow heartbeat provokes PVCs and makes me very tired.
Valium does not work, the only thing that helps me to sleep is a simple sleeping-pill. Then day by day the vibration lessened.
Oh well, if you have any advice, please answer!
Or maybe anyone else??
Greetings from ***IANNA*** (I live in the Netherlands) Bey, Bey!
I browsed through the archives, and found a message from an Arthur the date 2-6-2002, about internal quivering of the heart.
(Is it the heart that quivers, or the muscles around the heart?)
Is that you, Arthur, who posted so many messages on the page about PVCs and PACs?
In any case, I have(now a couple of months) the same feeling of an internal vibration, while the heart is beating normally or somewhat faster and harder.
I find it very disturbing and it makes me nervous.
It is like when your hands are trembling with fear or from the cold, only this is the heart-area.
It often happens when I have been very busy or when I have had a lot of stress.(I am easely stressed out)Have been all my life. Especially at night, when I lay down in my bed, it is very disturbing; I wake up a lot of times with this quivering feeling, palpitations and PVCs.
Do you know more about them now, Arthur?
And what do you do to make it disappear?
I find beta-blockers do not work for me, they slow down my heartrate to 58-64 while I normally have a rate of 80-85.
The slow heartbeat provokes PVCs and makes me very tired.
Valium does not work, the only thing that helps me to sleep is a simple sleeping-pill. Then day by day the vibration lessened.
Oh well, if you have any advice, please answer!
Or maybe anyone else??
Greetings from ***IANNA*** (I live in the Netherlands) Bey, Bey!
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